Advancing Hope: AFTD Attends Tau Consortium Investigators Meeting
Members of the AFTD staff, along with several funding partner organizations, gathered with the world’s top scientists studying tauopathies for the 2024 Tau Consortium Investigators Meeting (TCIM) this September in Denver. The Tau Consortium™ is a collaborative research program that is managed and funded by the Rainwater Charitable Foundation (RCF) that fosters collaboration and knowledge-sharing,…
Read MoreTips and Advice: Understanding Ambiguous Loss and Anticipatory Grief
Andy Atwood, a retired psychotherapist and clergyman, knows about grief. In addition to working as a grief counselor, he experienced grief firsthand after the 2021 death of his beloved younger brother, who had FTD. Last year, after the family of Bruce Willis announced the actor had been diagnosed with FTD, he found that “yet another…
Read More14th Annual Quest for the Cure Golf Tournament
The 14th annual Quest for the Cure Golf Tournament hosted by the Robert M. Hatfield Foundation is taking place on December 13, 2024, at the Bardmoor Golf & Tennis Club in Seminole, FL. Registration begins at 11:00 am with a shotgun start (scramble format) at 12:30 pm. Dinner, cocktails and awards will begin at 6:00…
Read MoreYoung Woman Tells Her Family’s FTD Story on Philadelphia News Segment
FTD care partner Hannah Clarke was interviewed on October 15 for a segment on Good Day Philadelphia about her experiences caring for her mother, Claudine, who is living with an FTD diagnosis. Hannah was attending college in Cleveland when she and her brother noticed that Claudine was developing a condition that needed to be addressed.…
Read MoreStudy Finds Suicidal Thoughts Likelier in People with Dementia, Calls for Better Supports
A study conducted by researchers at University College London (UCL) published in the journal Ageing Research Reviews finds that people diagnosed with dementia have a higher chance of experiencing suicidal thoughts but are not more likely to die by suicide than the general population. The authors highlight a growing need for better support for people…
Read MoreAFTD Ambassador Shares Her Family’s FTD Story with Massachusetts Newspaper
Dawn O’Gara, an ATD Ambassador, spoke about her beloved father’s FTD diagnosis and how it spurred her activism in an article published in the Worcester Telegram & Gazette on October 7. Normally a “take charge” type of person, O’Gara’s father James Tobin began acting out of character in the early 2010s. His generous and devoted…
Read MoreUnidos en el camino: reunión de personas confrontando la demencia frontotemporal
Únase y aprenda de otras personas que entienden y han vivido el camino difícil de la DFT (degeneración frontotemporal) en este evento virtual. Este evento es específicamente para personas hispanohablantes y las dificultades que la comunidad latina pueda encontrar en particular aquí en este país. Les daremos la bienvenida además de obtener apoyo y recursos…
Read MoreNovember 19, 2024: In-Person Meet & Greet in New York, NY
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD Ambassador Jackie Shapiro at the Haymarket Bar and Grill (252 W. 29th St.) from 6-8 p.m. Light appetizers will be provided. Cash bar. RSVP for this event by emailing jshapiro@theaftd.org. To learn more, download…
Read MoreIn-Person Meet & Greet in New York, NY
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD Ambassador Jackie Shapiro. Light appetizers will be provided. Cash bar. RSVP for this event by emailing jshapiro@theaftd.org. To learn more, download this flyer.
Read MoreNovember 9, 2024: In-Person Meet & Greet in Spokane, WA
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD Ambassador Joanne Linerud and taking place at the Argonne Library in Spokane (4322 N. Argonne Road) from 10:30 a.m. to 12:00 p.m. PT. RSVP for this event by emailing jlinerud@theaftd.org. To learn more, download…
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