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Personal Stories
Couples Living with PPA Featured in Wisconsin Newspaper
Two couples living with primary progressive aphasia (PPA) share their experiences of managing the disease and the importance of supportive relationships in a recent article in the Wisconsin newspaper the Leader-Telegram. Couples Al and Karen Pezzi and CeCelia and Wayne…
Activist Living with FTD Discusses Dementia Advocacy in Asia in “Being Patient” Interview
Emily Ong, who lives with FTD, discussed her efforts to combat the challenges of dementia advocacy in Asia in an April 20 Being Patient “LiveTalk” interview. Ong, who lives in Singapore, spoke about receiving an FTD diagnosis at age 51…
National Minority Health Month Spotlight On…Abrar Tanveer, AFTD Volunteer
April is National Minority Health Month, a time to raise awareness about health disparities that continue to affect people from racial and ethnic minority groups, and to encourage action – both to reduce those disparities and to improve the health of…
National Minority Health Month Spotlight On…Aisha Adkins, FTD Advocate
April is National Minority Health Month, a time to raise awareness about health disparities that continue to affect people from racial and ethnic minority groups, and to encourage action – both to reduce those disparities and to improve the health of…
National Minority Health Month Spotlight On…Candace Williams, FTD Caregiver
April is National Minority Health Month, a time to raise awareness about health disparities that continue to affect people from racial and ethnic minority groups, and to encourage action – both to reduce those disparities and to improve the health…
Wisconsin Couple Impacted by FTD Share Their Love Story in Local Newspaper
Wisconsin couple Joe and Barb Spiegelhoff were featured in a Lake Geneva Regional News article, sharing how they maintain their love following Joe’s diagnosis of primary progressive aphasia (PPA) in 2016 at age 64. “We made a decision at that…
Babson College Basketball Team Raises FTD Awareness in Honor of Player’s Late Father, Who Had FTD
Babson College men’s basketball player Spencer Cline and his team raised funds in support of AFTD’s mission and dedicated their Feb. 12 game against Clark University to Cline’s father, who lived with FTD. “My dad was diagnosed with [FTD] when…
“Roanoke Times” Article Highlights Economic Burden of FTD
One Rhode Island family spoke about the escalating economic burdens they’ve faced while caring for their loved one with FTD in a Jan. 24 article featured in The Roanoke Times. Janet Coleman, 57, spoke to Roanoke Times reporter Dan Casey…
Former FTD Care Partner Discusses Love Amid an FTD Diagnosis in “Being Patient” Interview
Former FTD care partner Scott Rose opened up about how his late wife’s FTD diagnosis changed their lives and how the couple managed to keep their “love and relationship strong” amid their FTD journey in a recent interview with Being…
Former FTD Caregiver Portrays Life with Dementia in Debut Short Film “Front Porches”
Filmmaker and former FTD caregiver Katie Prentiss documented the early stages of dementia in her award-winning short film Front Porches, inspired by her own experience of caring for her mother who lived with FTD. “It was very important to me…