Calendar of Events
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Featured
In Caring for Carol by Caring for Me, Anthony P. Mauro Sr. recounts the emotional journey of caring for his wife, Carol, through her battle with FTD. The memoir highlights the couple’s struggles with misdiagnosis, the profound losses brought on by this unique type of dementia, and Anthony’s personal growth in embracing life’s inevitable sorrows. This… HL McIntyre from the UK is holding a fundraiser for her book, “Smple Mnds” where 40% of proceeds from the book sales will be donated to AFTD’s mission for the next six months in memory of her husband, who died in 2018, shortly after his FTD diagnosis. In this book, she shares her family’s FTD…
Featured
Janice Mandes created a one-of-a-kind coloring book called Simply Relaxing Coloring Pages in honor of her mom. Janice made it to inspire creativity and provide a calming activity for individuals and families impacted by frontotemporal degeneration (FTD). This project was inspired by her mom, who is living with FTD. She wanted to create coloring pages… |
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Cuts to federal programs are threatening the support systems that people living with FTD and their families rely on. Now more than ever, your voice matters. Join us for a powerful AFTD Advocacy Webinar where you'll learn how to share your FTD journey with legislators in a way that drives real change. We'll walk you… |
4 events,
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The 20th annual GFS Memorial Golf Outing will be held on August 2, 2025 at the Lost Nation Golf Course in Willoughby, OH. The event will feature a shotgun start, four person scramble format, closest to the pin and most accurate drive contests, door prizes, a raffle and steak dinner. All proceeds to benefit AFTD’s… |
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Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at Logan County Friendly Senior Center in Bellefontaine, hosted by AFTD Volunteer Brad Greek, on August 4, 2025, from 2-4 PM ET. RSVP by emailing Brad. Learn more about and share news of this and a related… |
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Help support AFTD’s mission, get in 18 holes of golf on an exclusive course, and spread FTD awareness by joining AFTD’s 2025 Driving Hope Golf Tournament on August 10th at the Colorado National Golf Club in Erie, CO! Tickets are available for single golfers, foursomes, and dinner/drinks only guests. There are also multiple sponsorship opportunities… |
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4 events,
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Featured
From Symptom Onset to Diagnosis: Improving the FTD Diagnostic Journey FTD’s complex symptomology means it is often misdiagnosed. This webinar will explore what we know about the diagnostic journey by reviewing current data from the FTD Disorders Registry, including common early symptoms, barriers to timely diagnosis, and opportunities to improve detection and referral pathways. A… |
4 events,
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Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at Otterbein Green Hills Senior Life Community in West Liberty, hosted by AFTD Volunteer Brad Greek, on August 7, 2025, from 6-8 PM ET. RSVP by emailing Brad. Learn more about and share news of this and… |
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4 events,
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AFTD Ambassador Deb Scharper will host the 9th Annual Crusade for a Cure Golf Tournament on August 30, 2025, with proceeds benefiting AFTD’s Research Initiatives. The tournament will be held at Sunny Brae Golf Course (Osage, IA) and will feature a two-person best shot format on 18 holes, four hole-in-one opportunities, plus mulligan and fairway games. There will… |