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Oregon Woman Shares How COVID Isolation Is Impacting Husband’s Dementia
When John Knight was diagnosed with young-onset dementia, he and his wife Carol vowed to do everything in their power to fight its progression. But since the COVID-19 pandemic has forced the two into isolation, Carol has seen a decline…
New Research Could Help Provide Insight into Protein Implicated in FTD, ALS
The toxic buildup of a protein linked to FTD and ALS is the focus of new National Institutes of Health (NIH) funded research that could help aid the development of future treatments. Awarded to a team of researchers at Lehigh…
University of Buffalo Study Highlights Importance of Sleep for Dementia Caregivers
Lack of a good night’s sleep can have significant impacts on dementia caregivers, as well as on the quality of care they provide to loved ones, according to the findings of a University of Buffalo study. The study, which surveyed…
A Message to Our Community…
AFTD Statement on Diversity, Equity and Inclusion in Our Work AFTD’s staff and Board stand in solidarity with Black families. We condemn racism, hatred, violence, and unfair treatment in all forms. The horrific killings of George Floyd, Ahmaud Arbery, Breonna…
People with Dementia Find Companionship in Robotic Cats During COVID Isolation
As COVID-19 continues to pose unique challenges for those living with FTD and other types of dementia, some are turning to robotic, but otherwise lifelike companions to help cope with increased isolation. The Sun Sentinel shares how a Florida Atlantic…
Canadian FTD Advocate Speaks to Finding Hope During COVID-19
A former emergency room nurse who is living with FTD speaks to the challenges of COVID-19 in an article that shares how to continue to foster a sense of connection and hope during the pandemic. A dementia advocate who is…
New Research Could Offer Clues into Rare Neuron Linked to bvFTD
New research into rare, spindle-shaped neurons found deep within the brain could have implications for future studies of FTD and other neurodegenerative diseases. In a study made possible by a donation of brain tissue typically inaccessible to neuroscientists, researchers at…
FTD Caregiver and Advocate Shares What She Has Learned
In an interview that highlights the unique challenges faced by millennial caregivers, Aisha Adkins shares what she has learned in her journey of caring for her mother, who is living with FTD. Adkins, who is 35, decided to leave her…
Champion Race Car Driver Sir Jackie Stewart Shares Wife’s FTD Journey
In an interview with the Daily Record, the three-time Formula One champion Sir Jackie Stewart speaks to his wife’s journey with FTD and shares the challenges they have faced due to the COVID-19 pandemic. His wife, Helen, was diagnosed with…
UK Woman Shares Road to Accepting FTD Diagnosis
After two years of searching for answers to explain why she didn’t feel ‘quite right,’ Tracey Lane was diagnosed with FTD in her early 50s, a time she had once thought would be full of excitement as she and her…