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Personal Stories
Spotlight On…Teresa Webb, Persons with FTD Advisory Council
Teresa Webb and her wife Denise With COVID-19 restrictions and limitations still impacting this year’s Pride celebrations across the globe, Teresa Webb has already begun planning how she will celebrate in 2022: by bridging the gap between the FTD…
Sparks of Silver, by Sarah Kneeland
Sparks of silver in her hair Cast glints of sunlight everywhere. Her gaze laid bare my soul to fall Into its depths; I went, in thrall. Tumbling forever in a moment’s time, With mingled fear and sweet sublime. She held…
AFTD Board Member Kristin Holloway Discusses FTD Research Fund in “San Francisco Business Times”
AFTD Board of Directors member Kristin Holloway and her husband, Lee Holloway, were featured in a May 28 article published in the San Francisco Business Times . Lee Holloway, one of three founders of the website security and performance company…
Husband with FTD, Mistaken for Having Midlife Crisis, Profiled in UK Newspaper
A UK-based newspaper highlighted persons impacted by FTD, including one man living with FTD who many believed was experiencing a midlife crisis instead of the effects of young-onset dementia. Paul Coward, 64, and his wife, Melanie Coward, were featured in…
Spotlight on… Amy Shives, AFTD’s Persons with FTD Advisory Council
Amy Shives had one mission for this year’s upcoming AFTD Education Conference: To ensure that the voices, lives, and perspectives of persons diagnosed with FTD were prominently featured. That mission came to fruition: Shives and the other members of the…
Spotlight on… Laura and Sarah Silver
The adage “a picture is worth a thousand words” holds more truth than cliché for mother-daughter duo Laura and Sarah Silver. Laura’s photography allows her to continue to communicate and connect with her daughter, even as her primary progressive aphasia…
Spotlight on… Steve Perlis, AFTD Persons with FTD Advisory Council
In 2018, Steve Perlis talked himself out of being a spokesperson for persons diagnosed with FTD, reluctant to be considered the “poster child” of the disease. Now, three years later, Perlis proudly serves as the newest member of AFTD’s Persons with FTD Advisory Council, amplifying his voice in service of others…
Spotlight on… Anne Fargusson, AFTD Persons with FTD Advisory Council
It’s been nearly two decades since Anne Fargusson started feeling the effects of FTD. Today, she is still grieving the loss of her identity and the person she once knew herself to be. “What I used to know, who I…
Australian Newspaper Profiles People Living with FTD
The Sydney Morning Herald chronicled the lives of Australians diagnosed with dementia, including several persons living with FTD in an article published April 25. One of the profile subjects, Natalie Ive, 49, was diagnosed with primary progressive aphasia (PPA) in…
Mother-Daughter Pair Discuss Genetic FTD with BBC
A recent article in BBC News profiled a mother living with FTD and her daughter who is living with a genetic mutation linked to the disease. The article, published April 25, tells the story of Jess Crawford and her mother,…