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Partners in FTD Care
Partners in FTD Care #24: An Evolving Understanding of ALS with Frontotemporal Degeneration
This AFTD publication focuses on ALS with FTD, an especially complicated and challenging form of FTD. It tells the story of Cathy R., a woman in her 60s, who increasingly shows symptoms of both conditions; her husband Michael, however, is…
Partners in FTD Care #23: Understanding and Managing Apathy
This AFTD resource outlines various strategies for coping with apathy in FTD, including verbal cuing, tailoring activities to past interests, and planning structured activities. The issue also presents two views of apathy: one from a person diagnosed, and another from…
Partners in FTD Care #22: Challenges in Diagnosing FTD
This issue of Partners in FTD Care explains why FTD is so unusually difficult to diagnose. It describes the changes in behavior, language and movement that characterize FTD, and details how physicians, neurologists and other healthcare professionals can work with…
Partners in FTD Care #21: Family Participation in FTD Research
While participating in FTD research is immensely valuable, it also presents unique obstacles to families as they travel to research facilities and academic centers, and can require specially focused support. This issue of Partners in FTD Care shows how healthcare…
Partners in FTD Care #20: Comfort Care and Hospice in Advanced FTD
Because FTD often strikes at a relatively young age, many people are diagnosed before they have adequately planned their end-of-life care needs. This issue of Partners in FTD Care explains how persons diagnosed and their care partners can collaborate with…
Partners in FTD Care #19: The Importance of Individualized Activities in FTD Care
This issue explains how care partners can work with to develop individualized plan based on their loved ones’ own unique behavioral patterns, needs and interests. It outlines ways that family members can “think like an occupational therapist” to help manage…
Partners in FTD Care #18: FTD When There are Kids in the Home
Because 60% of persons diagnosed with FTD are between the ages of 45-64, the chances of young children still living in the home are high. This issue outlines strategies and resources that family members, residential staff and facility care staff…
Partners in FTD Care #17: Maximizing Communication Success in Primary Progressive Aphasia
This issue explores the case of Ben M. as he progresses through the stages of nonfluent/agrammatic PPA. It describes changes in his communication over time, and the efforts of his care partners and care team to rebuild lost function, supplement…
Partners in FTD Care #16: Residential Long-Term Care and FTD
Transitioning from home-based care to residential long-term care can present challenges for individuals living with FTD, for family members, and for the entire care team. This issue offers ideas for care teams to consider during transition planning, and shares practical…
Partners In FTD Care #15: Falls and Dysphagia in Progressive Supranuclear Palsy
This issue explores the case of Jackie Riddle, who faced progressive supranuclear palsy (PSP) and moved into an assisted living community with her husband (also her care partner) when his own health declined. The story follows the progression of Jackie’s…