Southwest Region

Arizona, California, Colorado, Hawaii, Nevada, New Mexico, Utah

AFTD Regional Coordinator Volunteer

AFTD’s regional coordinator volunteers are the “local” ambassadors for AFTD and the principal coordinator of volunteer activities focusing on awareness, fundraising and all other aspects of the mission in his/her region. They represent AFTD throughout their region and support the volunteers. Questions not related to volunteering should be directed to AFTD’s HelpLine at 866-507-7222 or info@theaftd.org and an AFTD staff member will be happy to assist you.

Southwest Regional Coordinator Volunteer

Kathy Urban

kurban@theaftd.org

Research and Medical Centers with FTD Focus

  • Cleveland Clinic, Las Vegas – Lou Ruvo Center for Brain Health
    Director: Jeffrey Cummings, MD
    888 West Bonneville
    Las Vegas, NV 89106
    my.clevelandclinic.org/brain_health
    Contact: 702-483-6000
  • Mayo Clinic – Scottsdale
    13400 East Shea Boulevard
    Scottsdale, AZ  85259
    www.mayoclinic.org
    Contact: 480-301-8484
  • University of California, San Diego – Perlman Neurology Clinic
    Shiley-Marcos Alzheimer’s Disease Research Center
    UCSD Movement Disorders Program: Dr. Irene Litvan, Director
    9350 Campus Pt. Drive
    La Jolla, CA  92037
    adrc.ucsd.edu/OthDemgroup.html
    Contacts:
    – For appointments at the Perlman clinic call: 858-657-8540
    – For information about FTD related research and how to participate call the Shiley-Marcos Alzheimer’s Disease Research Center: 858-822-4800
    – For the Movement Disorders Program call Ronarah Roberson at (858) 822-5871, or email rdroberson@ucsd.edu.
  • University of California, San Francisco – Memory and Aging Center
    350 Parnassus Ave.  Suite 706
    San Francisco, CA  94117
    memory.ucsf.edu/frontotemporal-dementia
    Contact: (415) 476-6880
  • University of California, Los Angeles – FTD Clinic
    10911 Weyburn Ave., Suite 200
    Los Angeles, CA  90095
    www.neurology.ucla.edu
    Contact: 310-794-2550
  • University of Utah Center for Alzheimer’s Care, Imaging and Research (CACIR)
    Cognitive Disorders Clinic – Imaging & Neurosciences Center
    729 Arapeen Dr.
    Salt Lake City, UT  84108
    www.utahmemory.org
    Contacts:
    – Danielle Justesen, Clinic Coordinator: 801-585-7575 or Danielle.justesen@hsc.utah.edu
    – For more information about research at CACIR call the Memory Study Line: 801- 587-7888

Support Groups in this Region

Denotes group is led by an AFTD affiliated leader who has participated in additional FTD training.
Note: Before attending your first group, please contact your facilitator for more details.

ARIZONA
AZ – Phoenix 2nd Tuesday of the month from 12:30 p.m.–2 p.m. Maribeth Gallagher, DNP
Hospice of the Valley
602-636-2220
Michele Grigaitis
Michele.Grigaitis@bannerhealth.com
Banner Alzheimer’s Institute
901 E Willetta Street
Phoenix, Arizona 85006
(Meets in Third Floor Library)
CALIFORNIA
CA – San Diego 1st Wednesday of the month from 2 p.m.–3:30 p.m. Tracey Truscott
858-822-4800
ttruscott@ucsd.edu
In the conference room at the Shiley-Marcos Alzheimer’s Disease Research Center, University of California, San Diego (not on campus).
CA – Sacramento
Alzheimer's Association Logo
4th Wednesday of the month from 7 p.m.–8:30 p.m. Ed Fargusson
efargusson@gmail.com
Sacramento Area Alzheimer’s Association
1-800-272-3900
Shriner’s Hospital on the UC Davis Medical Center Campus
7th Fl. Board Rm.
2425 Stockton Blvd
Sacramento, CA 95817
CA – Los Angeles/Orange County area

Alzheimer's Association Orange County Logo
3rd Tuesday of the month from 1 p.m.–2:30 p.m. Donna Velarde, LCSW
949-757-3759
donna.velarde@alzoc.org
Alzheimer’s Orange County
Suite 200
2515 McCabe Way
Irvine, CA
CA – San Luis Obispo

4th Saturday of each month at 1:00 p.m. Liz Johnston
Dr.lizjohnston@gmail.com
or (805) 471-8102
11549 Los Osos Valley Rd., Suite 109, San Luis Obispo, CA. (Parking is in the back of the building off of El Tigre St.)
CA – San Francisco 2nd and 4th Thursdays of the month from 12:30 p.m.–2:00 p.m. Robin Ketelle
415-514-2058
University of California, San Francisco
Neurosciences Building 19A
675 Nelson Rising Lane
San Francisco, CA 94158
CA – San Francisco
*(those caring for loved ones with CBD/PSP)
 Sundays, about every six weeks, from 5 p.m.–7 p.m. (call for schedule) Robin Riddle
650-814-0848
robin.riddle@brainsupportnetwork.org
Mimi’s Cafe
2208 Bridgepointe Parkway
San Mateo, CA 94404
COLORADO
CO – Denver 2nd Tuesday of the month at 5:30 p.m. Karen Harris
303-813-1669 ext. 207
kmharris@alz.org
Porter Adventist Hospital
Eagle Room
2525 S. Downing Street
Denver, CO
CO – Denver North 3rd Wednesday of the month, 6-7:30pm The Alzheimer’s Association
1-800-272-3900
alz.org/co
The Senior Hub
2360 W. 90th Ave.
Federal Heights, CO 80260
CO – Fort Collins

3rd Tuesday of the month at 2:30 p.m. Missey Toomey
970 484-2542
970 689-6193
misseytoomey@hotmail.com
Andrea Maga
970  226-1544
magaja@comcast.net
Daz Bog Coffee
401 Mason Ct
Fort Collins, 80524
NEVADA
NV – Las Vegas

AFTD-logo-outlines
1st and 3rd Wednesdays of each month, 7-8:30 p.m. Lisa Radin
702-489-2344
lradin@iglide.net
Lou Ruvo Center for Brain Health
888 West Bonneville Avenue
Las Vegas, NV 89106
NV – Reno 3rd Friday of each month from 2 p.m.–3 p.m. Lisa Tauchen
threesids321@yahoo.com
Jacob Harmon
jharmon@alz.org
1-800-272-3900
Renown Regional Medical Center
Suite 401
Neurology Department Conference Room
75 Pringle Way
Reno, NV  89502
UTAH
UT – Salt Lake City area

2nd Wednesday of the month from 10 a.m.–11:30 a.m. Bonnie Shepherd
801-231-3442
bbshepherd@comcast.net
Sandy Senior Center
9310 South, 1300 East
Sandy, UT
UT – Salt Lake City area 2nd Wednesday of the month from 6 p.m.–7:30 p.m. Jamie Gordon
801-550-3563
jjgordon3@juno.com
Bingham Creek Library
4834 West 9000 South
West Jordan, UT 84081
UT – St. George

AFTD-logo-outlines
Contact facilitator for more information Bonnie Shepherd
801-231-3442
bbshepherd@comcast.net
St. George Library
88 West 100 South St
St. George, UT
PHONE GROUP
*(Phone-based for adult children affected by FTD) 3rd  Thursday of the month from 5 p.m.–6:30 p.m. Led and organized by University of California, San Francisco:
Jamie C. Fong, M.S., CGC
415-476-8613
jfong@memory.ucsf.edu
National phone-based support group.  Contact facilitator for access number.

News & Events in Your Region