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FTD in the News
“Faithful as She Fades” Paints an Honest Portrait of FTD Caregiving
L’dor v’dor, a Hebrew phrase translated “from generation to generation,” is meant to convey the concept of passing on Jewish spiritual traditions and cultural customs across time. For Robert Fischbach, this includes the value placed on caring for one’s family…
University of Exeter Presents Research on Apathy in Dementia
Although it is the most common neuropsychiatric symptom of dementia — present in nearly half of all people diagnosed – apathy has not been the focus of much scientific research to date. However, the University of Exeter recently conducted a study in…
AFTD Volunteer Featured in Recent Episode of The Alzheimer’s Podcast
AFTD volunteer Deborah Dolan was recently interviewed by the Dementia Sherpa, Christy Turner, on The Alzheimer’s Podcast. Throughout the episode, Christy and Deborah endeavor to raise awareness of frontotemporal degeneration, while bringing it out of the shadow of Alzheimer’s disease….
Study: More than 80% of Dementia Caregivers Are Family Members
Family members and other unpaid helpers comprise 83% of long-term care partners and caregivers for people with dementia in the U.S., according to a November 29 article published on The Conversation. The authors cited a study published in the medical…
Consider Supporting AFTD This #GivingTuesday…
November 27th marks the seventh annual Giving Tuesday, a day to recognize and support the important work done by philanthropic organizations across the United States. It’s clear that you have choices to make in considering nonprofits for support; know that…
Support AFTD Through AmazonSmile This Holiday Season
As you do your holiday shopping this Black Friday, Cyber Monday and beyond, please consider using AmazonSmile and designating AFTD as your preferred charitable organization. You will enjoy the prices (and special offers) as Amazon.com, but the AmazonSmile Foundation will…
U.K. Guardian Spotlights Brain Donation’s Role in Developing FTD Treatments
An article published in The Guardian on November 13 highlights the work of the Sydney Brain Bank in Australia, which studies donated brain tissue in the hopes of accelerating potential treatments for a variety of neurodegenerative conditions, including FTD. “Every…
Former FTD Caregiver Nancy Carlson Profiled in Minn. Star Tribune
November is National Family Caregivers Month, an opportunity to recognize the spouses, children, family members and friends who help loved ones living with disabilities and long-term illnesses to maintain their highest possible quality of life. But caregivers need to sustain…
Sandra Day O’Connor Announces Dementia Diagnosis
Sandra Day O’Connor, the first woman to serve on the U.S. Supreme Court, announced she has been diagnosed “with the beginning stages of dementia, probably Alzheimer’s disease” on October 23. In an open letter circulated by the Court’s public information…
Des Moines Register Article Highlights Difficulties in Finding FTD Care
An article published in the October 21 Des Moines Register chronicled the struggles faced by people living with young-onset dementia and their care partners when seeking quality long-term care. The article featured two Iowa residents who have FTD to illustrate…