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AFTD Unveils 2019-2022 Strategic Plan
In December 2018, AFTD’s Board of Directors voted to adopt a new Strategic Plan for our work through June 30, 2022. The plan – now publicly available – presents our vision to advance a world with compassionate care, effective support,…
AFTD Convenes Industry Leaders, Researchers in Miami for TDP-43 Workshop
In February, AFTD hosted a workshop on the development of TDP-43 biomarkers for FTD and ALS, bringing together researchers, scientists and key opinion leaders from industry and academia to consider the possibility for improved diagnostic tools in dementia. The meeting…
2019 AFTD Education Conference: May 3, 2019
The 2019 AFTD Education Conference will be held today in Los Angeles. Join us for a day of learning, sharing and making connections with others in the FTD community. Every year, AFTD brings together people living with FTD, their care…
Article on FTD Featured in U.S. News & World Report
U.S. News & World Report brought attention to FTD with a broad overview of the disease, including quotes from AFTD CEO Susan L-J Dickinson, published on April 18. In the article, Dickinson is quoted speaking about FTD’s symptoms and how…
AFTD Volunteer Featured in Recent Episode of The Alzheimer’s Podcast
AFTD volunteer Deborah Dolan was recently interviewed by the Dementia Sherpa, Christy Turner, on The Alzheimer’s Podcast. Throughout the episode, Christy and Deborah endeavor to raise awareness of frontotemporal degeneration, while bringing it out of the shadow of Alzheimer’s disease….
PPA Study Identifies Brain Region That Only Processes Speech
A study of individuals with primary progressive aphasia (PPA) revealed a region of the brain that only processes speech – which, when it begins to degenerate, leaves persons diagnosed with PPA unable to comprehend spoken words but able to understand…
AFTD Stakeholders Highlight Need for More FTD Research at ADRD Summit
AFTD staff and Board members, along with representatives from the FTD Disorders Registry, attended the Alzheimer’s Disease-Related Dementias Summit, held March 14 and 15 in Bethesda, Maryland. The meeting set the agenda for government-funded research in Alzheimer’s-disease related dementias (ADRD),…
AFTD Seeks New Grassroots Events Coordinator
AFTD seeks to hire a well-organized and dynamic individual to expand and lead a growing national network of grassroots events. Reporting to Special Events Manager Bridget Graham, the Grassroots Events (GRE) Coordinator will engage an emergent and passionate rare disease…
AFTD Convenes Workshop on TDP-43 Biomarkers
AFTD is convening experts from academia and industry in Miami on February 27 for a day-long workshop on TDP-43 biomarkers for FTD and ALS. Abnormal accumulations of TDP-43, a type of protein, has been linked to both conditions. Researchers are…
AFTD Announces Search for Education Program Manager
AFTD is now hiring an Education Program Manager. This vital addition to our staff will develop and implement FTD education initiatives for healthcare professionals – a crucial component of reaching and better serving all who are affected by FTD. In…