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AFTD Staff, Board Represent Community Interests at ADRD Summit
AFTD staff, Board members, and representatives from the FTD Disorders Registry will attend the National Institutes of Health’s Alzheimer’s Disease-Related Dementias Summit, held March 14 and 15 in Bethesda, Maryland. The meeting will set the agenda for government-sponsored research in…
AFTD Seeks New Grassroots Events Coordinator
AFTD seeks to hire a well-organized and dynamic individual to expand and lead a growing national network of grassroots events. Reporting to Special Events Manager Bridget Graham, the Grassroots Events (GRE) Coordinator will engage an emergent and passionate rare disease…
Omaha, NE Meet & Greet
Join AFTD Volunteer Brian Fox for an informal gathering in Omaha, NE to meet others in your community whose lives have been affected by FTD. An RSVP by March 20th would be appreciated. To RSVP, or for any questions, please…
AFTD Convenes Workshop on TDP-43 Biomarkers
AFTD is convening experts from academia and industry in Miami on February 27 for a day-long workshop on TDP-43 biomarkers for FTD and ALS. Abnormal accumulations of TDP-43, a type of protein, has been linked to both conditions. Researchers are…
AFTD Announces Search for Education Program Manager
AFTD is now hiring an Education Program Manager. This vital addition to our staff will develop and implement FTD education initiatives for healthcare professionals – a crucial component of reaching and better serving all who are affected by FTD. In…
AFTD Community Mourns Passing of VJ Anastasia
Valerie Jeanne “VJ” Anastasia, who was featured in AFTD’s short awareness film VJ & Chuck, died peacefully on Feb. 13, 2019, in Providence, Rhode Island. She was 62 years old. VJ & Chuck, produced by Joseph Becker and ThinkFilm Inc.,…
Everything Is Just Fine: Anosognosia in Frontotemporal Degeneration
Partners in FTD Care, Winter 2019 Download the full issue (pdf) Caring for people with FTD presents challenges no matter what. Anosognosia can make it even more difficult. Anosognosia is the inability to recognize or perceive one’s illness and its…
Spread the Love with AFTD’s With Love Campaign 2019
Valentine’s Day is just around the corner – and with it comes the return of AFTD’s annual With Love campaign. For the past seven years, With Love has shown that the force of love is stronger than FTD, and has…
Hawaii Virtual Meet & Greet
Join AFTD Support Services Manager, Bridget Moran-McCabe, AFTD Southwest Regional Coordinator Volunteer, Kathy Urban and other islanders for the first virtual meet and greet in Hawaii. “E-meet” others whose lives have been affected by FTD in the state of Hawaii…
Helping Others, Helping Ourselves
For Chuck Anastasia, becoming a volunteer for AFTD was the natural next step after finding solace and encouragement in an AFTD online support group after his wife, VJ, received her FTD diagnosis. Several of the care partners he encountered in…