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Donald Newhouse Honors His Late Brother in Interview
Donald Newhouse, president of Advance Publications, spoke about both his late brother, Si, as well as his wife, Susan, during an interview on October 23. Both Si and Susan had primary progressive aphasia; Si died in October 2017 and Susan…
AFTD Education Conference Covered in Connection Newspapers
AFTD’s 2017 Education Conference was the focus of an article published on the website of Connection Newspapers on May 9. The article said that the conference “shed some light on the disease and offered support to those affected by FTD.”…
Prolific Film Director, Curtis Hanson, Has Passed Away From FTD
From The Washington Post… FTD has claimed yet another creative life. Curtis Hanson, Oscar-winning director of “L.A. Confidential” and “8-Mile,” passed away at 71 from FTD in his Los Angeles home. Read more here: http://wapo.st/2d3UtWf
CurePSP 2016 East Coast Family Conference
The 2016 East Coast Family Conference kicks off the afternoon of Friday March 11, with a reading and book signing by actress and author, Kathryn Leigh Scott. Her recent book, Last Dance at the Savoy: Life, Love and Caring for…
FTD: The Dementia No One Knows About
Frontotemporal Degeneration (FTD): The Dementia No One Knows About Monday, March 14, 2016, 6:00 to 8:00 p.m. Alzheimer’s Disease and Related Disorders, New York City’s Manhattan Office 360 Lexington Avenue, 3rd Floor (Between 40th & 41st Streets) New York, NY…
World FTD Awareness Week (Oct. 4-11, 2015) Social Media Kit
AFTD’s Social Media Kit offers an easy way to tell your story during World FTD Awareness Week. Simply choose the template that suits you best: Social Media Template, for persons living with FTD Social Media Template, for caregivers Social Media Template, for…
A Labor of Love
Actress Connie Shulman, most known for her work in Orange is the New Black, spoke with Neurology Now about her experience documenting a friend’s decline due to FTD. Click here to read the article.
Artist Tori Tinsley’s podcast explores FTD and her art…
In a WonderRoot Artist Feature podcast, artist Tori Tinsley explores how her mother’s FTD diagnosis has shaped her artwork. Listen to the feature here.
Sexual Issues and Dementia
This article from The Age out of Australia discusses the effects of dementia on sexual behavior.
Research Study seeking volunteers diagnosed ALS with FTD
A long term research study sponsored by Northwestern University, Chicago on the Genetics of Familial and Sporadic ALS, (NCT00821132) is seeking volunteers who have been diagnosed as having ALS with frontotemporal degeneration. Please see the following link for details and study…