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Amid COVID, Philadelphia Chef Turns to Father, Who Has FTD
When Philadelphia chef Rich Landau was forced to close his restaurants amidst the COVID-19 outbreak, he turned to his ailing father, who has corticobasal syndrome, to help boost his spirits. The Inquirer shares how Landau, who had to halt both…
English Woman Writes about Personal Experience with FTD
In a personal account that speaks to the ways FTD steals the people we love, the wife of a man living with a form of the disease shares how she feels like a “widow with a husband” as his condition…
Primary Progressive Aphasia and COVID-19
The facts about COVID-19 are frightening, and also very complicated. Their full implications can be difficult to understand for many of us. This holds true to a greater extent for people living with FTD, and even more so for people…
AFTD Staff Featured in FTD Care Webinar
In a recent webinar hosted by Home Instead Senior Care, AFTD Program Manager Matthew Sharp and Education Program Manager Deena Chisholm discuss FTD and caring for persons with the disease, as well as resources and services offered by AFTD. Hosted…
Large Study Explores How Genetics, Family History Relate to FTD Onset
Researchers recently combined data from multiple studies across the globe to explore how genetics and family history relate to age of onset and disease duration in FTD. The study pulled data from multiple observational studies in the U.S., Europe, Canada…
“Zoey’s Extraordinary Playlist” Co-Stars Talk about Caregiving in FTD
In an interview with the Hollywood Reporter, Zoey’s Extraordinary Playlist stars Peter Gallagher and Mary Steenburgen share how the show, in which Gallagher’s character has progressive supranuclear palsy (PSP), finds joy in the complexities of caregiving. The new NBC series…
Scientific American Highlights Evolving Research into Tau Protein
In a recent online feature, Scientific American highlights how the protein tau has taken a leading role in research combating FTD and other neurodegenerative diseases. While the abnormal accumulation of two proteins in the brain – beta-amyloid and tau –…
A Message from Dr. Murray Grossman about COVID-19
Dear Friends, COVID-19 is upon us. This is from the same family as one of the viruses that causes the common cold, so it spreads very easily; but the disease caused by COVID-19 can be much worse. While 80% of…
Update on AFTD Events and COVID-19
As we announced last week, AFTD has made the difficult decision to cancel our 2020 Education Conference and all associated events, which had been scheduled for April 16-17, 2020. We are exploring virtual options and will keep you updated moving…
Writer Lizzie Skurnick Talks About FTD, Caregiving on “Today Show”
The Today Show recently featured a woman whose mother has FTD in a special Women’s History Month conversation about caregiver self-care. Writer Lizzie Skurnick joined journalist Maria Shriver to discuss the toll caregiving can have on mental health, sharing how…