Sharing our Stories

Tremendous value resides in the first-person accounts of patients, caregivers and other family members confronting FTD. Not only can their writing provide insight into the clinical course of the disease, but personal stories also offer catharsis, validation and connection. They teach us ways to convert tragedy into purpose and inspire hope. We’re grateful for their generous expression.

All views and opinions expressed are those of the author and not AFTD. No assertions made about causes or treatments for FTD should be considered medical advice. 

Stories and Poems

In these short pieces, family members introduce us to patients and to their personal situations, giving us glimpses of the magnitude of their struggles and losses, as well as the power of love. For first person accounts and blogs by people diagnosed with FTD please visit My Experience.

Art and Multimedia

Describing the personal journey of living with FTD can take many forms. From paintings, to music and videos,  these works of artistic expression, created by those living with FTD, caregivers and members of the greater FTD community, allow the creating artists to tap into multiple senses to share their experience and challenge the audience with unique perspectives.


Increasingly caregivers and family members turn to electronic media to journal about their experiences with FTD and share them with others.  These independent sites are provided for information only; AFTD is not responsible for their content.

Published Accounts, Books & Tributes

A wealth of information and experience resides in this collection of books about FTD and related issues.  Some are self-published accounts, some are tributes; all are stimulating case studies and worthy resources.

If you would like to share your writing, art or multimedia expression with AFTD, please contact us by email or at 866-507-7222.