Calendar of Events
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4 events,
Ellie’s Butterflies
Ellie's Butterflies is a children's picture book written by Alecia Smith, described as a "loving story about understanding dementia." When Alecia's father was diagnosed with FTD at the age of 61, all three of her children were under the age of five. Alecia searched for a children's book that could help her have a conversation…
Tangle Syx – 1% for AFTD
Tangle Syx, a sustainable clothing company, is donating one percent of all sales to support AFTD’s mission in honor of founder Alyssa Radcliff’s husband, Chris Radcliff. He was diagnosed with FTD in 2012, when the couple’s twins were only two years old. Chris, who was a senior engineer, died in 2016 at the age of…
A Lot Like Fun – Only Different
A Lot Like Fun – Only Different features stories, past and present, of author Jack Livingston and his longtime friend Chris Kelley, who is currently living with FTD. Jack says, “Chris was the ringleader of ‘cool stuff,’ routinely sweeping up anyone and everyone that was bold or naïve enough to join him in his rule-bending,…
Charity Miles May Sponsorship – Alector
With May's arrival, we are happy to announce another Charity Miles sponsorship and mileage goal. AFTD is grateful for Alector's repeat sponsorship and support of our mission on Charity Miles. During the month of May, every mile that community members log on the app on our behalf will be matched $1/mile, up to 10,000 miles!…
4 events,
New England Virtual Meet and Greet for Young Adults
New England Virtual Meet and Greet for Young Adults
Join AFTD Volunteer Jen Hoar for a New England Virtual Meet & Greet for young adults, ages 20-45 and children of parents with FTD. E-meet via Zoom video others in your area whose lives are affected by FTD. Only 15 spots available. RSVP is required to receive Zoom meeting access and password. To…
4 events,
Alzheimer’s Association Wisconsin State Conference
AFTD is a bronze-level sponsor of the 35th Annual Alzheimer's Association Wisconsin State Conference. This two half-day virtual event features compelling keynote speakers and topics suitable for direct care, health care, and family caregivers. Michelle Braun, PhD, will be presenting a session entitled "Frontotemporal Dementia: 5 Top Strategies to Optimize Treatment, Quality of Life, and…
4 events,
Webinar: The Speech-Language Pathologist’s Role in FTD Care
Webinar: The Speech-Language Pathologist’s Role in FTD Care
How can speech-language pathologists (SLPs) help individuals and their family members who are coping with a diagnosis of FTD? This presentation will describe how SLPs can develop a practical roadmap that targets a person-centered, functional plan of care to increase meaningful life participation in daily activities. Becky Khayum, MS, CCC-SLP will discuss strategies for different…
5 events,
Annual Penn FTD Center’s Caregiver Conference
Annual Penn FTD Center’s Caregiver Conference
The Penn Frontotemporal Degeneration (FTD) Center's Annual Caregiver Conference will take place online on Friday, June 18, 2021. The event is free to attend, although there is an option to donate to the Penn FTD Center Patient & Caregiver Education Fund upon registration. The event, subtitled “Nurturing Our Caregivers: Tools for Navigating FTD,” is intended…
Clear Guidance, LLC Workshop
Clear Guidance, LLC Workshop
Clear Guidance, LLC is hosting a workshop on June 18, 2021 from 3:30-5:00 pm ET titled, "How to Use Expressive Arts as a Tool for Meaningful Engagement: A Workshop for Healthcare Professionals in Dementia Care". Family care partners are welcome to participate as well as healthcare professionals. The workshop will be held on Zoom and…
4 events,
Southwest Virtual Meet & Greet
Southwest Virtual Meet & Greet
Join AFTD Ambassador Susan Meagher for a Virtual Meet & Greet for Utah, Colorado, Arizona and New Mexico. E-meet via Zoom video others in your area whose lives are affected by FTD. Limited spots available. RSVP is required to receive Zoom meeting access and password. To RSVP, or if you have questions, please contact…
5 events,
Olympic Distance Triathlon
Jason Nagin is participating in an Olympic Distance Triathlon on June 26, 2021 in memory of his grandmother who passed away from FTD, in honor of his mother who is currently living with FTD and in support of AFTD’s mission. Growing up, Jason watched his grandmother decline and eventually pass away from FTD in her…
Southeast Virtual Meet and Greet
Southeast Virtual Meet and Greet
Join AFTD Volunteer Ron Jackson for a Virtual Meet & Greet for those living in Alabama, Georgia, and Florida. Connect via Zoom with others in your area whose lives are affected by FTD . Limited spots available. RSVP is required to receive Zoom meeting access and password. To RSVP, or if you have questions,…
4 events,
Charity Miles July Sponsorship – The Jackie Pang Fund
With July's arrival, we are happy to announce another Charity Miles sponsorship and mileage goal. AFTD is grateful to The Jackie Pang Fund for their sponsorship and support of our mission on Charity Miles. Throughout the month of July, every mile that community members log on the app on our behalf will be matched $1/mile,…
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