Advancing Hope #83: Participate in FTD Research

February Advancing Hope - WEB FB LI TW

PLEASE NOTE: A key aspect of AFTD’s mission is to stimulate participation in research. We do not take funding to publicize research opportunities, and we do not “endorse” or “approve” any study. Rather, we provide you with this information and encourage you to find out more as you consider whether these opportunities might be a good fit for you. 

There are many different research opportunities for people diagnosed with FTD, care partners, family members, and friends. Follow AFTD’s Featured Studies page and consider enrolling in the FTD Disorders Registry to stay informed.

Participating in a research study lets you help to advance the search for effective FTD therapies, increase understanding of disease mechanisms, speed the identification of biomarkers to improve diagnosis and inform drug development, or promote the development of strategies to improve quality of life. This month we’re highlighting two studies that are currently seeking participants:

SAGE LEAF: Reducing Burden in Alzheimer’s Disease Caregivers through Positive Emotion Regulation and Virtual Support

Caregiving can be stressful. If you care for a loved one with FTD, you could be eligible for the SAGE LEAF Study. Researchers at Northwestern University are testing an online, positive emotion skill-building program to help caregivers cope with stress.

This study is led by Dr. Judith Moskowitz and the NU IRB study number is: STU00215548. SAGE LEAF is supported by the National Institute on Aging.

The program comprises six weekly skill-building lessons delivered online through self-guided online lessons. The SAGE LEAF program is delivered remotely and does not require in-person contact. Participants also receive up to $50 in Amazon gift codes for their participation.

For more information or to see if you are eligible, please contact the researcher team at iankwok@u.northwestern.edu and mention “SAGE LEAF Study.”

Novel In Vivo Synaptic Imaging in Behavioral Variant FTD (bvFTD)

Yale University School of Medicine and Yale New Haven Hospital are conducting a neuroimaging study. This study will help researchers better understand bvFTD and may lead to a new biomarker that could help detect and diagnose bvFTD earlier.

WHO: People with bvFTD, ages 40-85.

WHAT: Participation involves one phone screening and at least 3 in-person visits. Study procedures will include: A screening appointment, a magnetic resonance imaging (MRI) scanning session, and up to three Positron Emission Tomography (PET) scanning sessions.

WHEN: Flexible with your schedule, but most weekdays for visits. Phone screenings can occur any weekday.

WHERE: Yale University PET Center (801 Howard Avenue, New Haven) for screening and PET scan. Anlyan Center (300 Cedar Street, New Haven) for MRI. Transportation arrangements can be made on a case-by-case basis.

Learn more about HOW to get involved in this study by visiting the Featured Studies page on our website.

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