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FOR MY FAMILY,

To Chris, my dear husband. The day we got my diagnosis… before we got home we stopped, and you put my hands in yours and you told me that you didn’t know how, but you knew we’d make it. You said you’d make sure I had the best care possible… and you’ve done that. Your strength has never wavered.

To my kids, Erin, Gracie, Dylan, Devan, Jake, Libby, our Brady Bunch. You each have such special gifts. You’re each using them now in such a positive way. You’ve been the greatest support system anyone could have. I want you to know that every single day, I tried my best for you.

To the world: You’ve probably never heard of FTD. I hadn’t either when I got diagnosed with the speech variant of it at 41. I taught English for 17 years, until this disease took my career from me. I’ve had to readjust to life in ways I never imagined.

There aren’t any effective treatments today, and I know all too well that this is a terminal disease. But I’m not giving up. I found AFTD and a group of like-minded volunteers. Together, we’ve launched the #FTDhotshotchallenge in 2020 and are bringing it back for 2021. I drank a shot of hot sauce, and to be honest I usually can’t even eat Taco Bell because it’s too spicy. I’ll do anything possible to fight this disease, and to leave a legacy for my children.

This is for my family. I love you always.

Jennifer Lee

GET TO KNOW FTD FACTS

60000+ People Affected in U.S

3.6 Average Years to an Accurate Diagnosis

0 Approved Treatments

FRONTOTEMPORAL DEGENERATION

Young Dementia

The most common dementia under 60 isn’t Alzheimer’s. It’s FTD: primarily affecting people aged 45 to 64, and as young as 21.

Help, Support, and a Caring Community

For families facing an FTD diagnosis, AFTD offers information, resources, support, and connections to others who understand.

AFTD Drives Research

AFTD funds field-defining research, and we partner with other leading organizations to advance a future free of dementia.

Reasons for Hope

Understanding of this disease is growing, and clinical trials are taking root. Together, we can achieve a world without FTD. Join us!

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Yourself taking a shot of hot sauce

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5 friends and challenge them

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To drive AFTD’s mission

TAKE A SHOT FIGHT FTD

This journey and these times can be overwhelming. It can feel like there’s no way to help. By taking part in the #FTDHotShotChallenge you can make a difference for thousands of families. Take your shot. All it takes is a few minutes and a willingness to make your voice heard.

AFTD encourages participants in the #FTDHotShotChallenge to avoid taking actions that could risk your health, and we aren’t responsible for any injury that could occur to you based on participation. Use a hot sauce that you’re familiar and comfortable with, in a reasonable quantity. If hot sauce isn’t part of your diet or if you aren’t certain of your reaction, use ketchup or an alternative that’s safe for you. What’s most important is getting involved, and rallying your friends to do the same!

FIGHTFTD

LATEST NEWS IN YOUR INBOX

Get the latest on the #FTDHotShotChallenge and other AFTD efforts on behalf of families affected by young-onset dementia.

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The Association for Frontotemporal Degeneration
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