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Personal Stories
Dance in the Rain, by Philip Bimstein
Philip Bimstein, a musician and an associate instructor at the University of Utah, wrote, composed and performed “Dance in the Rain” as part of an interdisciplinary seminar class on dementia that was offered to undergraduate students at the university. The…
That’s Me, by Sydney Grau
Developed by college students at Penn State, the Kith & Kin project showcases the stories of eight families. That’s Me is one of the eight stories, written and produced by student Sydney Grau, that captures the story of Nancy Palfey,…
Sensory Overload, by Maxanne McCormick
Artist Maxanne McCormick, who lives with FTD, wrote that her painting Sensory Overload shows how she feels, “with too much stimulation from noise, crowds, activity, etc.”
In Our Dreams, by Helen Keough Sears
In this essay Helen compares her experiences with her husband’s FTD to a car being driven off course. Helen’s peace and comfort to withstand this bumpy ride comes from the God of Love who guides them and has not forsaken…
My Father Loves Birds, by Jessica Dutton
Jessica Dutton crafts a beautiful story about her father affected with FTD and his love of birds. Click here to read her story.
A Message to the Courageous! Caring for a Dying Loved One, by Gary Radin
Gary Radin lost his father in 1999 to FTD. His story tells how his family made adjustments to their new reality of living with FTD, but also how they kept their routines and included Gary’s father in family activities. Click…
Fighting Grandpa’s Dementia, by Daniel Miller
Eleventh grader Daniel Miller recounts the time spent with his grandfather and how their interaction changed as his grandfather’s dementia progressed. Click here for the full story.
Something about Mary, by Cheryl Fischer
Cheryl describes her mother, Mary, as vibrant, full of life and an inspiration for how to enjoy life. In this essay however, she presents some of the challenges their family has faced providing care for Mary as she battled FTD…
A Song for Mom, by LJ Miller
LJ began to wonder why she and her mom were growing apart. Always a phone call away, and a patient listener, mom seemed distant, uninterested, and negative. Not a kid anymore, LJ thought maybe she was too dependent, stopped calling…
I’ll Take It, by Dolly Barr
Robert E. Barr had a Masters Degree and Honorary Doctorate of Christian Service. He worked as a minister and hospital chaplain in Oklahoma City, Oklahoma for over 45 years, and had a beautiful singing voice that brought joy to many….