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$20 Million David Geffen Fund Gift Announced at AFTD Benefit
At AFTD’s 2017 Hope Rising Benefit in New York City on October 12, AFTD CEO Susan L-J Dickinson announced that the organization had received a major gift in honor of the late Si Newhouse: The David Geffen Foundation has now…
FTD’s Economic Burden Is Twice That of Alzheimer’s, Study Shows
The average annual costs associated with FTD is nearly $120,000, nearly twice the costs of Alzheimer’s, according to a study published on the website of the scientific journal Neurology on October 4. The study gathered survey data from more than…
Chicago Super Run Participants Walk and Run for FTD Awareness
When Chicago’s Frank Callea was diagnosed with the primary progressive aphasia form of FTD at age 54, the multi-decade Chicago Tribune technology executive vowed to make a difference, even as he stepped away from his professional life. This Saturday, he…
Hinchey Family Announces that Former Congressman Maurice D. Hinchey Has Been Diagnosed with FTD
The family of former New York Congressman Maurice D. Hinchey has announced that he has the primary progressive aphasia variant of FTD. Hinchey’s PPA symptoms began as the occasional lost word, but within a relatively short time the disease further affected…
Hundreds Impacted by Young-Onset Dementia to Gather in Baltimore for AFTD Conference
AFTD will hold their 2017 education conference in Baltimore, MD at the Sheraton Inner Harbor Hotel, on Friday, May 5. Each year, AFTD hosts an annual conference so that people affected by FTD can meet in person, connect and gain…
AFTD Awards $2 Million to Advance Biomarkers Research Targeting Young-Onset Dementia
Doctors often rely on biomarkers – objective, easily measured biological features that indicate underlying pathology— to support accurate diagnosis and treatment efforts. Blood pressure, for example, is a widely-used biomarker for cardiovascular disease. Today, no comparable measures exist for FTD. The…
The Lauder and Newhouse Foundations Announce New Initiative to Find Treatments for FTD
AFTD is excited to share that The Lauder Foundation and the Samuel I. Newhouse Foundation have each committed $5 million to create The Treat FTD Fund, which will accelerate clinical trials for FTD over the next decade. The fund, a…
Minneapolis-based Children’s Author, Nancy Carlson to Give Keynote at AFTD Conference
On May 10th, AFTD announced they would hold their 2016 education conference in Minneapolis, MN, at the DoubleTree by Hilton Hotel Minneapolis-Park Place, on Friday, May 13. It will run from 9:30 a.m. to 5:30 p.m., followed by a dinner reception….
Samuel I. Newhouse Foundation Awards Major Research Gift for FTD Biomarkers Initiative
On Thursday, October 1, before a hopeful crowd of more than 200 at One World Trade Center in New York City, the Samuel I. Newhouse Foundation, Inc. announced a $5.75 million gift to The Association for Frontotemporal Degeneration for a multi-year FTD Biomarkers Initiative. Read…
First-ever World FTD Awareness Week Launches at One World Trade Center
On October 1, AFTD, with President of Advance Publications, Inc. Donald Newhouse, convened supporters and community members to host an inaugural event at One World Trade Center. Together, we gathered to kick off U.S. participation in the first ever World FTD Awareness…