After three years of her family noticing differences in her, Debbie Poirier was diagnosed with FTD in June 2022. To help spread awareness of the disease, the Poirier family created an educational design and is selling it on t-shirts, long sleeve shirts, and crewnecks on Custom Ink with all funds raised going directly to advance…
The 2022 World FTD Awareness Week will take place September 25 - October 2. This annual event comprises a full week of events, activism, and engagement designed to bring more global attention to FTD. The event is organized by World FTD United, a global coalition of FTD-focused organizations. AFTD is one of the member organizations.…
Food for Thought is a grassroots fundraising and awareness campaign focusing on food and FTD education. Held the last week of September through first week of October, Food for Thought encompasses World FTD Awareness Week. During this time, people across the world host in-person and virtual events bringing together food, fun, and connection. This year,…
AFTD is a sponsor of the 27th annual Haverford Township Day in Haverford, Pennsylvania. Members of the AFTD team will be staffing a booth from 10 a.m. to 4 p.m. We look forward to raising awareness at this event close to the AFTD office. Come out and join us!
Bill's Best Brewery in Glenside, Pennsylvania -- a long-time supporter of AFTD -- is holding its second annual 5Keg Fun Run on October 8. All proceeds benefit AFTD's mission. Registration is $20; you can register at the brewery any time it is open, or on the day of the race. The event starts at 3:00…
What is FTD? Learn about the most common form of dementia for people under the age of 60. You will learn about the signs and symptoms, how it differs from other dementias, and the resources available through AFTD and the Alzheimer's Association. AFTD Ambassador Dawn O'Gara will present during this virtual Zoom-based event. Click here…
AFTD is a sponsor of the Penn Frontotemporal Degeneration Center's Annual Caregiver Conference. This conference is for those diagnosed with FTD, and their caregivers, family, and friends to access information and support. With presentations from leading experts in neurology, clinical care, genetics, cognitive neuroscience, and more, attendees will hear the latest on innovative treatments, diagnostics,…
AFTD Ambassador Susan Eissler will be representing AFTD at the Sun City Fall Health Fair in Georgetown, Texas. The event takes place at the Sun City Texas Social Center Ballroom, Building A. If you are in the area, stop by her table and say hello!
The Delapré family is hosting the inaugural Hope in Color event on October 15, 2022 at the Balboa Yacht Club in Corona Del Mar, CA. Hope in Color was created in honor of Mary Delapré who was diagnosed with FTD in March of 2020 at 54 years old. As a costumer by trade, Mary has…
AFTD Ambassador Jerry Lazarus and AFTD volunteer Paul Lester will be staffing a table at the Duke Caregiver Community Event at the Sheraton Imperial Hotel in Durham, North Carolina. The event includes education about dementia support from Duke Health and in the community. Families and professionals are encouraged to register. #dukehealth #2022DukeCareGiverConference
AFTD is a gold sponsor of ISFTD 2022, the biannual meeting of the International Society for Frontotemporal Dementias. Early-bird registration ends on September 15, with standard registration closing on October 31. ISFTD opens with a symposium in Paris on November 2, with the biannual meeting of the ISFTD Congress taking place November 3-5 in Lille.…
AFTD is a tier 1 sponsor of the 6th Annual Geriatric Behavioral Health Conference. The conference is November 4th and 5th at Des Moines University in Des Moines, Iowa, and will be accessible virtually through Zoom. The event is a continuing medical education (CME) conference for healthcare professionals to learn about the best practices for…
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