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AFTD Volunteer Featured in Recent Episode of The Alzheimer’s Podcast
AFTD volunteer Deborah Dolan was recently interviewed by the Dementia Sherpa, Christy Turner, on The Alzheimer’s Podcast. Throughout the episode, Christy and Deborah endeavor to raise awareness of frontotemporal degeneration, while bringing it out of the shadow of Alzheimer’s disease….
2019 AFTD Education Conference: May 3, 2019
Register today! The 2019 AFTD Education Conference will be held on May 3, 2019 in Los Angeles. Join us for a day of learning, sharing and making connections with others in the FTD community. Every year, AFTD brings together people…
PPA Study Identifies Brain Region That Only Processes Speech
A study of individuals with primary progressive aphasia (PPA) revealed a region of the brain that only processes speech – which, when it begins to degenerate, leaves persons diagnosed with PPA unable to comprehend spoken words but able to understand…
AFTD Stakeholders Highlight Need for More FTD Research at ADRD Summit
AFTD staff and Board members, along with representatives from the FTD Disorders Registry, attended the Alzheimer’s Disease-Related Dementias Summit, held March 14 and 15 in Bethesda, Maryland. The meeting set the agenda for government-funded research in Alzheimer’s-disease related dementias (ADRD),…
AFTD Seeks New Grassroots Events Coordinator
AFTD seeks to hire a well-organized and dynamic individual to expand and lead a growing national network of grassroots events. Reporting to Special Events Manager Bridget Graham, the Grassroots Events (GRE) Coordinator will engage an emergent and passionate rare disease…
AFTD Convenes Workshop on TDP-43 Biomarkers
AFTD is convening experts from academia and industry in Miami on February 27 for a day-long workshop on TDP-43 biomarkers for FTD and ALS. Abnormal accumulations of TDP-43, a type of protein, has been linked to both conditions. Researchers are…
AFTD Announces Search for Education Program Manager
AFTD is now hiring an Education Program Manager. This vital addition to our staff will develop and implement FTD education initiatives for healthcare professionals – a crucial component of reaching and better serving all who are affected by FTD. In…
AFTD Community Mourns Passing of VJ Anastasia
Valerie Jeanne “VJ” Anastasia, who was featured in AFTD’s short awareness film VJ & Chuck, died peacefully on Feb. 13, 2019, in Providence, Rhode Island. She was 62 years old. VJ & Chuck, produced by Joseph Becker and ThinkFilm Inc.,…
Psychiatric Admissions in Anosognosia
Partners in FTD Care Winter 2019 “There is nothing wrong with me.” This is a common response by persons with FTD and anosognosia symptoms after being presented with the possibility of an evaluation or care intervention. They can further become…
Behavioral Anosognosia Complicates Diagnosis, Care and Family Relationships
Partners in FTD Care Winter 2019 People with FTD will vary in their capacity for self-awareness or insight. Some people may experience cognitive unawareness reflected in difficulty with memory, language, spatial and temporal orientation, calculation, abstract reasoning, and putting abstract…