What's New
Personal Stories
Flooded with Sound, by Tim Ramsey
We first noticed Dad’s hearing loss when he was in his early sixties. He would ask us to repeat things we had said or would answer the questions he thought he had heard. Dad either did not notice a problem…
Poem, by Lori Ruhlman
One of the difficult aspects of FTD is that the loved one is still physically present. In Poem, Lori Ruhlman wrestles with the emotion of that reality.
Frontotemporal Dementia Sucks, by Robin Albright
A wife describes the heartbreak of learning of her husband’s diagnosis and the struggles of managing the aftermath. Click here to read her story. She also created a YouTube video about their journey.
Reflecting on Hope, by Robin Albright
While having a particularly bad day, Robin Albright chooses to see that there is hope. Click here to read a particularly hopeful piece.
Through the Eyes of a Caretaker
In this essay, a husband describes his path to accepting his wife’s diagnosis. Click here to read.
Caregiver, by Maureen Walsh
This poem describes one caregiver’s experience with the toll caregiving exacts.
Still Our Daddy, by Monica Yager
In this poem a daughter writes of the desire for people to view her father as the man she remembers, even as his illness progresses.
Aphasia, by Roz Young Kubek
The poem Aphasia was received March 09, 2015, from Sally Tipton, wife of Steve, who is now in a memory impaired unit. He was diagnosed with primary progressive aphasia (PPA) in October ’99. She writes: My 75 year old husband,…
Thoughts About Kit in Her New Home Forever More, by Robin Jones
About one month after making the decision to move his wife to a long-term care facility, Robin Jones penned Thoughts About Kit…. The poem captures the conflicting emotions he experienced the day of the move.
Dad Got Dementia When He Wasn’t Old, Neither Was I. by Christina Gebel
A young adult whose father had FTD shares her personal experience with his illness. In part, the article describes her journey through the dissonance of planning for her father’s passing and then funeral at a time when many peers were…