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Help & Hope #42
Issue #42: September 2018 In this issue we provide resources for long distance care partners, share information about a new tau research study, encourage your participation in our 2018 Food for Thought campaign and two upcoming AFTD-sponsored races, feature words…
Apathy Highlighted as FTD Symptom in U.S. News & World Report Article
U.S. News & World Report published an article on September 7 highlighting apathy as a symptom of and warning sign for FTD and other forms of dementia, often developing months or years before a diagnosis is made. The article highlights…
Webinar: What You Should Know about Behavioral Variant FTD (bvFTD)
Dr. Nupur Ghoshal from Washington University in St. Louis explores aspects of bvFTD that all health providers, persons living with FTD, and their families should know. Her presentation addresses clinical signs and symptoms and the latest in diagnosis and treatment…
Food for Thought 2018
Food for Thought is a grassroots fundraising and awareness campaign focusing on food and FTD education. Held the last week of September through the first week of October, FFT encompasses World FTD Awareness Week. During this time, people across the…
AFTD-ADDF Research Awards Announced
AFTD’s partnership with the Alzheimer’s Drug Discovery Foundation (ADDF) advances the search for FTD treatments through the joint sponsorship of two grant programs. Accelerating Drug Discovery for FTD funds preclinical drug discovery research, and the Treat FTD Fund supports clinical…
2017 Pilot Grant Awards
AFTD is proud to announce our 2017 Pilot Grant awardees: Todd Cohen, PhD, Assistant Professor at the University of North Carolina – Chapel Hill; and Haakon Nygaard, MD, PhD, Assistant Professor at the University of British Columbia. Dr. Cohen (above)…
Advancing Research with FTSG
On March 8 and 9 AFTD hosted the eighth meeting of the FTD Treatment Study Group (FTSG) in Washington DC, convening more than 110 FTD researchers, funders and regulators for two days of presentations and discussion on ways to design…
Sacramento City Council Member Dies of PPA
Bonnie Pannell, who served on Sacramento’s city council for 16 years, died on June 27 from the effects of primary progressive aphasia. Pannell, who was 68, stepped down from her office in 2014, saying that her PPA had compromised her…
Hinchey Family Announces that Former Congressman Maurice D. Hinchey Has Been Diagnosed with FTD
The family of former New York Congressman Maurice D. Hinchey has announced that he has the primary progressive aphasia variant of FTD. Hinchey’s PPA symptoms began as the occasional lost word, but within a relatively short time the disease further affected…
Radio Segment Explores FTD’s Effect on One Father-Daughter Relationship
FTD took the ability to speak clearly from Arpiar Saunders, better known as Arpy. Leading up to his death in late 2014, Arpy was left with the ability to say just a handful of phrases, which he repeated endlessly in phone calls…