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Partners in FTD Care
Partners in FTD Care #16: Residential Long-Term Care and FTD
Transitioning from home-based care to residential long-term care can present challenges for individuals living with FTD, for family members, and for the entire care team. This issue offers ideas for care teams to consider during transition planning, and shares practical…
Partners In FTD Care #15: Falls and Dysphagia in Progressive Supranuclear Palsy
This issue explores the case of Jackie Riddle, who faced progressive supranuclear palsy (PSP) and moved into an assisted living community with her husband (also her care partner) when his own health declined. The story follows the progression of Jackie’s…
Partners in FTD Care #14: Changes in Eating, and Managing Related Compulsive Behaviors
Changes in eating, combined with the ritualistic and repetitive behaviors and diminished social awareness that accompany FTD, contribute to care challenges as well as health and safety concerns. This issue offers lessons and tools that health professionals and care partners…
Partners in FTD Care #13: The Loss of Empathy and Connection in FTD
This issue demonstrates the importance of understanding how strongly the loss of empathy and connection in FTD impact the person’s family and delivery of care. Training and support for all members of the caregiving team can produce more positive interventions…
Partners in FTD Care #12: Sexual Behavior in FTD
When a person develops FTD, the disease can cause changes in sexual behavior; several types of changes are possible that are distressing to care partners and others. In this issue, two case studies illustrate issues of sexuality in FTD and…
Partners in FTD Care #11: Why Does He Act Like That? Aggressive Behaviors in FTD
This issue of Partners in FTD Care demonstrates how careful planning, behavioral interventions and other care strategies can be used effectively to provide care for people with FTD who exhibit aggressive behavior. Issue #11: Spring 2014: Why Does He Act…
Partners in FTD Care #10: Incontinence Management in FTD
Incontinence for persons with FTD is quite different from incontinence in an older dementia population. Care partners and healthcare professionals must consider particular cognitive and behavioral impairments in FTD, and address as many of the potential causes of incontinence as…
Partners in FTD Care #9: When the Meaning Is Lost — Semantic Variant PPA
Individuals with semantic variant primary progressive aphasia (svPPA) lose the meaning of words, develop difficulty recognizing faces and have trouble reading the emotions of others. In addition, disinhibited, rigid and compulsive behaviors develop over time. This issue introduces the special…
Partners in FTD Care #8: FTD Symptom or Pain — How Can You Tell?
The unusual behavior of someone with FTD is not always what it seems. Because people with FTD are often unable to express their needs verbally or accurately, treatable medical conditions and pain are easily missed. This issue illustrates how important…
Partners in FTD Care #7: In FTD, Roaming Is Not Wandering
Because of its early age of onset, people with FTD are often still physically active; their cognitive and behavioral symptoms therefore pose unique care challenges. This issue illustrates how “roaming” in FTD is different from wandering, and what to do…