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AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: [email protected].
Find a Support Group for Care Partners Near You
Support groups are a resource and a place to connect and share with others who understand.
PLEASE NOTE: In response to the COVID-19 pandemic, many support groups are now available to meet via AFTD’s dedicated and secure Zoom account. Learn more about how your local group is meeting by contacting your local support group volunteer, or by reaching AFTD’s HelpLine at (1-866-507-7222, [email protected]).
Virtual & National Groups
Contact a Medical Center
FTD-oriented medical centers can offer diagnosis, guidance, and connections to research opportunities.
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting a AFTD Volunteer Coordinator at [email protected].
Sign Up To Receive AFTD Alerts
News & Events Near You
Dementia Advocate with FTD Shares Her Perspective on Losing Her Driver’s License
In a blog article published by the Older Persons Advocacy Network of Australia, dementia advocate Gwenda Darling…
FTD Care Partner Shares Memories of Her Mother on TikTok
In an interview with Newsweek, FTD care partner Channing Clifford shares her favorite memories with her mother,…
The Lived Experience of FTD: Driving and FTD
The following column was written by members of the Persons with FTD Advisory Council. Members of the Council…
Link Between TAF15 Protein and FTD Discovered in UK Study
In a study published in the scientific journal Nature, researchers in the United Kingdom discovered that a…
Dear HelpLine: Looking for Support Options
Dear HelpLine, Our family is looking for ways to connect with other FTD care partners for support….
High-Profile FTD Diagnoses Boost Public Awareness, AFTD Ambassador Says
In a March 1 interview with the Rochester, Minn.-based station KAAL-TV, AFTD Ambassador Deb Scharper noted that…
A Note to the AFTD Community about Wendy Williams’s FTD Diagnosis
Since last week’s announcement that the former talk show host Wendy Williams has been diagnosed with FTD,…
Advocacy Update: Rare Disease Day and FTD
Rare Disease Day, which occurs annually on the last day of February, was established by the European…
Magazine Editor Shares Legacy of Beloved Seattle Music Promoter Diagnosed with FTD
In an interview with NPR, Charles R. Cross, former editor of the music magazine The Rocket, shared…
Guest Feature: Somebody’s Sister
FTD is an aggressive disease that disrupts people’s lives and relationships, with families often unsure what they…