AFTD newsletter issues, currently published three times each year, are archived here with a brief listing of key articles within each issue. We hope this will help you to find articles of interest and follow developments in the fight against FTD.
In this issue: Understanding the Social and Economic Impact of FTD; AFTD Pilot Grant Recipient Makes Headlines with Web-based Speech Language Therapy; Spotlight on Matt Hatfield; A Community for All Facing an FTD Journey; Benefit Brings Hope to the FTD Community; FTD Clinical Trials: Gaining Ground as Participation Mounts; AFTD Expresses Gratitude for Gifts, which fund research, education and support; Second World FTD Awareness Week Brings Global Collaboration; Save the Date: 2017 AFTD Education Conference; Giving a Hand to Our Helping Hands; AFTD Meet and Greets Connect Local Communities; Highlights from Food for Thought 2016; and AFTD-Team.
In this issue: TreatFTD: $10 Million to Jumpstart FTD Clinical Trials; Celebrating a Community of Support; Spotlight on Rick Childs; Consider a Planned Gift to AFTD; Natural History Studies Provide a Roadmap for FTD Drug Development; AFTD Expresses Gratitude for Gifts, which fund research, education and support; 2016 Education Conference: A Day to Remember; Pre-Conference Dinner for Persons Diagnosed: A Time to Connect; Giving a Hand to Our Helping Hands; AFTD’s 3rd Annual Volunteer Leadership Summit; Food for Thought 2016; and AFTD-Team.
In this issue: FTD Disorders Registry: The Future of FTD Research; FTD Research Momentum Showcased in National Meetings; Spotlight on Stephen Fenoglio; A Recipe for Hope; AFTD Welcomes New Staff; AFTD Announces Recipients of 2015 Pilot Grants for Basic and Clinical Research; 2015 Drug Discovery Awards: Top Proposals Focus on Advancing FTD Diagnosis and Treatment; AFTD Expresses Gratitude for Gifts, which fund research, education and support; Think Tank Offers Vital Perspective in AFTD’s Word; Giving a Hand to Our Helping Hands; A New Friendship, and New Avenues of Support; and AFTD-Team.
In this issue: Samuel I. Newhouse Foundation Supports $5.75M AFTD Biomarkers Initiative; AFTD Rolls Out Support Groups Initiative; Spotlight on Sue Laden; Save the Date: 2016 AFTD Education Conference; Ten Countries Make their Voices Heard During First World FTD Awareness Week; Preparations Underway for FTD Economic Burden Study; AFTD Expresses Gratitude for Gifts, which fund research, education and support; NAPA Adds Expert on Related Dementias to Advisory Council; AFTD Welcomes Research Manager, Debra Niehoff; Giving a Hand to Our Helping Hands; Food for Thought Volunteer Liaisons: Key to a Successful Campaign; and AFTD-Team.
In this issue: Clinical Trials Foster Hope in the Fight Against FTD; FTD Awareness Week Goes Global; Spotlight on Paul Lester; National Foundation Awards a Multi-Year Grant to AFTD; AFTD Staff Expanding to Meet Strategic Goals; Two AFTD Postdoctoral Fellowships Awarded for 2015-2017; Documenting the Economic Burden of FTD; AFTD Expresses Gratitude for Gifts, which fund research, education and support; Highlights From AFTD’s 2015 Education Conference; Giving a Hand to our Helping Hands; and AFTD-Team.
In this issue: AFTD Unveils 2015-18 Strategic Plan; AFTD’s HelpLine Offers Vital Information, Resources, and Support; Spotlight on Kathy Mele; AFTD Welcomes its First Director of Development & Communications; 2015 Drug Discovery Awards (Charlotte Teunissen, Ph.D. and Matthew Disney, Ph.D.); FTD Impact Survey; AFTD’s Facility Outreach Volunteer Project; Giving a Hand to our Helping Hands; and the AFTD-Team.
In this issue: NIH Awards $30 Million for FTD Research; 2nd Annual Food for Thought Campaign; Spotlight on Gail Andersen; Join Us in San Diego in April for 2015 AFTD Education Conference; 9th International Conference on FTD Brings Together Researchers, Clinicians, Caregivers; Pilot Grants Awarded for Basic Science (Dr. Thomas Kukar) and the New Susan Marcus Memorial Pilot Grant in Clinical Research (Dr. Jennifer Yokoyama); Give a Hand to Our Helping Hands; AFTD Advocates for FTD with NAPA; New: Young Adult Facebook Group; and the AFTD-Team.
In this issue: FTD Included for First Time in NAPA’s National Priorities, Celebrate 2014 FTD Awareness Week, FTD Announces First Named Fund; Spotlight on Steve Bellwoar, 9th International Conference on FTD, FTD Research Made Easy to Understand, FTD Research and Drug Development Analysis, People with FTD: From Isolation to Inspiration, Regional Coordinator Volunteers, Give a Hand to Our Helping Hands, the AFTD-Team.
In this issue: AFTD Kids and Teens: Our Children Are Not Alone, AFTD Receives $1 Million Gift, Spotlight on John Whitmarsh, White Plains Conference Recap, Dr. Marsel Mesulam Awarded the Potamkin Prize, Research Opportunities, 2014 Drug Discovery Awards, Volunteer Leadership Summit, Give a Hand to Our Helping Hands, With Love Recap, Food for Thought 2014 and The AFTD-Team.
In this issue: AFTD’s Food for Thought Campaign Spreads Awareness Across the United States and Canada, Advocate for FTD in Your State, Spotlight on Deanna Angello, AFTD Awards Pilot Grant to Dr. Emily Rogalski, Your Pharmacist: An Important Member of the Care Team, FTD Symptom or Pain: How Can You Tell?, Giving a Hand to Volunteers, AFTD’s “With Love” Campaign 2014 and The AFTD-Team.
In this issue: FTD Segment Airs on NBC Nightly News, National Alzheimer’s Project Act: Advocating for Research & Services to Benefit FTD, Spotlight on Debbie Fenoglio, Salt Lake City Conference Recap, New AFTD Board Chair, Full-Time Scientific Director Hired, Food for Thought Campaign, Respite and Respite Grants, What to Do About Roaming, Giving a Hand to Volunteers, Awareness: If You Tell Your Story, They Will Listen and The AFTD-Team.
In this issue: AFTD’s Education Conference and Annual Meeting Heads to Salt Lake City, Olivia Golding: Honoring a Mother’s Memory, Spotlight on Bonnie Shepherd, AFTD Fellowship Award, Drug Discovery Awards, Educating Professionals, Newly Diagnosed Booklet, Giving a Hand to Our Helping Hands, Awareness: Food for Thought, Advocacy: Rare Disease Day in Washington, DC and The AFTD-Team.
In this issue: Care & Cure Event: A Decade of Dedication, 8th International FTD Conference Recap, Spotlight on Popkin Shenian, New AFTD Staff Positions, AFTD Co-Hosts Scientific Symposium with ALS Association, Thoughts on Care & Cure Event from Elaine Rose, A New Resource on FTD Genetics, AFTD Volunteer Program Launched, Advocacy: Taking it to the Hill to Meet Our Families’ Needs and The AFTD-Team.
In this issue: FTD Meeting Builds Momentum in Drug Development, FTD and Everest: Conquering Mountains, Spotlight on Jary Larsen, Care & Cure Event, Atlanta Conference Recap, Primary Progressive Aphasia, Joanne Douglas and PPA, What About the Kids?, Awareness and The AFTD-Team.
In this issue: The Evolving Landscape of FTD, AFTD Education Conference & Annual Meeting, Spotlight on Linda Nee, Published Study Identifies Obstacles to Brain Donation, Drug Discovery Grantees Named, Columbia University Hosts CME Course on FTD, Somebody to Lean On: Diversifying Ways to Connect, AFTD’s HelpLine: Getting Answers to FTD Questions, AFTD Resources Help Families as the Vanguard of FTD Education, Bill’s Best BBQ Sauce, Advocacy: Meetings on the Hill and The AFTD-Team.
In this issue: Researchers Discover Gene Mutation on Chromosome 9 That Causes FTD and ALS, The AFTD Team: A toolkit and support for grassroots special forces, Spotlight on Earl Comstock, Congratulations to Dr. Seeley, Partners in Care, New Scientific Director, 2011 Pilot Grant Award, Adult Children as Caregivers, FTD Patient: Howard Glick, Brandon Cline: Biking Across America and The AFTD-Team.
In this issue: AFTD Annual Meeting and Conference Brings Caregivers Together in Boston, FTD: The Next Frontier, Spotlight on Bryan Dalesandro, A Valuable Partnership: FTD Drug Discovery Enters Year 5, AFTD Welcomes New Members to Board of Directors, TDP-43 Mouse Model, AFTD Awards Postdoctoral Fellowship to Alexandra Nicholson, Ph.D, AFTD to Join iPSC Consortium, When Parents Become Caregivers of Adult Children, New Initiative Provided Training to Care Facilities, Carol Maglich: Navigating the Stormy Sea of FTD and Tell 10 People Events.
In this issue: AFTD Adopts New Name, Current Advances in FTD Researsh, Spotlight on Emily Levy, Grants Awarded for FTD Biomarkers, AFTD Annual Meeting June 10 in Boston, Dennis Dickson to Receive Prestigous Potamkin Prize, AFTD Meets Danis Challenge, Summary of On-line Patient Survey, Rachel Hadas – How Hard Times and “The Snow Queen” Gave One Caregiver Strength, AFTD Film Released, Sylvia Mackey Joins NFL Game Plan and Tell 10 People Events.
In this issue: 7th International Conference Convenes Leaders in FTD, Task Force Identifies Needs of Families with Children, Spotlight on Sylvia Mackey, AFTD Pilot Grant Awarded to Yale, Phase 2 Clinical Trial Completed at UCSF, 2010 Survey of Medical Centers, Patient Survey, Regional Coordinators Gather in Indiana, ‘It Is What It Is’ Filmmaker Joseph Becker on Documenting FTD, Comedy Central’s Nicole Savini Asks ‘What’s So Funny?’ – Caregiving with a Smile, Awareness and Tell 10 People Events.
In this issue: AFTD Founder Completes Term as Chair, International Conference Set for October, AFTD Welcomes New Members to Board and MAC, Program Named for AFTD Founder, Danis Family Challenge – Help Fund Biomarker Research, Year Three FTD Drug Discovery Awards, AFTD Task Force on Families with Children, Hospice – A Refuge for FTD Patients and Families, Onatario – Collaboration at Baycrest Benefits Patients with FTD, Awareness, Tell 10 People Events
In this issue: Miami Meeting Spurs Path to FTD Drug Trials, AFTD’s Strategic Plan Charts Course for Future, FUS Protein Identification Clarifies FTD Pathology, AFTD Introduces Program Coordinator, FRONTIER Australia, Creating a Haven for FTD Patients Requires Family Involvement.
In this issue: NIH Funds Large Scale Study for Brain Imaging, AFTD Builds Caregiver Support Group Network , Morgan Family AFTD/ADDF Award for TDP-43 Research, 2009 AFTD Research Grant awarded, this year’s Caregiver Conferences, Recent awareness activities and Tell 10 People Events.
In this issue: AFTD’s Annual Meeting Showcases Year in Review, New Members of Board of Directors and Medical Advisory Council, NY Medical Centers Form Consortium, Caregiver Respite Grants, Strategic Analysis Being Conducted to Impact Fundraising and Research.
In this issue: 2009 Drug Discovery Awards announced, Medical Advisory Council Update- The importance of biomarkers, Advocacy update, New AFTD Respite Grants, Fundraiser success stories.
In this issue: Social Security Compassionate Allowances Program, 6th International FTD Conference, 2008 Research Grant Awards, Laden Research Fellowship, UCSF Art Program.
In this issue: Grassroots Network, AFTD’s First Public Annual Meeting, Advocacy Efforts in Canada, Research Landscape Analysis Begins.
In this issue: First Drug Discovery Grants Awarded, Second AFTD Research Grant Awarded, Family Fundraisers Raise Hope.
Fall 2007; Volume 4, Issue 3 and 2007 Annual Appeal
In this issue: Launch of the Tell 10 People Campaign, Medical Advisory Council Update – Overview of Key Research, Caregiver Tips: Brain Games, 2007 Research Grant announcement.
In this issue: AFTD Funds Drug Discovery, Caregiver Conference Report, Importance of Brain Donation, Family Advocacy Efforts Honor Brother.
In this issue: Miami Meeting of FTD Researchers, Report on 2006 Grant, Potamkin Prize Winners, Children’s FTD Support Group, Creating Personal Health Records.
Fall 2006; Volume 3, Issue 2 and 2006 Annual Appeal
In this issue: 5th International FTD Conference, PGRN Gene Found, AFTD’s 2006 Research Grant Awarded, Early Onset Dementia Report, Driving with Dementia.
In this issue: Upcoming International Conference in San Francisco, AFTD Hires Executive Director, New Diagnostic Tools, Communicating with Your Physician.
Fall 2005; Volume 2, Issue 2 and 2005 Annual Appeal
In this issue: Caregiver Conference a Big Success, AFTD Awards First Research Grant, Untangling Tau.
In this issue: AFTD Board Expands, Upcoming Caregiver Conference, AFTD Opens First Office, Caregiver Survey Results.
In this issue: 9th International Alzheimer’s Conference Includes FTD Meeting, AFTD Medical Advisory Council Convenes, Critical Role of Tau.
Spring 2004; Volume I, Issue1 (Caregiver Survey)
In this Issue: AFTD Founded, Medical Advisory Council Chair Sets Goals, 4th International FTD Conference, Caregiver Survey Enclosed, AFTD Website Expands.