What's New
News
Apathy Highlighted as FTD Symptom in U.S. News & World Report Article
U.S. News & World Report published an article on September 7 highlighting apathy as a symptom of and warning sign for FTD and other forms of dementia, often developing months or years before a diagnosis is made. The article highlights…
AFTD Regional Coordinator Volunteer Speaks at NAPA Meeting
On July 30, Sarah Sozansky Beil, an AFTD Regional Coordinator Volunteer for the Middle Atlantic region, delivered remarks before a meeting of the National Alzheimer’s Project Act (NAPA) Advisory Council. She spoke about her personal experiences with FTD — her…
Support AFTD’S Mission Year Round: Become a Monthly Donor Today
There are a lot of different ways to become involved in AFTD’s mission. For some, like Susan Miller Abbott, who volunteers as a Support Group Facilitator, choosing one way simply isn’t enough. “I also make a monthly donation to AFTD…
AFTD Announces New Awards Supporting Preclinical Drug Development and Biomarker Research
AFTD is pleased to announce awards in two grant programs that support FTD drug development: Accelerating Drug Discovery for Frontotemporal Degeneration, which funds preclinical research in partnership with the Alzheimer’s Drug Discovery Foundation, and the FTD Biomarkers Initiative. Thomas Kukar,…
Spotlight on… Sandra Grow, AFTD Board of Directors
Since her husband Karl was diagnosed with FTD, Sandra Grow has been driven by the need to better educate healthcare professionals about this disease, and to spread awareness of FTD throughout the general public. Over the last 10 years, she…
Department of Defense to Offer Funding for FTD Research
It likely comes as no surprise that the U.S. Department of Defense (DoD) funds medical research on combat-related conditions affecting servicemen and women. Less well known, however, is that the DoD also supports research more broadly through the Congressionally Directed…
Facebook Group Brings Help and Support
Upon learning of an FTD diagnosis, finding help and support from others who have faced the reality of the disease can be a challenge. One option that AFTD offers to facilitate these types of connections is our closed Facebook group,…
Giving a Hand to Our Helping Hands!
AFTD Volunteer: Susan Hirsch Susan Hirsch, MA, has been a highly engaged and active AFTD volunteer for many years. She first reached out to AFTD to help inform her role as Education and Development Specialist at HCR ManorCare. Since then,…
A Genetic Perspective on ALS and Frontotemporal Degeneration
Partners in FTD Care Spring 2018 Approximately 40% of affected individuals with FTD have a family history that includes at least one other relative diagnosed with a neurodegenerative disease. Their FTD is said to be familial, or hereditary. Hereditary FTD…
Common Presentations of ALS with FTD
Partners in FTD Care Spring 2018 ALS can present in myriad ways, with weakness in any segment of the body. Roughly 75% of patients present with limb weakness, 25% present with bulbar weakness (trouble speaking or swallowing), and a small…