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FTD Advocate Discusses Isolation and Housing Concerns Faced by Family Care Partners
In a column published by the digital periodical Next Avenue, FTD advocate Aisha Adkins, MPA, CNP, discusses how care partners and people living with conditions like FTD often face overlapping…
First Participant Treated in AviadoBio Phase 1/2 Clinical Trial for FTD-GRN Gene Therapy
AviadoBio announced on April 15 that the first participant has been treated in its Phase 1/2 ASPIRE-FTD trial evaluating the gene therapy AVB-101 as an intervention for FTD-GRN. “There is…
Tips & Advice: Roaming vs. Wandering
In FTD, “roaming” refers to a form of compulsive behavior that presents as walking, biking, or driving the same route repeatedly. While their lengths may vary, the distance of these…
Not All Forms of PPA Are FTD, as Recent High-Profile Case Highlights
Not all forms of primary progressive aphasia (PPA) are caused by the same disease pathology with logopenic variant PPA (lvPPA) capable of being associated with either FTD or Alzheimer’s disease.…
May 22, 2024: In-Person Meet & Greet in Bristol, Pa.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Margaret R. Grundy Memorial Library in Bristol, Pa., located at…
AFTD Ambassador Honors Daughter by Spreading FTD Awareness: “FTD Didn’t Win in the End”
In a recent interview with WTHI AFTD Ambassador Dawn Kirby recently shared her daughter’s FTD journey with WTHI-TV in Terre Haute, Ind., explaining how she turned her family’s pain into…
Balancing Safety and Autonomy When Persons Diagnosed Leave the Home
In recent days, national media outlets have reported on the disappearance of Edmond Bradley Solomon III, a 66-year-old South Carolina man living with an FTD diagnosis, in Mexico. Mr. Solomon…
Roaming in FTD Has an Underlying Reason, Report Says
A news report by Spectrum News 1 in Ohio shows that roaming in FTD has an underlying reason and that care partners can take steps to make this behavior safer…
Dear HelpLine: Hyperorality
Dear HelpLine, My loved one is focused on eating sweets like cookies and candy bars, which is so different than how he used to eat. I’m concerned he’s not eating…
Researchers Adapt Digital Intervention for Dementia Care Partners for FTD, Other Dementias
In a study published in the International Journal of Environmental Health and Research, researchers at Bangor University in Wales and University College London adapted a digital training resource for dementia…