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UCSF Researchers Identify Brain’s Immune System as a Driving Force Behind FTD
For years, researchers have been trying to solve the puzzle of just how FTD starts to break down and damage brain cells. Now, thanks to new research out of UC San Francisco (UCSF), the answer to this long-standing question is…
Very Rev. Tracey Lind to Open Photo Exhibit, Donate Portion of Sales to Support AFTD
The work of Very Rev. Tracey Lind will be on display at Foothill Galleries, located in Cleveland Heights, OH, in a solo photography exhibit opening September 15, titled “Eroded Beauty: A Retrospective Photography Exhibit.” Rev. Lind was diagnosed with primary…
Wisconsin Woman Takes to TikTok to Share Mom’s FTD Journey
For Nicole Petrie, who has been sharing her mom’s journey with FTD on the popular social media app TikTok, music has been instrumental in helping with moments of anxiety. In a video that recently went viral, Petrie shows how quickly…
UK Resident Shares Challenges, Fears of FTD Journey
For 28-year-old Jess Crawford, her mother’s recent FTD diagnosis has led to challenges and fears, leaving her to question if she too could develop the disease one day. In an article sharing her journey, Crawford describes how she found answers…
Depression Worsens Over Time for Dementia Caregivers, Study Suggests
Caring for a partner or spouse with a new dementia diagnosis is associated with worsening, and long-lasting, depressive symptoms, according to a new study that underscores the toll caregiving can have on families facing an FTD diagnosis. The study, conducted…
New Research Suggests Autoimmune Diseases in FTD/ALS Linked to C9orf72 Mutation
The findings of a new study focused on the C9orf72 mutation could help to explain why some people who develop FTD and/or ALS are seemingly more susceptible to autoimmune disorders. Recognized as the most common genetic cause of both hereditary…
Next Avenue Emphasizes Financial Impact of Dementia Care Amidst COVID-19
In a recent article, Next Avenue highlights the impact the COVID-19 pandemic has had on those caring for a loved one with dementia, emphasizing the increased need for care as home and adult day care programs have been halted since…
Young Caregiver Speaks to Finishing College While Caring for Loved One with Dementia
For recent college graduate Lumiere Rostick, the decision to move in with their grandparents to help care for their grandfather, who has slow-advancing dementia, was a given. The 22-year-old recently spoke with Next Avenue about their decision to complete their…
Studies Co-Authored by AFTD MAC Member Reveal 3D Tau Structure Unique to FTD
In a comparison of protein filaments extracted from brain tissue donated by persons with FTD and other neurological disorders, scientists have revealed unique 3D structures of tau that vary by disease type. The research, which suggests each brain disease is…
FTD Research and Clinical Trials during the COVID-19 Pandemic
The past few years have been what we hope is the start of a groundbreaking time for discovery in clinical trials aiming to treat and prevent frontotemporal dementia (FTD). Large FTD-focused international collaborations that span North America, Europe and beyond…