Volunteer Recognition

“I am so thankful for everyone at AFTD and for all of the volunteers. It’s really remarkable when people come together to work towards bettering this world.” – Amy Eissler, AFTD Volunteer

Giving a Hand to our Helping Hands!

Having been provided little direction after his mother was diagnosed with FTD, Scott Cain wanted to find a way to help others facing the disease. As an AFTD volunteer, he quickly found his calling: facility outreach. Amidst his personal and professional responsibilities, he has found the time to not only conduct outreach visits with administrators at local senior care communities, but also to assist with training other AFTD volunteers for facility outreach.

Tell us a little bit about your experiences so far.

I’ve been surprised how open and available everyone I’ve connected with in the senior care community has been in wanting to learn more about FTD and AFTD. The first administrator I met with was not only interested, she invited me to the next monthly lunch meeting of a professional organization she had established for senior health providers. I met so many people. I was off and running, which led to several more outreach appointments… Additionally, I have [assisted with] two facility outreach trainings this year and have enjoyed being able to help by simply sharing my experiences.

Why did you want to volunteer with AFTD?

Part of me felt like there was no way I could make a difference because I’m just one person in Northwest Arkansas. But I got over that quickly. I know that many hands make light work, so we’re all needed, and that anything I did could potentially help AFTD and people dealing with FTD.

How has the overall volunteer experience made you feel?

Thankful. I’m thankful to be allowed to partner with AFTD, and to be able to spread the word about the great AFTD resources. I’m thankful that people in senior community care have been willing to listen to me even though I’m coming from outside their world. I do think about my mother when I’m conducting a visit and I feel like I’m doing a little something for her by helping others.

What have you learned from your volunteer experiences?

It’s not that hard! Preparation is important, of course, so I have put in time preparing for outreach meetings. But the process itself is fulfilling and enjoyable.

What would you say to people who are considering volunteering with AFTD?

Step out there and try it. You’ll be glad you did.

One of AFTD’s Mid Atlantic Regional Coordinator Volunteers, Sarah Sozansky Beil, who facilitates the volunteer facility outreach trainings, shared: “Scott really engages everyone during the trainings, helping them to understand how the process works and sharing how he approaches the administrators and answers their questions. I honestly cannot say enough good things about him!”

To view past AFTD profiled volunteers for their outstanding service to the organization, see the links below:

Colleen Seymour
Mark Allshouse
Jamie Mosier
Susan Eissler
Jody Zorn
Kacy Kunesh
Mary Campbell
David Driggers
Mary Selman
Brianna Sullivan
Angela Kimble
Barbara Neufeld
Mary Black

Recent Volunteers

AFTD is able to accomplish much more than otherwise possible as a result of our generous volunteers. To the volunteers across the country we say THANK YOU for your dedication and commitment as we work together towards care and a cure for FTD.

Middle Atlantic Region
Mark Allshouse – Pennsylvania
Carli Atkinson – New York
Jane Barnes – Maryland
Steve Bellwoar – Pennsylvania
Kathryn Caruso – New Jersey
Helen-Ann Comstock – Pennsylvania
Nancy Cummings – New York
Judith Daniel – Maryland
Corey Esannason – New York
Catherine Gardner – Pennsylvania
Sylvia Gentry – Pennsylvania
Kimberly Gube – Washington DC
Barbara Hala – New York
Daniel Hedaya – New York
Jenny Hinsman – New York
Sue Hirsch – Pennsylvania
Dave Hixon – Pennsylvania
Hillary Horgan – Maryland
Gail Houseman – Pennsylvania
Diane Illis – Pennsylvania
Sandy Karger – Pennsylvania
Patricia Lombreglia – New Jersey
Carol Lovett – Pennsylvania
Robin Mansfield – Maryland
Katherine McAndrew – Virginia
Kathy Mele – New York
Susan Miller-Abbott – Pennsylvania
Susan Murphy – Maryland
Cindy Odell – Pennsylvania
Lisa Pessah-Bloom – New York
Angie Phelon – Virginia
Barbara Pickels – Virginia
Gary Radin – New Jersey
Chris Roach – New York
Brian Rose – New York
Elaine Rose – Maryland
Pop Shenian – Pennsylvania
Sarah Sozansky Beil – Virginia
Cathy Sperrick – New York
Kristel Stoveken – Pennsylvania
Lilly Triandafilou – Maryland
Stuart Waldman – New Jersey
Sidney Williams – New Jersey
Jody Zorn – New York

Southwest Region
Karine Adalian – California
Deanna Angello – California
Sarah Ezrin – California
Debbie Fenoglio – Colorado
Ada Gerard – California
Jamie Gordon – Utah
Larissa Haiker – California
Liz Johnston – California
Valerie Jordan – Colorado
Jary Larsen – California
Andrea Maga – Colorado
Phillip Myers – California
Doug Polenz – Arizona
Peter Pressman – Colorado
Kat Primeau – California
Lisa Radin – Nevada
Robin Riddle – California
Colleen Seymour – Colorado
Jill Shapira – California
Catherine Sharpsteen – Utah
Bonnie Shepherd – Utah
Shaula Stephenson – California
Michael Stowell – Colorado
Missey Toomey – Colorado
Kathy Urban – Colorado
Mary Wagstaff – California
Beth Walter – California
Teresa Webb – Arizona
John Whitmarsh – California

South Atlantic Region
Robin Albright- Florida
Lynda Ares – Alabama
Charlie Bryant-Pardini – North Carolina
Lisa Careccia – Florida
Charles Elligson – North Carolina
Michelle Grant – North Carolina
Lisa Gwyther – North Carolina
Sharon Hall – Georgia
Matt Hatfield – Florida
Leslie Johnson – Alabama
Rona Klein – North Carolina
Leigh Knosher – Alabama
Kathy LaFone – North Carolina
Paul Lester – North Carolina
Sandra Lutz – Florida
Dan Moser – Florida
Mary Revels – South Carolina
Susan Treanor – Florida
Mary Anne Upham – Florida
Rebekah Wilson – Tennessee
Katie Woodford – North Carolina

Midwest Region
Gail Andersen – Ohio
Deanna Baker – Illinois
Vickie Bope – Ohio
Lauren Brasse – Ohio
Michelle Braun – Wisconsin
Sandra Cournoyer – Minnesota
Hope DePratt – Illinois
Deborah Dolan – Iowa
James Fenske – Wisconsin
Maria Green – Iowa
Sandi Grow – Ohio
Darrell Hawley – Michigan
Katrina Hellman – Illinois
Kimberly Lueken – Illinois
Sarah Lunneborg-Vance – Minnesota
Jeff Main – Nebraska
Susan McEwan – Michigan
Deb Nash – Iowa
Lorene Schlie – Illinois
Sandra Weinman – Nebraska

Northwest Region
Joseph Beaulieu – Washington
Amy Eissler Parker – Oregon
Joanne Linerud – Washington
Rachel Lower – Washington
Marise Rowell – Montana
Daniele Vincent – Oregon
Steve Zamberlin – Washington

New England Region
Amy Almeida – Massachusetts
Connie Archambault – New Hampshire
Dorian Bannister – Maine
Katie Brandt – Massachusetts
Rick Childs – Massachusetts
Lisa Donnellan – New Hampshire
Nancy Gorman – Massachusetts
Brandt Henderson – Massachusetts
Emily Levy – Massachusetts
Wendy Miller-Anello – Massachusetts
Justin Peavey – Massachusetts
Doreen Putnam – Rhode Island
Alyssa Radcliff – Maine
Daniel Ranti – Massachusetts
Meghan Roscoe – Connecticut

South Central Region
Doris Booth – Texas
Scott Cain – Arkansas
Rita Carlson – Louisiana
Rachel Castellenos – Louisiana
Dionne Coston – Texas
Jordan Daniels – Louisiana
Stephen Fenoglio –Texas
Barbara Harty – Texas
Zoy Kocian – Texas
Kacy Kunesh – Texas
Barbara Loewy – Texas
Stephanie McLain – Texas
Shana Nissen – Texas
Amy O’Bryant – Louisiana
Gary Peacock – Texas
Deborah Price – Texas
Stacy Rathbone – Oklahoma
Tam Smith – Kansas
Susan Suchan – Oklahoma
Craig Tomes – Texas
Tiffany Turner – Oklahoma
Ruth Wilcox – Kansas

International Volunteers
Mary McLeod – Canada
Joan Harper – United Kingdom