this journey alone.
and support for families facing FTD.
degeneration of the frontal
and/or temporal lobes of the brain.
What You Need to Know
that he has been diagnosed with FTD.
Statement AFTD
Statement FTD Info &
Resources Take
Action
3:00 – 4:00 p.m. ET
Houston, TX
Education Conference
provide a resource,
an outlet, and a place
to connect with others
who understand.
News & Events
First Participant Treated in AviadoBio Phase 1/2 Clinical Trial for FTD-GRN Gene Therapy
AviadoBio announced on April 15 that the first participant has been treated in its Phase 1/2 ASPIRE-FTD trial evaluating the gene therapy AVB-101 as an intervention for FTD-GRN. “There is…
MORETips & Advice: Roaming vs. Wandering
In FTD, “roaming” refers to a form of compulsive behavior that presents as walking, biking, or driving the same route repeatedly. While their lengths may vary, the distance of these…
MORENot All Forms of PPA Are FTD, as Recent High-Profile Case Highlights
Not all forms of primary progressive aphasia (PPA) are caused by the same disease pathology with logopenic variant PPA (lvPPA) capable of being associated with either FTD or Alzheimer’s disease.…
MOREAFTD Ambassador Honors Daughter by Spreading FTD Awareness: “FTD Didn’t Win in the End”
In a recent interview with WTHI AFTD Ambassador Dawn Kirby recently shared her daughter’s FTD journey with WTHI-TV in Terre Haute, Ind., explaining how she turned her family’s pain into…
MOREBalancing Safety and Autonomy When Persons Diagnosed Leave the Home
In recent days, national media outlets have reported on the disappearance of Edmond Bradley Solomon III, a 66-year-old South Carolina man living with an FTD diagnosis, in Mexico. Mr. Solomon…
MOREDear HelpLine: Hyperorality
Dear HelpLine, My loved one is focused on eating sweets like cookies and candy bars, which is so different than how he used to eat. I’m concerned he’s not eating…
MOREResearchers Adapt Digital Intervention for Dementia Care Partners for FTD, Other Dementias
In a study published in the International Journal of Environmental Health and Research, researchers at Bangor University in Wales and University College London adapted a digital training resource for dementia…
MORERecent Study Highlights Reliability and Validity of ALLFTD Mobile App for Diagnosis and Research
A study recently published in the journal JAMA Network Open highlights the reliability and validity of a digital assessment tool, the ALLFTD Mobile App (ALLFTD-mApp) for the remote diagnosis of…
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