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World FTD Awareness Week 2020
Event
World FTD Awareness Week, a week of events, activism and engagement, is organized each year by World FTD United, an international coalition of which AFTD is a member. This year, World FTD Awareness Week will be highlighted by the daylong…
World FTD Awareness Week 2019
Event
World FTD Awareness Week, a week of events, activism and engagement, is organized each year by World FTD United, an international coalition of which AFTD is a member. For World FTD Awareness Week 2019, tell the world your FTD story. Use…
World FTD Awareness Week
Event
World FTD Awareness Week, a week of events, activism and engagement, is organized each year by World FTD United, an international coalition of which AFTD is a member.
2018 World FTD Awareness Week: September 23- September 30, 2018
News Article
World FTD Awareness Week, a week of events, activism and engagement, will begin this year on September 23, 2018. Stay tuned to the AFTD website for more information on specific events as the week draws nearer. Together, we can work to…
2017 World FTD Awareness Week: September 24-October 1, 2017
News Article
World FTD Awareness Week, a week of events, activism and engagement, will begin this year on September 24. Last year, World FTD Awareness Week was a huge success, with events taking place in many different states and countries. In 2017,…
Ottawa Radio Station 580 CFRA Promotes World FTD Awareness Week
News Article
On October 10th, Ottawa radio station 580 CFRA hosted dementia advocate Matt Dineen on the program to raise FTD awareness. Matt’s interview is available here. The station also hosted FTD advocate Sue Gustafson, who described losing her husband to FTD…
First-ever World FTD Awareness Week Launches at One World Trade Center
News Article
On October 1, AFTD, with President of Advance Publications, Inc. Donald Newhouse, convened supporters and community members to host an inaugural event at One World Trade Center. Together, we gathered to kick off U.S. participation in the first ever World FTD Awareness…
World FTD Awareness Week (Oct. 4-11, 2015) Social Media Kit
News Article
AFTD’s Social Media Kit offers an easy way to tell your story during World FTD Awareness Week. Simply choose the template that suits you best: Social Media Template, for persons living with FTD Social Media Template, for caregivers Social Media Template, for…
AFTD and ADDF Announce Four New Research Awards
News Article
AFTD and The Alzheimer’s Drug Discovery Foundation (ADDF) have awarded four new research grants, totaling $3.4 million, to advance the science of FTD and hasten the development of novel treatments. “This kind of commitment provides critical support for funding research…
A Week of Awareness…
News Article
Grassroots volunteers and FTD experts from around the globe joined AFTD to mark World FTD Awareness Week 2020 (Sept. 27-Oct. 4) with a wide range of activities designed to raise awareness, share information, and raise funds to help hasten a…
Watch the 2020 World FTD Marathon…
News Article
The first-ever World FTD Marathon, a day-long series of interactive webinars from around the globe, is now available to view in its entirety online — approximately 17 hours of FTD-focused content presented by persons diagnosed, researchers and current and former…
AFTD Highlights Mom’s Story in Latest N.Y. Times Awareness Ad
News Article
The Sunday, October 4 issue of the New York Times features the story of Jennifer Lee, a woman living with FTD, in the latest in a series of FTD awareness ads to run in the Times. The ad, which appears…
Cranking Up the Heat: #FTDhotshotchallenge
News Article
In its first week, the #FTDhotshotchallenge has raised over $22,000, as volunteers all over the world are raising FTD awareness by taking a shot of hot sauce and sharing the footage on social media. Today, we’re announcing that an anonymous…
AFTD and ADDF Announce Major New Investments in FTD Research
News Article
AFTD and The Alzheimer’s Drug Discovery Foundation (ADDF) announced today four new research awards to scientists looking for novel ways to diagnose and treat FTD. The awards were announced this week to help mark World FTD Awareness Week 2020. “Our…
Members of AFTD Community Featured on Caregiver Solutions Show to Raise FTD Awareness
News Article
Members of the AFTD community, including staff and a volunteer, were featured on the Caregiver Solutions Info Show to shed light on FTD and current awareness events. Hosted by Marcia Teele, the show provides information, advice, and support related to…
AFTD Awareness Ads Featured in New York Times Introduce #FTDhotshotchallenge
News Article
A recent set of awareness ads featured in the New York Times highlights the stories of families touched by FTD and introduce the #FTDhotshotchallenge. On Sunday, September 27, the print edition of the Times included a full-page ad, seen above….
World FTD Marathon 2020
News Article
To mark World FTD Awareness Week 2020, AFTD and its fellow members of the World FTD United coalition will spread FTD awareness and information across the globe with the first-ever World FTD Marathon. AFTD is curating the North, Central and…
Join the World FTD Marathon…
News Article
World FTD Awareness Week 2020 (Sept. 27-Oct. 4) will be highlighted by the daylong World FTD Marathon on October 3. Presenters from around the globe will provide the latest information on FTD research and support, and share about the lived…
Maine Family to Host AFTD Food for Thought Campaign, Raise FTD Awareness
News Article
For the Beal family, AFTD’s Food for Thought campaign presents an opportunity to share their journey with FTD and raise awareness while (safely) enjoying food with friends and family. A grassroots fundraising and awareness campaign focusing on food and FTD…
AFTD News: Summer 2020, Vol. 17, Issue 2
News Article
In this issue: COVID-19 and FTD Research: Challenges and Silver Linings; Zoey’s Extraordinary Playlist Brings FTD Awareness to National TV; Spotlight on… Aisha Adkins, FTD Caregiver; World FTD Awareness Week Begins Sept. 27; AFTD Sponsors Virtual Dementia Care Summit; A…
A Message from AFTD’s CEO
News Article
I hope that this finds you and your family safe and connected during these last weeks of summer. We know that for many, the COVID-19 pandemic has brought new challenges. Stress and uncertainty are weighing on us differently these months….
#FTDhotshotchallenge
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What: The #FTDhotshotchallenge is a community-driven, grassroots campaign using social media and hot sauce to raise awareness of FTD, and raise funds to drive AFTD’s work to end this disease. Where: Anywhere – it’s a virtual challenge! We need all…
COVID-19 and FTD
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As the local and national impact of COVID-19 (coronavirus) continues to evolve, we want for you to know that you aren’t alone. AFTD is here to help you navigate what we know is likely a challenging and stressful time. We…
AFTD News: Fall 2019, Vol. 16, Issue 3
News Article
In this issue: AFTD and Target ALS Announce Partnership; Bringing Vital Perspective to Federal Research Grant Reviews…; Spotlight on… Ian R.A. Mackenzie, M.D., AFTD Medical Advisory Council; AFTD Medical Advisor Wins Breakthrough Prize; National Dementia Summit Scheduled for March 2020;…
AFTD Volunteer Discusses FTD Journey on Delaware Radio Station
News Article
An AFTD volunteer discusses her family’s journey with FTD in an interview aired on the Delaware-based radio station WGMD during World FTD Awareness Week. In a conversation with WGMD’s Radio Free Delmarva host Duke Brooks, Gene Thornton details her husband…
AFTD Ad Featured in New York Times
News Article
Timed for the start of World FTD Awareness Week, and funded by support from a generous donor, a full-page ad portraying the devastating impact of young-onset dementia on families is featured in the 9/22 issue of the New York Times….
AFTD News: Fall 2018, Vol. 15, Issue 3
News Article
In this issue: World FTD Awareness Week 2018 Observed Around the Globe; Hope Rising 2018 Draws Record Crowd to Show Support for AFTD’s Mission; Spotlight on… David Pfeifer, AFTD Board of Directors; Congress Increases Funding for NIH Dementia Research in…
New FTD PSA Airs on 92.1 KKDV
News Article
Last Monday, to mark World FTD Awareness Week 2018, 92.1 KKDV began airing a PSA about FTD — the most common form of dementia for people under 60 — thanks to the efforts of AFTD volunteer Patrick Gutierrez.
AFTD Volunteer Pens Delaware State News Op-Ed
News Article
In honor of World FTD Awareness Week, AFTD volunteer Gene Thornton detailed her family’s FTD journey in the September 28 issue of Delaware State News. She wrote of her husband Donovan’s experiences as a resident of the Delaware Veterans Home….
AFTD Ad Featured in New York Times
News Article
Timed for the start of World FTD Awareness Week, and funded by support from a generous donor, a full-page ad promoting AFTD’s message of help and hope is featured in the 9/23 issue of the New York Times. Thanks to the…
World FTD Awareness 2018-19
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Telling the World About FTD Although FTD is the most common form of dementia for people under 60, far too few know about the challenges it brings for hundreds of thousands around the world. Together, beginning with World FTD Awareness…
AFTD News: Summer 2018, Vol. 15, Issue 2
News Article
In this issue: Department of Defense to Offer Funding for FTD Research; Facebook Group Brings Help and Support; Spotlight on… Sandra Grow, AFTD Board of Directors; AFTD Co-Sponsoring Satellite Events at Society for Neuroscience Meeting; AFTD Volunteers Honored During National…
AFTD News: Fall 2017, Volume 14, Issue 3
News Article
In this issue: Announcing the David Geffen Fund at AFTD; AFTD Study Shows Economic Burden of FTD; Money Well Spent: AFTD Pilot Grants; AFTD Nominee Joins Dementia Advisory Council; Columbia Trial on Behavioral Symptoms in FTD; FTSG Conference to Be…
Contribute Your FTD Story to the Upcoming National Dementia Summit
News Article
World FTD Awareness Week starts in less than one week — on 9/24! In the lead-up, AFTD would like to let you know about an important way you can share your perspective with federal policymakers and healthcare researchers. On October…
AFTD News: Fall 2016, Volume 13, Issue 3
News Article
In this issue: Understanding the Social and Economic Impact of FTD; AFTD Pilot Grant Recipient Makes Headlines with Web-based Speech Language Therapy; Spotlight on Matt Hatfield; A Community for All Facing an FTD Journey; Benefit Brings Hope to the FTD…
AFTD Speaks to Kimberly Williams-Paisley About Her New Book
News Article
Kimberly Williams-Paisley’s new memoir, published earlier this month by Penguin Random House, has much to offer for anyone impacted by FTD. In this vivid, thoughtful book, Williams-Paisley describes her journey grappling with the changes that primary progressive aphasia (PPA) brings…
AFTD News: Fall 2015, Volume 12, Issue 3
News Article
In this issue: Samuel I. Newhouse Foundation Supports $5.75M AFTD Biomarkers Initiative; AFTD Rolls Out Support Groups Initiative; Spotlight on Sue Laden; Save the Date: 2016 AFTD Education Conference; Ten Countries Make their Voices Heard During First World FTD Awareness…
Help & Hope #66
News Article
Issue #66: September 2020 In this issue you can find out what’s in the works for World FTD Awareness Week 2020, learn what easing regulations might mean for visitation of your loved one in a facility, get information about a…
Food for Thought 2020
Event
Food for Thought is a grassroots fundraising and awareness campaign focusing on food and FTD education. Held the last week of September through the first week of October, FFT encompasses World FTD Awareness Week. During this time, people across the…
Food for Thought 2019
Event
Food for Thought is a grassroots fundraising and awareness campaign focusing on food and FTD education. Held the last week of September through the first week of October, FFT encompasses World FTD Awareness Week. During this time, people across the…
The Cruelest Disease You’ve Never Heard Of: Frontotemporal Dementia
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Understanding is growing that not all dementia is Alzheimer’s. However, too few realize today that dementia can impact younger adults. FTD, also known as frontotemporal dementia, frontotemporal degeneration or Pick’s disease, is the most common dementia diagnosed before age 60….
Food for Thought 2018
Event
Food for Thought is a grassroots fundraising and awareness campaign focusing on food and FTD education. Held the last week of September through the first week of October, FFT encompasses World FTD Awareness Week. During this time, people across the…
Food for Thought
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Although frontotemporal degeneration (FTD) is a devastating disease for all whose lives it touches, it remains far too little known and poorly understood. If you would like to help to change that, AFTD’s Food for Thought campaign is for you….
Host an Event
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What is the AFTD-Team? The AFTD-Team is made up of every volunteer who works to help raise FTD awareness, and all of the dedicated Grassroots Event (GRE) Hosts who raise funds to ensure help and support for families, as well…
Messages of Hope
News Article
We are better together. #MessagesOfHope #FTD #DementiaUnder60 #ThinkFTD #endFTD #dementia #raredisease #AFTD #FindHelpShareHope #findhelp #sharehope #help #hope #bettertogether #together #togetherisbetter #youarenotalone #notalone #strengthinnumbers #quote #quoteoftheday #inspire #inspiration #inspirational #encourage #encouragement #encouraging #wise #wisdom #wordsofwisdom #WorldFTDAwarenessWeek
Messages of Hope
News Article
#MessagesOfHope #FTD #ThinkFTD #EndFTD #WorldFTDAwarenessWeek #DementiaUnder60 #dementia #raredisease #AFTD #findhelpsharehope #help #hope #resilience #resilient #determination #determined #japaneseproverb #proverb #wisdom #wordsofwisdom #quoteoftheday FTD
Featured Studies
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Participating in research can bring new ways to help families today, and build hope for a future without this disease. You may choose to find out more about the following featured studies: Progranulin Gene FTD (PG FTD) Study Recruiting from…