What's New
COVID-19 and FTD
“Atlantic” Magazine Highlights Person Diagnosed with FTD
An article published in The Atlantic details the lives of persons diagnosed with dementia amid the COVID-19 pandemic, including one man diagnosed with FTD, and how the pandemic is impacting their health and lives. The article, published March 24, tells Joe Licata’s story of his rapid decline in performing independent tasks, his difficulties with impulse…
Help & Hope #72
Issue #72: March 2021 In this issue you can register for AFTD’s 2021 Education Conference, get ideas for managing loneliness and isolation during the pandemic, learn how to host an independent event, get information about how to participate in FTD…
COVID-19: Navigating Risk for People with FTD and their Families
Dear Friends, As our understanding of COVID-19 evolves, I wanted to write you to share expert information and guidance, drawing from members of AFTD’s Medical Advisory Council, and from leading scientists and researchers with COVID-19 expertise. As you may have…
Help & Hope #71
Issue #71: February 2021 In this issue you can learn about the recent expansion of our Comstock Respite Grant in response to COVID-19, get updates about the 10th anniversary of our With Love campaign and find out how to get…
FTD Research and Clinical Trials during the COVID-19 Pandemic
The past few years have been what we hope is the start of a groundbreaking time for discovery in clinical trials aiming to treat and prevent frontotemporal dementia (FTD). Large FTD-focused international collaborations that span North America, Europe and beyond…
FTD Caregiving in a Pandemic
Dear Friends, I hope you and your loved ones are staying safe and healthy during this still rather uncertain and stressful time. In my daily work at the Mesulam Center for Cognitive Neurology and Alzheimer’s Disease at Northwestern University, I…
Defending Against Scams During COVID-19
As COVID-19 continues to impact the country, scammers are taking advantage of the situation by playing into the anxiety and uncertainty surrounding the pandemic. During this time, you may notice increased robocalls, emails and posts promoting COVID-19 awareness and prevention…
Additional Guidance for Communicating with a Loved One in a Facility During COVID-19
The COVID-19 pandemic is creating additional challenges for people with FTD in residential care, and for their families at home. Recently, Dr. Carmela Tartaglia of the University of Toronto published a letter on AFTD’s website highlighting ways families can navigate…
Navigating FTD Long-Term Care During the COVID-19 Pandemic
The decision to move a loved one into a long-term care (LTC) facility can be a difficult one. Safety and stability — for the individual with FTD and for family members — often factors into consideration. The COVID-19 pandemic has…
Persons Living with FTD Discuss Challenges of COVID-19
As COVID-19 continues to constrain families to their homes throughout much of the world, BBC News highlights the profound impact the pandemic is having on people living with FTD and other forms of dementia. The article shares the unique perspective…