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Penn FTD Center Scientist Receives AFTD’s First Pilot Grant for Nonpharmacological Research
AFTD has awarded Lauren Massimo, Ph.D., CRNP, the inaugural AFTD Pilot Grant for Nonpharmacological Therapies and Tools. Dr. Massimo, an assistant professor in the University of Pennsylvania School of Nursing and a member of the Penn Frontotemporal Degeneration Center, will…
Spotlight on…David Pfeifer, AFTD Board of Directors
After experiencing FTD firsthand as a care partner for his wife Cathy, David Pfeifer felt compelled to help others facing a similar situation. The Colorado-based architect and father of three joined AFTD’s Board of Directors in April 2018, intent on…
Study: More than 80% of Dementia Caregivers Are Family Members
Family members and other unpaid helpers comprise 83% of long-term care partners and caregivers for people with dementia in the U.S., according to a November 29 article published on The Conversation. The authors cited a study published in the medical…
“Days of Our Lives” Star Martha Madison Raises FTD Awareness at Dallas Marathon
A team of 20 taking part in the BMW Dallas Marathon (December 7-9) will run to raise awareness of young-onset dementia and support The Association for Frontotemporal Degeneration, the country’s leading nonprofit focused on FTD. Runners include Texas native and Days of Our Lives star Martha…
Helping Others in His Mother’s Memory
Nate Stevens became an AFTD volunteer this summer, after losing his mom to FTD. After showing symptoms for several years, his mom was finally diagnosed in late 2017, yet her doctors could provide her with little helpful information about the…
Webinar: What You Should Know About Primary Progressive Aphasia (PPA)
In the next AFTD Educational Webinar, Dr. Emily Rogalski from Northwestern University in Chicago will explore aspects of PPA that all persons and families living with FTD and their health providers should know. Her presentation will address PPA clinical syndromes…
Consider Supporting AFTD This #GivingTuesday…
November 27th marks the seventh annual Giving Tuesday, a day to recognize and support the important work done by philanthropic organizations across the United States. It’s clear that you have choices to make in considering nonprofits for support; know that…
U.K. Guardian Spotlights Brain Donation’s Role in Developing FTD Treatments
An article published in The Guardian on November 13 highlights the work of the Sydney Brain Bank in Australia, which studies donated brain tissue in the hopes of accelerating potential treatments for a variety of neurodegenerative conditions, including FTD. “Every…
Former FTD Caregiver Nancy Carlson Profiled in Minn. Star Tribune
November is National Family Caregivers Month, an opportunity to recognize the spouses, children, family members and friends who help loved ones living with disabilities and long-term illnesses to maintain their highest possible quality of life. But caregivers need to sustain…
Sandra Day O’Connor Announces Dementia Diagnosis
Sandra Day O’Connor, the first woman to serve on the U.S. Supreme Court, announced she has been diagnosed “with the beginning stages of dementia, probably Alzheimer’s disease” on October 23. In an open letter circulated by the Court’s public information…