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AFTD Senior Director of Scientific Initiatives Discusses FTD and ALS at 2022 Target ALS Annual Meeting
AFTD Senior Director of Scientific Initiatives Penny Dacks, PhD, discussed the overlapping disease pathology between ALS and FTD during an interview conducted at the 2022 Target ALS Annual Meeting, held May 3-5 in Cambridge, Massachusetts. During the conversation with Target…
ALS Awareness Month: Understanding an ALS with FTD Diagnosis
May is ALS Awareness Month, a time to raise awareness about amyotrophic lateral sclerosis (ALS), and during this month, AFTD is raising awareness around an ALS with FTD diagnosis. ALS and FTD share an overlapping disease pathology. The C9orf72 gene…
Model Discusses FTD Advocacy in “Sports Illustrated” Article
Model and FTD caregiver Nicole Petrie discussed why she’s spreading FTD awareness in a recent Sports Illustrated article. “I have dreamed of shooting for [Sports Illustrated] since I started modeling, but the timing has never seemed more perfect to submit…
FTD Insights Survey Data Presented at Latinos & Alzheimer’s Symposium
FTD data focused on the perspectives of Latino Americans living with and impacted by FTD was presented at the third Latinos & Alzheimer’s Symposium. FTD Disorders Registry Director Dianna Wheaton, MS, PhD, CHES, virtually presented a poster titled “Perceptions of…
Little-Known Protein May Play a Role in FTD Disease Pathology, Study Suggests
Researchers at the University of California, Los Angeles (UCLA) are gaining new insight into how the transmembrane protein 106B, or TMEM106B, plays a role in FTD disease pathology. In a study, published in Nature on March 28, UCLA scientists show…
“Simulation House” Lets Iowans Experience What It’s Like to Live with Dementia
The University of Northern Iowa (UNI) and the Northeast Iowa Area Agency on Aging have teamed up to create a dementia simulation house to educate people on what it’s like to live with dementia. Elaine Eshbaugh, a professor of gerontology…
Couples Living with PPA Featured in Wisconsin Newspaper
Two couples living with primary progressive aphasia (PPA) share their experiences of managing the disease and the importance of supportive relationships in a recent article in the Wisconsin newspaper the Leader-Telegram. Couples Al and Karen Pezzi and CeCelia and Wayne…
Movement Symptoms Associated with FTD Correlate with Greater Brainstem Atrophy, Study Finds
Persons diagnosed with FTD who exhibit extrapyramidal symptoms are likely to have significantly more brainstem atrophy and reduced metabolism in certain brain areas compared with persons diagnosed who don’t exhibit such symptoms, a recent study shows. Extrapyramidal symptoms refer to…
Activist Living with FTD Discusses Dementia Advocacy in Asia in “Being Patient” Interview
Emily Ong, who lives with FTD, discussed her efforts to combat the challenges of dementia advocacy in Asia in an April 20 Being Patient “LiveTalk” interview. Ong, who lives in Singapore, spoke about receiving an FTD diagnosis at age 51…
AFTD CEO Discusses FTD and ALS at 2022 Target ALS Annual Meeting
AFTD CEO Susan L-J Dickinson, MSGC, talked about FTD and its connection to ALS during an interview conducted at the 2022 Target ALS Annual Meeting, held May 3-5 in Cambridge, Massachusetts. During the conversation with Target ALS Director of Communications…