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Personal Stories

Tarpley Family

Helping Others Find Hope for the FTD Journey

Robert “Bob” Tarpley, who is 55 years old and living with behavioral variant FTD, was working as…

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AFTD Ambassador Jerry Horn shared facts about FTD and his own personal experiences with it on Facebook Live

AFTD Ambassador Shares FTD Information, Experiences on Facebook Live 

AFTD Ambassador Jerry Horn recently took part in a Facebook Live event hosted by the E.A. Roberts…

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Karate Black Belt Shares His Experiences with Motor Neuron Disease

Karate Black Belt Shares His Experiences with Motor Neuron Disease 

A karate ace in the UK shared his experiences of wanting to help people and stay active…

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An article shares how dementia care is made more difficult for members of the LGBTQIA+ community by systemic problems

Finding Inclusive Dementia Care Remains a Challenge for LGBTQIA+ Community 

An article published by Xtra Magazine illustrated the difficulties that members of the LGBTQIA+ community experience when…

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A care partner recently shared how a cultural disconnect makes dementia care harder for people in the AAPI community

Care Partner Shares How Cultural Disconnect Makes Dementia Care Harder for AAPI Community 

A recent article in Northwest Asian Weekly highlights how a disconnection between care infrastructure and culture can…

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AFTD Ambassador Deb Scharper

AFTD Ambassador Highlights Difficulties in Getting an FTD Diagnosis 

AFTD Ambassador Deb Scharper shared the difficulties that she faced trying to get an accurate FTD diagnosis…

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Disproportionate Burden of Caregiving for Black Women

Dementia Advocate Highlights Disproportionate Burden of Caregiving for Black Women  

Dementia advocate and thought leader Aisha Adkins wrote recently on the disproportionate burden that Black women face…

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Couples Living with PPA Featured in Wisconsin Newspaper

Couples Living with PPA Featured in Wisconsin Newspaper

Two couples living with primary progressive aphasia (PPA) share their experiences of managing the disease and the…

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Activist Living with FTD Discusses Dementia Advocacy in Asia in “Being Patient” Interview

Emily Ong, who lives with FTD, discussed her efforts to combat the challenges of dementia advocacy in…

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National Minority Health Month Spotlight On…Abrar Tanveer, AFTD Volunteer

April is National Minority Health Month, a time to raise awareness about health disparities that continue to affect…

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