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Personal Stories

Australian Newspaper Profiles People Living with FTD

The Sydney Morning Herald chronicled the lives of Australians diagnosed with dementia, including several persons living with…

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Mother-Daughter Pair Discuss Genetic FTD with BBC

A recent article in BBC News profiled a mother living with FTD and her daughter who is…

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Persons with Dementia Share Stories of Their Pre-Diagnosis Symptoms

Several persons diagnosed with early-onset dementia recount their stories of first noticing their symptoms in a recently…

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Stories of FTD Genetics Featured in “Brain & Life” Magazine

Brain & Life magazine recently told the stories of two people whose lives have been affected by FTD, and who participated in the March 5…

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AFTD Founding Board Member Talks about Creation of FTD Caregiver Resource Book

AFTD founding Board member Lisa Radin shared her journey of being an FTD caregiver during Massachusetts General Hospital’s “Community…

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AFTD Volunteer Living with PPA Interviewed on “Rodger That” Podcast

AFTD volunteer Jennifer Lee discussed how her life has changed since being diagnosed with primary progressive aphasia…

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“Atlantic” Magazine Highlights Person Diagnosed with FTD

An article published in The Atlantic details the lives of persons diagnosed with dementia amid the COVID-19 pandemic, including one man diagnosed with FTD, and how the…

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Persons with FTD Advisory Council Member Shares Story of Advocacy and Volunteerism

Katie Brandt (left), Amy Shives (center), and Sharon Denny   AFTD volunteer Amy Shives, MEd, discussed her experience of being diagnosed…

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UK Woman Shares Husband’s Journey with Young-Onset Dementia

Michelle Macadangdang mistook her husband’s sudden change in temperament to be a sign that their marriage was in…

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Marc and Gretchen Toles

Giving a Hand to Our Helping Hands! AFTD Volunteer Marc Toles

A former caregiver to his wife, Marc Toles (MI) wanted to give meaning to what he and…

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