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FTD Caregiver Honored on Float in Annual Rose Parade
An FTD caregiver was among those honored on a float celebrating family caregivers during the 2020 Rose Parade on New Year’s Day. Aisha Adkins, whose mother Rose is living with FTD, was one of the eight caregivers celebrated on the…
Alzheimer’s and Dementia Journal Focuses on FTD
The medical journal Alzheimer’s and Dementia includes a special topic section dedicated entirely to FTD research articles in its January 2020 issue, published online January 8. The collection of articles describes the work of two natural history studies of FTD,…
2020 AFTD Education Conference: Fri., April 17
Register today! The 2020 AFTD Education Conference will be held on Friday, April 17 in Baltimore. Join us for a day of learning, sharing and making connections with others in the FTD community. Every year, AFTD brings together people living…
Singer Linda Ronstadt Shares How PSP Ended Her Career
In an interview with CNN’s Anderson Cooper, singer Linda Ronstadt discusses how progressive supranuclear palsy (PSP) has forced her to retire and how she has come to accept her diagnosis. Ronstadt shares how the disorder, which was initially diagnosed as…
FTD Caregiver Featured on Kaiser Health News Panel
Kaiser Health News includes the experience of an FTD caregiver in a recent panel discussion about the challenges family members face as caregivers and the ways they have learned to cope. The panel is led by KHN “Navigating Aging” columnist…
Pioneering Meteorologist June Bacon-Bercey Dies
According to a recent announcement by her family, Dr. June Bacon-Bercey, a trailblazing meteorologist, died in July 2019. She had FTD. The first African-American woman to earn a degree in meteorology, Dr. Bacon-Bercey was a pioneer in the field. She…
Applying Palliative Care Approaches
Partners in FTD Care, Winter 2020 Download the full issue (pdf) Palliative care has its roots in hospice care, which emerged in the 1960s and largely focused on the needs of cancer patients.1 In 1990, the World Health Organization recognized…
What to Do About Palliative Care for FTD
Partners in FTD Care, Winter 2020 Download the full issue (pdf) Palliative care is specialized medical care for people facing serious illnesses, and can be particularly valuable for people with FTD and their families. Its goals are the assessment, management,…
Best Practices for Palliative Care
Partners in FTD Care, Winter 2020 Download the full issue (pdf) The University of Colorado’s Neurology Supportive and Palliative Care Clinic is another innovative model of palliative care for individuals living with incurable neurological diseases, like FTD and PPA, and…
A Care Partner’s Perspective: FTD Care Takes a Village
Partners in FTD Care, Winter 2020 Download the full issue (pdf) By Sharon Hall, FTD Care Partner “You have frontotemporal degeneration, or FTD. It is aprogressive disease and there are currently no treatments. Get your legal affairs in order.” Hearing…