When Dementia Isn’t Alzheimer’s – FTD Awareness

Recently published on, writer and caregiver Sharon Hall explained that not all dementia is Alzheimer’s and challenges readers to join in the fight to increase FTD awareness. Read her powerful story here.

Alzheimer’s Tennessee FTD Caregiver Conference

Bridget Moran will be attending the Alzheimer’s Tennessee Caregiver Conference on Tuesday, July 19th, 2016, from 8 am – 3:30 pm. She will have a table set up with information on FTD and would love to meet you and discuss AFTD’s support networks and other resources available. Join her at the Fellowship Church: 8000 Middlebrook Pike, Knoxville, TN 37909.
For more information on how you can register for the conference, please visit Alzheimer’s Tennessee at:

Patient and Medical Professionals Education Day: Focus on PSP

Want to learn more about progressive supranuclear palsy (PSP?)

Join CurePSPThe University of Pennsylvania and Good Shepard Penn Partners for an interactive session designed to inform patients, care partners, families and medical professionals about this neurodegenerative disease. Attendees should come prepared with questions. CEU’s will be offered to Medical Professionals for $25 and there will be light refreshments provided.

This session will take place on Thursday, June 2nd at the Pennsylvania Hospital, Zubrow Auditorium, 800 Spruce Street, Philadelphia, PA 19107.

For more information please contact Jaclyn Zendrian, Director of Events at or at 800-457-4777. You can also register for this session here.

10th International Conference on Frontotemporal Dementias, Munich

10th International Conference on Frontotemporal Dementias – August 31-September 2, 2016

Hotel Holiday Inn Munich – City Centre, Munich Germany
Hochstrasse 3
81669 Munich, Germany

Held every two years, the International Conference on Frontotemporal Dementias (ICFTD) provides the primary venue for the international synthesis, exchange and dissemination of research evidence related to FTD. Experts from diverse backgrounds share recent discoveries, insights and opinions. This allows the generation of novel hypotheses, the formation of research collaborations, the development of new consensus targeting FTD, and the exploration of training opportunities. The ICFTD also allows for a sharing of knowledge translated across disciplines. It will include an educational workshop on PPA.

AFTD is pleased to be a Platinum Sponsor of the 10th ICFTD. For information about the 2016 program, please visit: Then click on this link to register for ICFTD.

For all with specific interest in Caregiver Support, a day-long Caregiver Conference will be offered in conjunction with the ICFTD, described immediately below:

Klinikum rechts der Isar of the Technical University Munich
Ismaninger Str. 22
81675 Munich, Lecture Hall A

The International FTD Caregiver Conference 2016 (held on September 1st), offered in conjunction with the ICFTD, provides a forum for discussion and an opportunity to promote International awareness for FTD. The Conference will highlight the urgent need for patient-oriented research and the development of patient care and support strategies. Conference speakers are being drawn from internationally-renowned FTD experts, and FTD patient and caregiver associations from Europe and the United States (including AFTD) will play an active role. A joint welcome reception for both the ICFTD and Caregiver Conference will be held on August 31st.

Reception Venue: Holiday Inn Munich – City Centre, in Munich, Germany.

Hochstraße 3, 81669 Munich, Germany

IFTD Caregiver Conference Information:

Registration Link:

ICFTD Conference Rates at the Holiday Inn Munich – City Centre are 109 EUR per night; breakfast is available for an additional 15 EUR per person, per day. Please mention “ICFTD 2016” during the booking process to benefit from this special conference rate. Reservations can be made online or via phone (+49 800 181 3656).


Check the conference website:
Subscribe to the email list via:

Penn FTD Center’s 2016 FTD Caregiver Conference

Friday, May 20, 2016, from 8 a.m.–4:30 p.m. 
University of Pennsylvania
Smilow Center for Translational Research
3400 Civic Center Boulevard
Philadelphia, PA 19104

The Penn Frontotemporal Degeneration Center invites you to attend a day-long conference for caregivers of persons with FTD and related conditions such as ALS and Corticobasal Degeneration. This conference is free of charge and open to family caregivers, health professionals, scientists, students and others with an interest in FTD. This conference will include presentations by Dr. Murray Grossman and a team of experts in the field of FTD. Registration opens the week of April 8th.

For more information, please contact Christine Ray at or (215) 349-5873.