What's New
COVID-19 and FTD
FTD Research and Clinical Trials during the COVID-19 Pandemic
The past few years have been what we hope is the start of a groundbreaking time for discovery in clinical trials aiming to treat and prevent frontotemporal dementia (FTD). Large FTD-focused international collaborations that span North America, Europe and beyond…
FTD Caregiving in a Pandemic
Dear Friends, I hope you and your loved ones are staying safe and healthy during this still rather uncertain and stressful time. In my daily work at the Mesulam Center for Cognitive Neurology and Alzheimer’s Disease at Northwestern University, I…
Defending Against Scams During COVID-19
As COVID-19 continues to impact the country, scammers are taking advantage of the situation by playing into the anxiety and uncertainty surrounding the pandemic. During this time, you may notice increased robocalls, emails and posts promoting COVID-19 awareness and prevention…
Additional Guidance for Communicating with a Loved One in a Facility During COVID-19
The COVID-19 pandemic is creating additional challenges for people with FTD in residential care, and for their families at home. Recently, Dr. Carmela Tartaglia of the University of Toronto published a letter on AFTD’s website highlighting ways families can navigate…
Navigating FTD Long-Term Care During the COVID-19 Pandemic
The decision to move a loved one into a long-term care (LTC) facility can be a difficult one. Safety and stability — for the individual with FTD and for family members — often factors into consideration. The COVID-19 pandemic has…
Persons Living with FTD Discuss Challenges of COVID-19
As COVID-19 continues to constrain families to their homes throughout much of the world, BBC News highlights the profound impact the pandemic is having on people living with FTD and other forms of dementia. The article shares the unique perspective…
Help & Hope #62
Issue #62: May 2020 In this issue you can explore COVID-19 resources for care partners and persons diagnosed, learn about our recently announced partnership with Target ALS, sign up for Charity Miles to help the AFTD-Team raise funds to advance…
What to Do If Hospitalization Is Necessary During the COVID Crisis
Although self-isolation and social distancing practices have been put in place to help control the spread of COVID-19, persons living with FTD may still face health emergencies that could require emergency care outside of the home. The current climate, however,…
Webinar: Building a Future Free of FTD – AFTD’s Mission in a Changing World
This webinar, the last in the AFTD Education Conference: Webinar Series, features Susan L-J Dickinson, MSGC, AFTD’s CEO, and David Pfeifer, who became our Board Chair in April 2020. David, the Denver-based President of Anderson Mason Dale Architects, shares personal…
FTD Care During the COVID-19 Pandemic: Challenges and Suggestions
As many of you reading this are likely all too familiar with by now, families affected by FTD face distinct challenges in relation to the COVID-19 pandemic. New York has had a very high prevalence of COVID infection. I’m writing…