What's New
Personal Stories
Daughter Surprises Her Mother, Who Has FTD, With Trip to Ireland in Viral Video
A video depicting a daughter taking her mother on her dream trip to Ireland following her FTD diagnosis has gone viral on social media. Stephanie Martin, 32, shared a 17-second video montage of her mother’s emotional reaction of traveling across…
Singaporean TV Host and Her Brother Discuss Their Mother’s FTD Journey and Family Caregiving
Siblings living in Singapore opened up about their mother’s FTD diagnosis and feelings of “caregiver’s guilt” in a recent article for Singaporean news outlet AsiaOne. Munah Bagharib — a known comedienne, TV host, and actress in Singapore — and her…
Australian Couple Share their FTD Story for World FTD Awareness Week 2021
Mark Ferguson and his wife Jill, who is living with primary progressive aphasia (PPA), shared their story of being impacted by FTD with their local FTD research clinic. The FRONTIER FTD Research Clinic, part of the University of Sydney’s Brain…
Spotlight On…Mary Beth Wighton, Activist and Author
Finding a renewed sense of purpose amid an FTD journey can be challenging, but for Mary Beth Wighton, living in the moment is how she’s been able to find her footing. “My great niece gave me a painting that had…
Siblings Discuss Their Lives Following Mother and Father’s Dementia Diagnoses
A local newspaper in South Carolina profiled three siblings whose father and mother were diagnosed with FTD and Lewy body dementia, respectively. In an Aug. 18 article published in SC Now, Scottie, Becky, and Bo Hill recalled their father’s life…
Spotlight On…Jennifer Lee, Persons with FTD Advisory Council
When Jennifer Lee was diagnosed with primary progressive aphasia, the irony of being impacted by a disease that affected her language capabilities didn’t escape her. “I’ve always worked at a school as an English teacher, tutoring kids after school. I…
Wife Shares Husband’s FTD Diagnosis Journey in News Segment
An Oklahoma news program featured a segment on August 5 spotlighting a husband and wife’s FTD journey. Becky Bowles discussed the difficulties involved in receiving an accurate diagnosis of FTD during a news segment on 2News Oklahoma, an NBC affiliate….
Couple Discusses Life Impacted by bvFTD in Recent Interview
Dan Keuning, who is living with behavioral variant FTD (bvFTD), and his wife Lisl Keuning, recently sat down for an hour-long conversation with the national home-care company Visiting Angels about living with bvFTD. Keuning, 50, spoke about first realizing that…
Spotlight On…Bob and Evelyn Moore
When Evelyn Moore was diagnosed with FTD in 2014 at age 60, her husband, Bob Moore, didn’t know that rekindling a dormant passion would lead to a new way to cope with her disease while honoring their love. “I’ve always…
Mom of Young Woman with FTD Writes About Need for Quality In-Home Care
A New Hampshire newspaper featured an editorial on June 5 emphasizing the importance of quality in-home caregiver services, especially for families impacted by young-onset dementia. Jamie Villers, a nurse supervisor from Concord, wrote an editorial in the Concord Monitor detailing…