Calendar of Events
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4 events,
At the Heart of Caring: A Caregiver’s Journal
Written by Katherine Long and Lindsay Feinberg in memory of Lindsay’s father, Andrew Feinberg, At the Heart of Caring: A Caregiver’s Journal prompts the reader with daily activities to establish self-care habits. Caregivers and Care partners can build their toolset to encourage reflection, honor their experiences, and express themselves in this handy journal. Starting April 17,…
The Electric Merch Co.
Julia Dawson, Chief Brand Curator & Creative Director at The Electric Merch Co., recently launched a new set of clothing with MOTHER and DAUGHTER embroidered in the company’s signature pink couture gradient font. This collection is in memory of her mother who had FTD and died in October 2023—and all mother/daughter duos that care for…
Caring for Carol by Caring for Me
In Caring for Carol by Caring for Me, Anthony P. Mauro Sr. recounts the emotional journey of caring for his wife, Carol, through her battle with FTD. The memoir highlights the couple’s struggles with misdiagnosis, the profound losses brought on by this unique type of dementia, and Anthony’s personal growth in embracing life’s inevitable sorrows. This…
“Smple Mnds” Fundraiser
HL McIntyre from the UK is holding a fundraiser for her book, “Smple Mnds” where 40% of proceeds from the book sales will be donated to AFTD’s mission for the next six months in memory of her husband, who died in 2018, shortly after his FTD diagnosis. In this book, she shares her family’s FTD…
5 events,
Coolmud Launch
Sisters Linnea and Erika Lehmkuhl are launching their project "Coolmud" in honor of their father, Jack, with a special pre-order taking place December 3rd through the 15th. After Jack was diagnosed with FTD in 2022 (having shown symptoms since 2015), his family knew he needed a creative outlet to express his "new language", so they…
6 events,
AFTD Advocacy: State Resolution Training
AFTD Advocacy: State Resolution Training
This training will cover the process of how to obtain a resolution — from identifying your legislators to receiving your approved resolution. It will also cover press strategies to maximize visibility and foster more awareness for FTD in your state. Attendees will receive and review the: 2025 Resolution Toolkit Resolution language Press toolkit Advocacy talking…
6 events,
Perspectives in FTD Webinar: FTD Research 2024 — Where We’ve Come From and Where We’re Headed
Perspectives in FTD Webinar: FTD Research 2024 — Where We’ve Come From and Where We’re Headed
The science of FTD is evolving at a rapid pace and it can be difficult to interpret the scientific advancements and how they may impact families facing an FTD diagnosis. In this Perspectives in FTD Research webinar, presented jointly by AFTD and the FTD Disorders Registry, AFTD’s Senior Director of Scientific Initiatives, Penny Dacks, PhD,…
6 events,
14th Annual Quest for the Cure Golf Tournament
14th Annual Quest for the Cure Golf Tournament
The 14th annual Quest for the Cure Golf Tournament hosted by the Robert M. Hatfield Foundation is taking place on December 13, 2024, at the Bardmoor Golf & Tennis Club in Seminole, FL. Registration begins at 11:00 am with a shotgun start (scramble format) at 12:30 pm. Dinner, cocktails and awards will begin at 6:00…
6 events,
2024 Dallas Marathon
Please support our team as we take on the 2024 Dallas Marathon on December 14-15 and raise money for AFTD!