What's New
COVID-19 and FTD
Additional Guidance for Communicating with a Loved One in a Facility During COVID-19
The COVID-19 pandemic is creating additional challenges for people with FTD in residential care, and for their families at home. Recently, Dr. Carmela Tartaglia of the University of Toronto published a letter on AFTD’s website highlighting ways families can navigate…
Navigating FTD Long-Term Care During the COVID-19 Pandemic
The decision to move a loved one into a long-term care (LTC) facility can be a difficult one. Safety and stability — for the individual with FTD and for family members — often factors into consideration. The COVID-19 pandemic has…
Persons Living with FTD Discuss Challenges of COVID-19
As COVID-19 continues to constrain families to their homes throughout much of the world, BBC News highlights the profound impact the pandemic is having on people living with FTD and other forms of dementia. The article shares the unique perspective…
Help & Hope #62
Issue #62: May 2020 In this issue you can explore COVID-19 resources for care partners and persons diagnosed, learn about our recently announced partnership with Target ALS, sign up for Charity Miles to help the AFTD-Team raise funds to advance…
What to Do If Hospitalization Is Necessary During the COVID Crisis
Although self-isolation and social distancing practices have been put in place to help control the spread of COVID-19, persons living with FTD may still face health emergencies that could require emergency care outside of the home. The current climate, however,…
Webinar: Building a Future Free of FTD – AFTD’s Mission in a Changing World
This webinar, the last in the AFTD Education Conference: Webinar Series, features Susan L-J Dickinson, MSGC, AFTD’s CEO, and David Pfeifer, who became our Board Chair in April 2020. David, the Denver-based President of Anderson Mason Dale Architects, shares personal…
FTD Care During the COVID-19 Pandemic: Challenges and Suggestions
As many of you reading this are likely all too familiar with by now, families affected by FTD face distinct challenges in relation to the COVID-19 pandemic. New York has had a very high prevalence of COVID infection. I’m writing…
Webinar: The Playlist of My Life – Building a Toolbox for FTD
Following the COVID-19 related cancellation of AFTD’s 2020 Education Conference, we are presenting a month-long 2020 Education Conference Webinar Series. In this webinar, the Very Rev. Tracey Lind, retired dean of Trinity Episcopal Cathedral in Cleveland, OH, explains the idea…
Helping from a Distance: Supporting Caregivers and People with FTD Who Are Self-Isolating
In situations where persons diagnosed with FTD and their primary care partners live together, the self-isolation necessitated by the COVID-19 pandemic has likely brought additional stress to an already challenging journey for all parties. Friends and close family members may…
Webinar: Ask the Expert – FTD and COVID-19
Following the COVID-19 related cancellation of AFTD’s 2020 Education Conference, we are presenting a month-long 2020 Education Conference Webinar Series. In this webinar, AFTD’s CEO Susan L-J Dickinson speaks with Bruce Miller, MD, Director of the UCSF Memory and Aging…