From Sean 1.0 to Sean 2.0: One Couple’s FTD Journey
When Sean Durbin noticed he was struggling to find the right words during conversations, he knew something was off. The once-boisterous extrovert who thrived at the center of family gatherings…
Read MoreHope on the Horizon: Daniel Barvin’s Personal Mission to Transform FTD Treatment
In 2017, Daniel Barvin was newly married, MBA in hand, and building a promising career in wealth management at Morgan Stanley. Then came the diagnosis that would reshape everything: He…
Read MoreRobert Seigenthaler Sculpture Fundraiser
In 2021, Robert Seigenthaler was diagnosed with FTD. Despite this diagnosis, the strength of Robert’s artwork continues to resonate. He creates representational and abstract sculptures carved from marble, alabaster, limestone,…
Read MoreFTD Science Digest: AFTD Research Priorities in 2026
As the new year begins, AFTD continues to implement a three-year strategic plan across five mission pillars. The research pillar strives to drive research to a cure and improve the quality of…
Read MoreFTD Research Spotlight: AFTD Research Priorities in 2026
As the new year begins, AFTD continues to implement a three-year strategic plan across five mission pillars. The research pillar strives to drive research to a cure and improve the quality of…
Read MoreAFTD Webinar: The Future of Neurodegenerative Advocacy: Collaboration, Science, and Shared Goals
Scientific understanding of neurodegenerative diseases is rapidly evolving, revealing extensive overlap of both symptoms and biology among these disorders. Shared genetic factors behind both ALS and FTD are one example;…
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