Midwest Region

Illinois, Indiana, Iowa, Michigan, Minnesota, Nebraska, North Dakota, Ohio, South Dakota, Wisconsin

AFTD Regional Coordinator Volunteer

AFTD’s regional coordinator volunteers are the “local” ambassadors for AFTD and the principal coordinator of volunteer activities focusing on awareness, fundraising and all other aspects of the mission in his/her region. They represent AFTD throughout their region and support the volunteers. Questions not related to volunteering should be directed to AFTD’s HelpLine at 866-507-7222 or [email protected] and an AFTD staff member will be happy to assist you.

Midwest Regional Coordinator Volunteer

Deb NashDeb Scharper

[email protected]

Research and Medical Centers with particular FTD Focus

  • Indiana Alzheimer Disease Center
    Indiana University School of Medicine
    355 West 16th Street
    Goodman Hall, Suite 4100
    Indianapolis, IN 46202
    Contact: 317-963-5500 (To schedule an appointment: select 4 for Clinical Core; for information about Brain Donation: select 7 for Neuropathology Studies.)
    Dr. Andrew J. Saykin, PsyD is the Director of the IADC.
  • Mayo Clinic, Rochester
    4111 Highway 52 North
    Rochester, MN 55901
    Contact:  507-538-3270
  • Northwestern University
    Cognitive Neurology & Alzheimer’s Disease Center
    320 E. Superior Street, #11-453B
    Chicago, IL  60611
    Contact:  Darby Morhardt at 312-908-9432, [email protected]
  • University Hospitals Neurological Institute
    Brain Health and Center
    Parkway Medical Building
    3619 Park East Dr., Suite 211
    Beachwood, OH  44122
    – For appointments: Kathy Perkins, Secretary, 216-464-6445 or [email protected]
    – For research and other services: Marianne Sanders, RN, 216-464-6462

Support Groups in this Region

Denotes group is led by an AFTD affiliated leader who has participated in additional FTD training.
Note: Before attending your first group, please contact your facilitator to affirm the date and time, as both are subject to change.
Not seeing an FTD support group near you? Contact the AFTD HelpLine ([email protected], 866-507-7222) to learn how to start one.

IL – Champaign


2nd Saturday of each month, 11:30 a.m. Janelle Drake
309 830-0946
[email protected]
Olive Garden
30 E. Anthony Drive
Champaign, IL
IL – Chicago 3rd Monday of the month, 6 p.m.–7:30 p.m. Darby Morhardt, PhD, LCSW
[email protected]
Northwestern Memorial Hospital
251 E Huron St, Chicago, IL 60611
IL – Chicago area:  Downers Grove
1st Tuesday of the month, 7 p.m.–8:30 p.m. Lorene Schlie
[email protected]
Gloria Dei Lutheran Church
4501 Main Street
Downers Grove, Illinois  60516
IL – Tremont

Fourth Saturday of the month, from 10:00 – 11:30 a.m. Katrina Hellman
[email protected]
or (630) 650-7951
Tremont United Methodist Church
Church Parlor
101 S Sampson St Tremont IL, 61568
IN – Indianapolis 1st Tuesday of the month, 6:30 p.m.–8:30 p.m. Mary Austrom, Ph.D.
[email protected]
Donna Wert
317- 963-5500 (select 5 for Education)
[email protected]
Joy’s House Adult Day Services
2028 E. Broad Ripple Avenue
Indianapolis, IN
IN – Loogootee 2nd Tuesday of the month, 6 p.m. Barbara Hays
[email protected]
Redemption Christian Church
1 Loogootee Plaza
Loogootee, IN 47553
(Adult Class rm.)
IN – Merrillville

4th Wednesday of each month, 6-7:30 p.m.
(First meeting 8/22/18)
Marc Toles
[email protected]
Methodist Hospital
8701 Broadway
(Classroom #2)
Merrillville, IN
IA – Cedar Rapids 2nd Tuesday of the month, 5:15-6:30 p.m. Amanda Pins, RN, BSN
[email protected]
Katz Cardiovascular Conference Rm.
701 10th Street SE
Cedar Rapids, IA 52403
IA – Des Moines

2nd Saturday of the month, 2-3:30 p.m. Al Papesh
[email protected]
Plymouth Church
4126 Ingersoll Ave.
Des Moines, IA 50312
IA – Mason City (and Southern MN)
2nd Tuesday of the month, 6:30 p.m. Deb Scharper
[email protected]
520 South Pierce
Suite 100
Mason City, Iowa
MI – Detroit area
4th Thursday of the month, 6 p.m.–7:30 p.m. Greater MI Chapter’s Harry L. Nelson Helpline at 248-351-0280
Susan McEwan
[email protected]
Beaumont Health Center
Area B, 4949 Coolidge Hwy
Royal Oak, Michigan 48073
MI – Grand Rapids 1st Wednesday of the month, 6:30 p.m.–8 p.m. Karen S. Bugg, RN, LMSW
Saint Mary’s Health Care
Lacks Center Grand Conference Room, lower level
250 Cherry Street
Grand Rapids, MI 49503
MN – Forest Lake/Hugo area

The first Tuesday of each month 6:00-7:30 p.m. Sandra Fellman
[email protected]
Hardwood Creek Library Rm. L14
19955 Forest Lake Road N
Forest Lake, MN 55025
MN – Twin Cities area 2nd and 4th Monday of the month, 6-8 p.m. Outpatient Social Worker    651-232-2202 Bethesda Hospital
1st Floor Board Room
559 Capitol Blvd.
St. Paul, MN  55103
MN – Twin Cities: SW Suburbs

2nd Tuesday of each month, 6-7:30 p.m. Sarah Lunneborg-Vance
[email protected]
The Colony
431 Prairie Center Drive
Eden Prairie, MN 55344
ND – Fargo area

The first Monday and third Wednesday of each month 4:30 p.m. Mary Karkela
[email protected]
Brook Bean Coffee House
22321 US Highway 10
Hawley, MN 56549
OH – Akron/Canton area 2nd Wednesday of the month, 6 p.m.–7 p.m. Karen Elliott
[email protected]
(800) 272-3900
Neurology and Neuroscience
701 White Pond Dr.
Akron, OH  44320
OH – Cleveland area

Alzheimer's Association Logo
2nd Saturday of the month, 1:30 p.m.–3:30 p.m. Lauren Brasse, LISW, MSSA
[email protected]
Marianne Sanders, RN
Alzheimer’s Association
23215 Commerce Park Drive, 300
Beachwood, OH 44122
OH – Columbus

Alzheimer's Association Logo
3rd Thursday of the month, 5:00-6:30 p.m. Megan Badaglia, LISW-S
[email protected]
Amy Weeks, LISW-S
[email protected]
John J. Gerlach Center for Senior Health
3830 Olentangy River Rd.
Columbus, OH 43214
Free parking
OH – Sandusky
4th Monday of the Month, 9-10:00 a.m. Kathleen Hammond:
(419) 357-6397
[email protected]
Firelands Regional Medical Center (Community Service Room)
1912 Hayes Avenue
Sandusky, OH 44870
OH – Toledo
4th Saturday of the month, 11 a.m.-1 p.m. Marian Grems
[email protected]
MemoryLane Care Services
2500 North Reynolds Road
Toledo, OH 43615
SD – Sioux Falls

Please contact facilitator for more details Mike Dircksen
[email protected]
(703) 501-6489
Prairie West Branch Library
7630 W. 26th ST
Sioux Falls, SD
WI – Milwaukee

Alzheimer's Association Logo
3rd Wednesday of the month, 6:00 p.m.–7:30 p.m. Lynda A. Markut
(414) 479-8800 or (800) 272-3900
Alzheimer’s Association
620 S. 76th Street, Suite 160
Milwaukee, WI 53214
*(Phone based for adult children affected by FTD) 3rd Thursday of the month from 5 p.m.–6:30 p.m. Led and organized by University of California, San Francisco:
Jamie C. Fong, M.S., CGC, 415-476-8613
[email protected]
National phone-based support group. Contact facilitator for access number.

Not seeing an FTD support group near you? Contact the AFTD HelpLine ([email protected], 866-507-7222) to learn how to start one.

News & Events in Your Region