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New AFTD Awareness Ad to Appear in Oct. 20 New York Times
On October 20, the Sunday print edition of the New York Times will feature the latest in a series of AFTD awareness ads that depict the toll young-onset dementia takes on families. The full-page ad, seen above, speaks to AFTD’s…
Target ALS and AFTD Partner to Spur Drug and Biomarker Development for ALS and FTD
Today, AFTD and Target ALS have announced a groundbreaking partnership and call for proposals to identify treatments and biomarkers for FTD and ALS. These two devastating, progressive diseases are now understood to overlap in genetic causes and biological mechanisms. At…
A Care Partner’s Perspective: The Importance of Advocacy
Partners in FTD Care Fall 2019 In her late 40s, Donna, a research chemist/geologist began acting differently. Diagnosed with clinical depression in 2006, Donna was prescribed an antidepressant and told to attend counseling, but did not agree to do either….
Preparing to Talk to the Doctor
Partners in FTD Care Fall 2019 Effective pharmacological management of FTD depends on careful, ongoing observation of problematic behaviors and frank discussions between care partners and doctors. The participation of the person diagnosed (to the extent they are able) and…
An Overview of Medications Used in FTD
Partners in FTD Care Fall 2019 By Deborah Reed, MD, Guest Contributor Currently there are no FDA-approved medications specifically for the treatment of FTD. However, other medications can address FTD’s behavioral and psychiatric symptoms. Cognitive enhancing medications such as donepezil…
What to Do About… Medications for FTD Symptoms
Partners in FTD Care Fall 2019 While healthcare providers’ understanding of FTD is increasing, persons diagnosed and their families still face significant barriers to accessing effective treatment. The participation of the person diagnosed (to the extent they are able) and…
Only Part of the Answer: Medications and FTD
Partners in FTD Care, Fall 2019 Download the full issue (pdf) Frontotemporal degeneration is clinically and biologically complex. There are currently no medications to slow or stop its progression, nor are there any FDA-approved treatments. Medications approved for other conditions,…
“60 Minutes” Brings FTD Awareness to Millions of TV Viewers
On May 5, the venerable CBS news program 60 Minutes aired a segment on FTD, bringing newfound awareness to a television audience of millions. Entitled “The Cruelest Disease You’ve Never Heard Of,” the 14-minute segment introduced viewers to the symptoms…
More than 600 Take in 2019 AFTD Conference
Held on May 3 in Los Angeles, AFTD’s 2019 Annual Education Conference provided the latest developments in FTD science and offered practical information about the realities of living with the disease. More than 330 people were in attendance, including 38…
AFTD Announces Recipients of 2019-2021 Postdoctoral Fellowships
By supporting talented young investigators during the final stage of their scientific training, AFTD Postdoctoral Fellowships lay the groundwork for tomorrow’s discoveries in FTD research. This year marks the 10th anniversary of the Postdoctoral Fellowship program as well as the…