Named funds are established in memory or in honor of a loved one.
At AFTD a named fund can be started with a minimum individual donation of $25,000. This is not an endowed fund, but a term fund. A term fund is in existence for one year and can be renewed annually with an additional gift.
Gifts can be unrestricted or restricted. Restricted opportunities include; research, caregiver support, and drug discovery.
For more information on establishing a named fund contact Pam McGonigle at firstname.lastname@example.org or call us at 267.514.7221, Ext. 2531
Thanks to generous gifts like these, AFTD continues to fill a crucial role by advancing research, care, and striving toward a cure for FTD.
Established AFTD Named Funds
The Dr. Lawrence Albert Memorial Fund
My father was a man who valued intellect, “animated” discussion and science. He adored playing chamber music, standard poodles, skiing, hiking, martinis, politics, tennis and groan-inducing puns. Above all, he adored his family. He was not one to talk about feelings, and the primary emotion he could express as he sank deeper into his illness (PPA/primary progressive aphasia) was rage.
To take away language and then cognitive skills was beyond cruel, especially for a man like my father. The kind of thing that could blow a family apart. But it didn’t. With the always available help and support of AFTD, Larry’s wife, children, grandchildren and great-grandchildren rallied round him and tried to give him the best quality of life they could.
When his battle ended in 2011, we buried him with a martini shaker and his beloved Captain Lawrence Beer baseball cap. He was smartly attired in his blue blazer, bow-tie and khaki pants, his uniform. Before and after his death, we became passionate about working towards finding effective treatments and, someday, a cure for FTD. Our focus has been on helping to fund research and provide learning opportunities for professionals in the field. This is our way of creating the perfect tribute to the very logical, science-oriented man that Larry was.
“We will be forever indebted to the wonderful ongoing work of Susan Dickinson and the AFTD team. Cheers, Daddy!”
Michael E. Fenoglio, MD Memorial Fund
Mike was a well-respected general surgeon and above all a loving husband, father, son, brother, uncle and friend. After a 6-year battle with FTD, we lost Mike at the age of 57. He was considered the “patient’s doctor” with his unwavering dedication and tender loving care. He had an amazing sense of humor and an infectious laugh. He believed laughter and the human spirit were as much a part of healing as science and technology, often sharing his wit, jokes, and laughter with his patients, family and friends.
Equal to his passion for medicine was his passion for life. While his life was cut short with the disease of FTD, it was well lived. He shared that zest and love for life with family and friends.
In hope of continuing his passion for helping others, we are creating this named fund, helping to fund research and hope of realizing AFTD’s mission where FTD is understood, adequately diagnosed, treated, cured and ultimately prevented.
Kevin M. Harvey Memorial Fund
The FTD journey is one of sadness, loneliness, heartache and despair. My husband Kevin was diagnosed in 2007 and passed away in 2012 at the age of 57.
Kevin was well-loved by all that were fortunate enough to have known him. His work ethics were admired, his athletic talents envied, and friendship relished.
Strength, courage, determination, and perseverance were redefined. My children and I knew that we needed to provide a new way of life for Kevin, one with the dignity and respect he so rightly deserved.
Our lives had changed, our love had not. It is with that love that I, our children, and grandchildren establish in loving memory of Kevin, The Kevin M. Harvey Memorial Fund.
My family and I commend the AFTD’s mission and dedication to educate, advocate, promote, and support those diagnosed with FTD, as well as their families and caregivers. We are proud to be a joining force with that commitment.
Susan Marcus Memorial Fund
This was AFTD’s first named fund, established by Lawrence and Jillian Marcus Neubauer, Aimee and Mathew Marcus and Barry Marcus in support of clinical research.
The Susan Marcus Memorial Fund will underwrite a pilot grant program in clinical research, and for the first time will enable AFTD to award two pilot grants.
“AFTD was very important to us as we sought information about FTD clinical trials as well as advice on Mom’s care,” said Jillian Marcus Neubauer. “And now we are pleased to be able to partner with AFTD to fund research so that future families will have options for diagnosis and treatment that we did not.”
Laden Memorial Fund
The Laden family has set up the Laden Memorial Fund in memory of Ben E. Laden.
Dr. Ben E. Laden grew up in South Carolina. After graduating from Princeton University with an AB in Math, and from Johns Hopkins with a Ph.D. in Economics, he joined the faculty of Ohio State University, living in Columbus Ohio for four years before moving to Washington, D.C. Ben had a successful career as a business economist working at the Federal Reserve Board, at T Rowe Price where he was Chief Economist for 14 years and at the U.S. Department of Housing and Urban Development. He was also President of the National Association of Business Economists for two years. Most importantly he was a proud and loving husband, father, brother, son and grandfather. Unfortunately, FTD destroyed his life before he was able to fully enjoy his grandchildren.
“There is no better use for this contribution. The work that AFTD is doing in terms of research support, advocacy, caregiver support and education is truly inspirational. We are proud and honored to be part of the solution.” Susan Laden
The Suzy Fund
This fund honors Susan Marley Newhouse. As her language failed her, she didn’t need words to make herself understood.
Her kindness, generosity and high spirits made everyone she met feel good and to this day her smile lights up a room!
The Mike Walter Fund for Research
The Mike Walter family has created a legacy of supporting research with its individual family member participation and now with its dollars by establishing The Mike Walter Fund for FTD Research. The family hopes that others will join in that effort.
“After my husband Mike passed away in 2006, I made a promise to continue to search for answers about the disease that took his life while he was with us and upon his passing. I thought originally the reason for that promise was about him and my love for him. But I was wrong. It’s about the ones that come after, our children, our grandchildren and the countless others who are searching for answers.”
Beth Walter, President, Walter Charitable Fund and 2010-2013 AFTD Board Chair