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Help & Hope #39
Issue #39: June 2018 In this issue we feature an alternative care model for persons diagnosed with FTD, explain practical ways to personally advance FTD science, provide race updates and information for the 2018 season, share inspiring thoughts from Rev….
An Evolving Understanding of ALS with Frontotemporal Degeneration
Partners in FTD Care, Spring 2018 Download the full issue (pdf) Amyotrophic lateral sclerosis (ALS), also called “Lou Gehrig’s disease,” is caused by the death of motor neurons, nerve cells that control voluntary muscles. Doctors and researchers are increasingly recognizing…
AFTD Volunteer Profile: Dr. A. Brandt Henderson
For more than three years, AFTD volunteer Dr. A. Brandt Henderson has used his professional background as a public speaker to be a voice and an advocate on behalf of our community. He and his wife Marie have participated in…
AFTD-ADDF Research Awards Announced
AFTD’s partnership with the Alzheimer’s Drug Discovery Foundation (ADDF) advances the search for FTD treatments through the joint sponsorship of two grant programs. Accelerating Drug Discovery for FTD funds preclinical drug discovery research, and the Treat FTD Fund supports clinical…
2017 Pilot Grant Awards
AFTD is proud to announce our 2017 Pilot Grant awardees: Todd Cohen, PhD, Assistant Professor at the University of North Carolina – Chapel Hill; and Haakon Nygaard, MD, PhD, Assistant Professor at the University of British Columbia. Dr. Cohen (above)…
Advancing Research with FTSG
On March 8 and 9 AFTD hosted the eighth meeting of the FTD Treatment Study Group (FTSG) in Washington DC, convening more than 110 FTD researchers, funders and regulators for two days of presentations and discussion on ways to design…
AFTD Appreciates Our Volunteers!
In recognition of National Volunteer Week 2018 (April 15-21), AFTD honors our amazing volunteers, who devote their time to furthering our shared mission of bringing help and hope to families across the U.S. and throughout the world.
2018 Annual Education Conference Keynote Address: The Very Rev. Tracey Lind
Tracey Lind addresses attendees at AFTD’s 2018 Annual Education Conference in Chicago.
Sacramento City Council Member Dies of PPA
Bonnie Pannell, who served on Sacramento’s city council for 16 years, died on June 27 from the effects of primary progressive aphasia. Pannell, who was 68, stepped down from her office in 2014, saying that her PPA had compromised her…
Hinchey Family Announces that Former Congressman Maurice D. Hinchey Has Been Diagnosed with FTD
The family of former New York Congressman Maurice D. Hinchey has announced that he has the primary progressive aphasia variant of FTD. Hinchey’s PPA symptoms began as the occasional lost word, but within a relatively short time the disease further affected…