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The Association for Frontotemporal Degeneration
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The Association for Frontotemporal Degeneration

HelpLine: 1-866-507-7222 or [email protected]

  • What Is FTD?
      • Disease Overview
      • FTD Disorders
      • ALS and Frontotemporal Degeneration
      • Behavioral Variant FTD
      • Corticobasal Syndrome
      • Primary Progressive Aphasia (PPA)
      • Progressive Supranuclear Palsy
      • Research and Medical Centers
      • FAQs
      • Glossary of FTD Terms
    • Stethoscope and computer

      It’s the most common dementia for those under 60, yet it’s widely misunderstood and too often misdiagnosed. In this section you will learn the essential facts about FTD.

  • FTD Genetics
      • What Causes FTD?
      • FTD Genetics and You: Learning More
      • Genetic Counseling
      • About Genetic Testing
      • Genetic Testing: Understanding the Results
      • No-Cost Genetic Testing
      • Resources and References
    • The mature adult female therapist listens compassionately to the unrecognizable female client share her problems.

      In some cases, the changes that lead to FTD are caused by variants in a person’s genes. In this section, you’ll find out more about the causes of FTD, genetic counseling, and genetic testing options.

  • Find Help
      • COVID-19 and FTD
      • Newly Diagnosed
      • Managing FTD
      • Coordinating Care
      • Legal and Financial Planning
      • Find Support Near You…
      • Support for People with FTD
      • Support for Kids and Teens
      • Resources
    • Shot of a young sporty couple out for a workout

      FTD strikes earlier in life than other dementias, which can devastate family relationships, finances and even the health of caregivers. This section will help you manage the challenges of an FTD diagnosis.

  • Research & Clinical Trials
      • Clinical Trials
      • Ways to Participate
      • Featured Studies
      • FTD Disorders Registry
      • For Researchers
    • Close up of doctor writing on a medical chart.

      Research studies and clinical trials are gaining momentum. In this section, you will learn how families and caregivers can participate in efforts to improve treatments and unlock a cure.

  • Get Involved
      • In Your State
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      • Take Action and Volunteer
      • Advocacy
      • Calendar of Events
    • Shot of a group of people putting their hands together

      Bring help and support to the next family affected by FTD. In this section you will learn how you can volunteer your time and talents, raise much-needed funds, and provide your own generous donation.

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May 16, 2022
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The Association for Frontotemporal Degeneration
2700 Horizon Drive, Suite 120
King of Prussia, PA 19406

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Contact AFTD's HelpLine at 1-866-507-7222 or email [email protected].