Events
Calendar of Events
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3 events,
Ellie’s Butterflies
Ellie's Butterflies is a children's picture book written by Alecia Smith, described as a "loving story about understanding dementia." When Alecia's father was diagnosed with FTD at the age of 61, all three of her children were under the age of five. Alecia searched for a children's book that could help her have a conversation…
Tangle Syx – 1% for AFTD
Tangle Syx, a sustainable clothing company, is donating one percent of all sales to support AFTD’s mission in honor of founder Alyssa Radcliff’s husband, Chris Radcliff. He was diagnosed with FTD in 2012, when the couple’s twins were only two years old. Chris, who was a senior engineer, died in 2016 at the age of…
With Love 10th Anniversary
AFTD is commemorating the 10th anniversary of our annual With Love campaign this February. During the month-long fundraiser, we encourage you to share your FTD story and how love helped you to navigate the journey — all while helping to advance AFTD’s mission. With Love allows hosts to create online fundraisers on AFTD’s fundraising platforms…
4 events,
Community Information Session: Learn More About AFTD’s March 5th Externally Led PFDD Meeting
Community Information Session: Learn More About AFTD’s March 5th Externally Led PFDD Meeting
On February 4, AFTD will host an online Community Information Session, providing information and answering questions about the upcoming AFTD-hosted virtual Externally Led Patient Focused Drug Development (EL-PFDD) meeting. The Externally Led PFDD meeting, to be held March 5, will give all whose lives have been affected by FTD the chance to share their direct…
4 events,
Dr. Daniel Kaufer Memorial Caregiver Conference
AFTD is a sponsor of the Dementia Alliance of North Carolina's Inaugural Dr. Daniel Kaufer Memorial Caregiver Conference. This online caregiver conference will focus on awareness, attitude, and action to increase behavioral understanding and to empower caregivers' response in managing behavioral changes. While looking at behaviors through a Lewy Body dementia lens, this conference will…
4 events,
February 13th: Midwest Virtual Meet & Greet
February 13th: Midwest Virtual Meet & Greet
Join AFTD Ambassador Deb Scharper for a Midwest Virtual Meet & Greet for IA, MN, SD, and ND. E-meet (via Zoom video conference) others in your area whose lives are affected by FTD. RSVP is required to receive Zoom meeting link and password. Limited spots available. To RSVP, or if you have questions, please contact…
4 events,
February 17th Webinar: Brain-Behavior Connections in Frontotemporal Degeneration
February 17th Webinar: Brain-Behavior Connections in Frontotemporal Degeneration
The cognitive and behavioral changes experienced in FTD are closely related to the loss of neurons in the frontal and temporal lobes of the brain. Understanding the connection between changes in the structure of the brain and behavioral symptoms is important for understanding the disease. This webinar will discuss how patterns of atrophy in the…
4 events,
Spokane, WA Virtual Meet & Greet
Spokane, WA Virtual Meet & Greet
Join AFTD Ambassador Joanne Linerud for a Virtual Meet & Greet for the Spokane, WA area. E-meet (via Zoom video conference) others in your area whose lives are affected by FTD. RSVP is required to receive Zoom meeting link and password. Limited spots available. To RSVP, or if you have questions, please contact Joanne at…
4 events,
Fighting for the Future: Education and Support for Familial FTD/ALS
Fighting for the Future: Education and Support for Familial FTD/ALS
AFTD is a bronze-level sponsor of the University of Pennsylvania Frontotemporal Degeneration Center's virtual conference, "Fighting for the Future: Education and Support for Familial FTD/ALS." This live event will address the unique challenges and situations that arise from familial or genetic disease. Genetic counselors, neurologists, and social workers are all scheduled to talk about the…
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