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FTD in the News
FTD, the “Dementia That Is Often Misdiagnosed,” Is Spotlighted in Next Avenue
Frontotemporal degeneration is difficult to diagnose, can bankrupt families, and currently lacks any effective treatments. But while it is still too little known, awareness of the disease is growing, the online publication Next Avenue reported on April 9. The article…
Federal Actions Taken on FTD Research
Two recent developments will bring additional federal focus on FTD research. FTD has been added to a short list of diseases to receive research funding through the Department of Defense under the Congressionally Directed Medical Research Programs. Thank you to…
Woody Durham, Iconic Voice of Tar Heel Sports, Dies of FTD
Woody Durham, the iconic voice of University of North Carolina basketball and football for 40 years, died on March 7 of primary progressive aphasia. He was 76 years old. After he was diagnosed with PPA in early 2016, Durham and his family…
N.Y. Times Magazine: How FTD Can Impact Familial Relationships
In The New York Times Magazine, ethicist Kwame Anthony Appiah addresses how symptoms of FTD such as impaired judgment and disinhibition can negatively impact familial relationships.
AFTD Program Director and Couple Living with FTD Present Webinar on FTD Care
AFTD Program Director Sharon Denny joined FTD advocates Brandt and Marie Henderson to present a webinar on January 16, sponsored by the Administration for Community Living (ACL). During the webinar, Denny gave a general overview of FTD and its subtypes,…
TED Talk: How FTD Changed Beth Malone’s Idea of Death (and Life)
Nearly a decade after being diagnosed with FTD, Beth Malone’s dad was placed in a dementia care facility. Beth is a TED Resident, and she recently recorded a TED Talk, in which she delivers a deeply moving and personal account…
AARP Covers the Tragic FTD-Related Death of Deven Black
Deven Black died tragically in 2016, and while FTD was not the main culprit in his death, it was a menacing accomplice. AARP recently covered Deven’s story in depth, told from the perspective of his wife, Jill. The resulting article…
Maurice Hinchey, Former Congressman from New York, Dies of FTD
Maurice D. Hinchey, who represented New York State in Congress for 20 years, died on November 22 from frontotemporal degeneration. Earlier this year, Hinchey’s family announced that he was living with the primary progressive aphasia form of FTD. They said…
New Short Film Gives Firsthand Perspective of the FTD Journey
VJ & Chuck, a powerful new short film by Joseph Becker and ThinkFilm, Inc., captures FTD’s impact from the perspective of the person diagnosed. The film focuses on VJ and Chuck Anastasia, a married couple living in Rhode Island. In 2013,…
Contribute Your FTD Story to the Upcoming National Dementia Summit
World FTD Awareness Week starts in less than one week — on 9/24! In the lead-up, AFTD would like to let you know about an important way you can share your perspective with federal policymakers and healthcare researchers. On October…