Midwest Region

Illinois, Indiana, Iowa, Michigan, Minnesota, Nebraska, North Dakota, Ohio, South Dakota, Wisconsin

AFTD Regional Coordinator Volunteer

AFTD’s regional coordinator volunteers are the “local” ambassadors for AFTD and the principal coordinator of volunteer activities focusing on awareness, fundraising and all other aspects of the mission in his/her region. They represent AFTD throughout their region and support the volunteers. Questions not related to volunteering should be directed to AFTD’s HelpLine at 866-507-7222 or info@theaftd.org and an AFTD staff member will be happy to assist you.

Midwest Regional Coordinator Volunteer

Deb NashDeb Nash

dnash@theaftd.org

Research and Medical Centers with particular FTD Focus

  • Indiana Alzheimer Disease Center
    Indiana University School of Medicine
    355 West 16th Street
    Goodman Hall, Suite 4100
    Indianapolis, IN 46202
    iadc.medicine.iu.edu
    Contact: 317-963-5500 (To schedule an appointment: select 4 for Clinical Core; for information about Brain Donation: select 7 for Neuropathology Studies.)
    Dr. Andrew J. Saykin, PsyD is the Director of the IADC.
  • Mayo Clinic, Rochester
    4111 Highway 52 North
    Rochester, MN 55901
    www.mayoclinic.org
    Contact:  507-538-3270
  • Northwestern University
    Cognitive Neurology & Alzheimer’s Disease Center
    320 E. Superior Street, #11-453B
    Chicago, IL  60611
    www.brain.northwestern.edu
    Contact:  Darby Morhardt at 312-908-9432, d-morhardt@northwestern.edu
  • University Hospitals Neurological Institute
    Brain Health and Center
    Parkway Medical Building
    3619 Park East Dr., Suite 211
    Beachwood, OH  44122
    www.uhhospitals.org/OurServices/NeurologicalInstitute/MemoryandCognitionCenter.aspx
    Contacts:
    – For appointments: Kathy Perkins, Secretary, 216-464-6445 or kathy.perkins@uhhospitals.org
    – For research and other services: Marianne Sanders, RN, 216-464-6462

Support Groups in this Region

Denotes group is led by an AFTD affiliated leader who has participated in additional FTD training.
Note: Before attending your first group, please contact your facilitator for more details.

ILLINOIS
IL – Champaign

 

2nd Saturday of each month, 11:30 a.m. Janelle Drake
309 830-0946
janelle.drake57@gmail.com
Olive Garden
30 E. Anthony Drive
Champaign, IL
IL – Chicago 3rd Monday of the month, 6 p.m.–7:30 p.m. Darby Morhardt, PhD, LCSW
312-908-9432
d-morhardt@northwestern.edu
Details:
http://brain.northwestern.edu
Northwestern Memorial Hospital
251 E Huron St, Chicago, IL 60611
IL – Chicago area:  Downers Grove
1st Tuesday of the month, 7 p.m.–8:30 p.m. Lorene Schlie
loreneschlie@comcast.net
Gloria Dei Lutheran Church
4501 Main Street
Downers Grove, Illinois  60516
IL – Tremont

Fourth Saturday of the month, from 10:00 – 11:30 a.m. Katrina Hellman
katrina.hellman@att.net
or (630) 650-7951
Tremont United Methodist Church
Church Parlor
101 S Sampson St Tremont IL, 61568
INDIANA
IN – Indianapolis 1st Tuesday of the month, 6:30 p.m.–8:30 p.m. Mary Austrom, Ph.D.
317-501-1774
mguerrie@iupui.edu
Donna Wert
317- 963-5500 (select 5 for Education)
dwert@iupui.edu
Joy’s House Adult Day Services
2028 E. Broad Ripple Avenue
Indianapolis, IN
IOWA
IA – Des Moines

2nd Saturday of the month, 2-3:30 p.m. Al Papesh
213papesh@gmail.com
Plymouth Church
4126 Ingersoll Ave.
Des Moines, IA 50312
IA – Mason City (and Southern MN)
2nd Tuesday of the month, 6:30 p.m. Deb Nash
641-220-5701
debnash73@gmail.com
520 South Pierce
Suite 100
Mason City, Iowa
MICHIGAN
MI – Detroit area
4th Thursday of the month, 5 p.m.–6 p.m. Greater MI Chapter’s Harry L. Nelson Helpline at 248-351-0280
Susan McEwan
susan.mcewan@beaumont.org
Beaumont Health Center
Area B, 4949 Coolidge Hwy
Royal Oak, Michigan 48073
MI – Grand Rapids 1st Wednesday of the month, 6:30 p.m.–8 p.m. Karen S. Bugg, RN, LMSW
616-685-5445
Saint Mary’s Health Care
Lacks Center Grand Conference Room, lower level
250 Cherry Street
Grand Rapids, MI 49503
MINNESOTA
MN – Forest Lake/Hugo area

The first Tuesday of each month 6:00-7:30 p.m. Sandy Cournoyer
651-434-7650
skcourn@outlook.com
Hardwood Creek Library Rm. L14
19955 Forest Lake Road N
Forest Lake, MN 55025
MN – Twin Cities area 2nd Tuesday of the month at 6 p.m. Lynn Erkkila, MSW, LICSW
651-232-2202
(for other dementia support groups available, contact Ellen:  651-232-2166)
Bethesda Hospital
B- Level Conference Room
559 Capitol Blvd.
St. Paul, MN  55103
MN – Twin Cities: SW Suburbs

1st Meeting: May 10, 2016, 6:00 p.m. Sarah Lunneborg-Vance
612-719-0591
smlunneborg@yahoo.com
Kathy Sullivan
763-506-1307
KathyFTD@gmail.com
The Colony
431 Prairie Center Drive
Eden Prairie, MN 55344
NORTH DAKOTA
ND – Fargo area

The first Monday of each month 4:30 p.m. Mary Karkela
218-280-9953
mkarkela@perham.k12.mn.us
Bethlehem Lutheran Church
613 16th St. S.
Fargo, ND. 58103
OHIO
OH – Akron/Canton area 2nd Wednesday of the month, 6 p.m.–7 p.m. Carolyn Lake
clake@alz.org
Karen Elliott
karen.elliott@alz.org
(800) 272-3900
Neurology and Neuroscience
701 White Pond Dr.
Akron, OH  44320
OH – Cleveland area

Alzheimer's Association Logo
2nd Saturday of the month, 1:30 p.m.–3:30 p.m. Lauren Brasse, LISW, MSSA
lbrasse4@gmail.com
Marianne Sanders, RN
216-464-6462
Alzheimer’s Association
23215 Commerce Park Drive, 300
Beachwood, OH 44122
OH – Newark
1st Thursday of the month –  2-4:00 p.m. Vickie Bope:
740-601-7041
tronbope@gmail.com
Main Newark Library
101 W. Main St.
Newark, OH 43055
SOUTH DAKOTA
SD – Sioux Falls

3rd Monday of the month, 7-8:30 p.m. Mike Dircksen
med@sio.midco.net
(703) 501-6489
Caille Branch, Sioux Falls LIbrary
4100 S Carnegie Cir
Sioux Falls, SD 57106
WISCONSIN
WI – Milwaukee

Alzheimer's Association Logo
3rd Wednesday of the month, 6:00 p.m.–7:30 p.m. Lynda A. Markut
(414) 479-8800 or (800) 272-3900
Alzheimer’s Association
620 S. 76th Street, Suite 160
Milwaukee, WI 53214
PHONE GROUP
*(Phone based for adult children affected by FTD) 3rd Thursday of the month from 5 p.m.–6:30 p.m. Led and organized by University of California, San Francisco:
Jamie C. Fong, M.S., CGC, 415-476-8613
jfong@memory.ucsf.edu
National phone-based support group. Contact facilitator for access number.

News & Events in Your Region

 

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