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COVID-19: Navigating Risk for People with FTD and their Families
Dear Friends, As our understanding of COVID-19 evolves, I wanted to write you to share expert information and guidance, drawing from members of AFTD’s Medical Advisory Council, and from leading scientists and researchers with COVID-19 expertise. As you may have…
Play Highlights Possible PPA Link Between “Bolero” Composer and Painter
UnRavelled, a new play written by Jake Broder, tells the uniquely connected story of two artists, French composer Maurice Ravel and Canadian painter Anne Adams, who may have created their most famous works while living with primary progressive aphasia (PPA)….
Daughter Shares Story of Love for Her “Magical” Mother on “Remember Me”
In this week’s special installment of the Remember Me podcast in partnership with the 10th anniversary of AFTD’s With Love campaign, Kimberly Sullivan Chu shared her story of love about the “sunshine” of her life, her late mother, Linda Sullivan….
AFTD Volunteer Shares Story of Living with Primary Progressive Aphasia
Sheryl Whitman, who was diagnosed with primary progressive aphasia (PPA) in 2013, recently talked about living with the disease with dementia-care education specialist Teepa Snow in an installment of Snow’s “Courageous Conversations” series. During the 30-minute discussion, Whitman, 57, shared…
IBM Study Uses Writing Tests to Predict Onset of Neurological Diseases
Researchers at IBM are using writing tests to analyze language and speech patterns in order to predict Alzheimer’s diagnoses, the New York Times reported in an article published February 1. Using an artificial intelligence (A.I.) program, IBM researchers conducted a…
Study Examines Metaphor Usage in Narratives of Early FTD Care Partners
“Metaphor usage” can provide insight on the significant and complex experiences of the care partners of persons diagnosed with young-onset FTD, according to a recent study. In the study, published in the Journal of Multidisciplinary Healthcare, researchers conducted qualitative interviews…
Persons with Dementia Are Twice as Likely to Get COVID-19, Study Shows
Persons diagnosed with dementia have been found to be in greater risk of being infected by the coronavirus, according to a new study led by researchers at Case Western Reserve University. The study, published in Alzheimer’s and Dementia, examined adults’…
Son Talks of Finding Moments of Joy Despite Father’s FTD on “Remember Me”
On this week’s special episode of the Remember Me podcast in collaboration with the 10th anniversary of AFTD’s With Love campaign, John Kammerer Jr. shared his story of love in honor of his father, John Kammerer Sr. In the episode…
Symptoms of Persons with FTD Worsening During COVID-19, Survey Shows
The decline in behavioral symptoms and social cognition during the COVID-19 pandemic has been more accelerated in persons living in early FTD compared to those with mild Alzheimer’s symptoms, a recent survey shows. Published in the journal Alzheimer’s and Dementia:…
“Remember Me” Podcast Shares Story of Sisterly Love Amid FTD
In the latest special episode of the Remember Me podcast — in collaboration with the 10th anniversary of AFTD’s With Love campaign — co-host Maria Kent Beers’ aunt, Sophia Werning, told her story of love in honor of her late…