North Carolina
AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: info@theaftd.org.
Support Groups (local, regional, or national) meet once a month and are led by AFTD-trained volunteers or organizations that understand FTD to foster supportive group discussions regarding approaches to care, changing relationships, safety, local resources, grief, self-care, etc.
FTD Diagnostic Centers can help with diagnosis, guidance, and connections to research opportunities.
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting your AFTD Volunteer Engagement Coordinator at cjohnson@theaftd.org
Carrie Johnson
Volunteer Engagement Coordinator
cjohnson@theaftd.org
You can also contact a volunteer local to you to find out more: AFTD Ambassadors are volunteer leaders who represent AFTD in communities and states across the United States. They raise awareness of FTD through networking, outreach, speaking engagements and attending events on behalf of AFTD.
Jerry Lazarus
glazarus@theaftd.org
(Click here to learn more about Jerry Lazarus’ connection with FTD)
Sign Up To Receive AFTD Alerts
News & Events Near You
Dear Helpline: Look For the Helpers
Dear HelpLine, I’m caring for my husband who was diagnosed with FTD two years ago. Some days…
The New York FTD Registry: How Advocacy Drives Change
The International Business Times UK recently drew an important connection between FTD advocacy efforts and the new…
AFTD and ADDF Award $2.5 million to Vesper Biotechnology for Drug VES001 Clinical Trial in FTD
The Association for Frontotemporal Degeneration (AFTD) and the Alzheimer’s Drug Discovery Foundation (ADDF) recently awarded $2.5 million…
AFTD Ambassador and “Protective Mama Bear” Dawn Kirby Interviewed on Podcast
Dawn Kirby’s daughter Kara was diagnosed with FTD at age 29. In a recent episode of the…
New Recommendation: Expanding Genetic Counseling and Testing for People Diagnosed with FTD
The FTD genetic research landscape is evolving at an unprecedented pace. Although most FTD cases do not…
A Rose with Pink Petals: How FTD Revealed Deb Jobe’s Hidden Artist
Deb Jobe, co-chair of the AFTD Persons with FTD Advisory Council, was featured in the journal Brain…
When “I’m Fine” Isn’t Fine – Understanding Anosognosia in FTD
“I’m not going back to that doctor. I don’t have FTD. I’m fine.” This type of response…
Alector Therapeutics Announces Results From Their Phase 3 Clinical Trial Evaluating Latozinemab
On October 21, 2025, Alector Therapeutics announced results from their Phase 3 INFRONT-3 clinical trial evaluating latozinemab…
Advancing Hope: AFTD Convenes 3rd Annual FTD Research Roundtable Meeting
AFTD’s 2025 FTD Research Roundtable, in-person meeting, was held September 15-17 in Arlington, Virginia. Approximately 100 scientific…
Epilepsy More Common in FTD than Alzheimer’s, Study Finds
Epilepsy symptoms and the prescription of antiseizure medications are more common in FTD than Alzheimer’s disease, as…
English 
Spanish (Mexico) 
French 
German 
Swedish 
Portuguese 
Italian 
Dutch 
Danish 
Polish 
Spanish (Spain)