What's New
Uncategorized
Help & Hope #45
Issue #45: December 2018 In this issue Marian Grems discusses the integral role that AFTD has played in her personal FTD journey. In addition, we provide an update on the 2019 Education Conference, break down the basics of Social Security…
Support AFTD’S Mission Year Round: Become a Monthly Donor Today
There are a lot of different ways to become involved in AFTD’s mission. For some, like Susan Miller Abbott, who volunteers as a Support Group Facilitator, choosing one way simply isn’t enough. “I also make a monthly donation to AFTD…
Department of Defense to Offer Funding for FTD Research
It likely comes as no surprise that the U.S. Department of Defense (DoD) funds medical research on combat-related conditions affecting servicemen and women. Less well known, however, is that the DoD also supports research more broadly through the Congressionally Directed…
Giving a Hand to Our Helping Hands!
AFTD Volunteer: Susan Hirsch Susan Hirsch, MA, has been a highly engaged and active AFTD volunteer for many years. She first reached out to AFTD to help inform her role as Education and Development Specialist at HCR ManorCare. Since then,…
Donald Newhouse Honors His Late Brother in Interview
Donald Newhouse, president of Advance Publications, spoke about both his late brother, Si, as well as his wife, Susan, during an interview on October 23. Both Si and Susan had primary progressive aphasia; Si died in October 2017 and Susan…
AFTD Education Conference Covered in Connection Newspapers
AFTD’s 2017 Education Conference was the focus of an article published on the website of Connection Newspapers on May 9. The article said that the conference “shed some light on the disease and offered support to those affected by FTD.”…
AFTD Employment Opportunity: Chief Financial Officer
AFTD is recruiting for a newly-created Chief Financial Officer position. Please share widely this opportunity to play a pivotal leadership role in the organization’s work to drive research to a cure, and improve quality of life for all affected by…
Prolific Film Director, Curtis Hanson, Has Passed Away From FTD
From The Washington Post… FTD has claimed yet another creative life. Curtis Hanson, Oscar-winning director of “L.A. Confidential” and “8-Mile,” passed away at 71 from FTD in his Los Angeles home. Read more here: http://wapo.st/2d3UtWf
CurePSP 2016 East Coast Family Conference
The 2016 East Coast Family Conference kicks off the afternoon of Friday March 11, with a reading and book signing by actress and author, Kathryn Leigh Scott. Her recent book, Last Dance at the Savoy: Life, Love and Caring for…
FTD: The Dementia No One Knows About
Frontotemporal Degeneration (FTD): The Dementia No One Knows About Monday, March 14, 2016, 6:00 to 8:00 p.m. Alzheimer’s Disease and Related Disorders, New York City’s Manhattan Office 360 Lexington Avenue, 3rd Floor (Between 40th & 41st Streets) New York, NY…