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FTD in the News
Model Discusses FTD Advocacy in “Sports Illustrated” Article
Model and FTD caregiver Nicole Petrie discussed why she’s spreading FTD awareness in a recent Sports Illustrated article. “I have dreamed of shooting for [Sports Illustrated] since I started modeling, but the timing has never seemed more perfect to submit…
Little-Known Protein May Play a Role in FTD Disease Pathology, Study Suggests
Researchers at the University of California, Los Angeles (UCLA) are gaining new insight into how the transmembrane protein 106B, or TMEM106B, plays a role in FTD disease pathology. In a study, published in Nature on March 28, UCLA scientists show…
Couples Living with PPA Featured in Wisconsin Newspaper
Two couples living with primary progressive aphasia (PPA) share their experiences of managing the disease and the importance of supportive relationships in a recent article in the Wisconsin newspaper the Leader-Telegram. Couples Al and Karen Pezzi and CeCelia and Wayne…
Movement Symptoms Associated with FTD Correlate with Greater Brainstem Atrophy, Study Finds
Persons diagnosed with FTD who exhibit extrapyramidal symptoms are likely to have significantly more brainstem atrophy and reduced metabolism in certain brain areas compared with persons diagnosed who don’t exhibit such symptoms, a recent study shows. Extrapyramidal symptoms refer to…
Activist Living with FTD Discusses Dementia Advocacy in Asia in “Being Patient” Interview
Emily Ong, who lives with FTD, discussed her efforts to combat the challenges of dementia advocacy in Asia in an April 20 Being Patient “LiveTalk” interview. Ong, who lives in Singapore, spoke about receiving an FTD diagnosis at age 51…
Neurofilament Light Potentially Useful as FTD Biomarker, Study Finds
Neurofilament light (NfL), a recognized biomarker linked to neurodegeneration, has been proven to be a useful blood-based biomarker in identifying FTD, a recent study has found. Researchers from the Mayo Clinic in Florida and members of ALLFTD, the multi-site North…
High School Basketball Players Honor Late Father Who Had FTD
Two high school basketball players in Connecticut dedicated their recent tournament run to their late father and coach, who lived with behavioral variant FTD (bvFTD). Despite losing their 48-year-old father, Dan Graves, in February after he was diagnosed with bvFTD…
Several Neurodegenerative Diseases Possibly Linked to Common Protein, Study Suggests
A new study published in Cell has identified a common protein linked between several neurodegenerative diseases, including FTD. Researchers have found that the TMEM106B protein, a protein that sits in the membranes of lysosomes and endosomes, appears to point toward…
Persons With End-Stage Dementia May Have Difficulty in Receiving Hospice Care, “Washington Post” Reports
Hospice stays for persons with FTD or other dementias could be harder to access through Medicare if their disease progression is classified as stable, the Washington Post reported in a recent article. The Mar. 26 article explains the findings of…
“Vogue” Covers AFTD’s 2022 Hope Rising Benefit
(L-R: AFTD CEO Susan L-J Dickinson, AFTD Board member Donald E. Newhouse, Hope Rising Benefit Chair David Zaslav, Hope Rising Host Paula Zahn) AFTD’s 2022 Hope Rising Benefit returned on March 30 for its first in-person event since 2019, and…