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World FTD Awareness Week 2020

Event

World FTD Awareness Week, a week of events, activism and engagement, is organized each year by World FTD United, an international coalition of which AFTD is a member. Stay tuned to this page for more details as World FTD Awareness…

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World FTD Awareness Week 2019

Event

World FTD Awareness Week, a week of events, activism and engagement, is organized each year by World FTD United, an international coalition of which AFTD is a member. For World FTD Awareness Week 2019, tell the world your FTD story. Use…

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World FTD Awareness Week

Event

World FTD Awareness Week, a week of events, activism and engagement, is organized each year by World FTD United, an international coalition of which AFTD is a member.

2017 World FTD Awareness Week: September 24-October 1, 2017

News Article

World FTD Awareness Week, a week of events, activism and engagement, will begin this year on September 24. Last year, World FTD Awareness Week was a huge success, with events taking place in many different states and countries. In 2017,…

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Ottawa Radio Station 580 CFRA Promotes World FTD Awareness Week

News Article

On October 10th, Ottawa radio station 580 CFRA hosted dementia advocate Matt Dineen on the program to raise FTD awareness. Matt’s interview is available here. The station also hosted FTD advocate Sue Gustafson, who described losing her husband to FTD…

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World FTD Awareness Week (Oct. 4-11, 2015) Social Media Kit

News Article

AFTD’s Social Media Kit offers an easy way to tell your story during World FTD Awareness Week. Simply choose the template that suits you best: Social Media Template, for persons living with FTD Social Media Template, for caregivers Social Media Template, for…

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COVID-19 and FTD

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As the local and national impact of COVID-19 (coronavirus) continues to evolve, we want for you to know that you aren’t alone. AFTD is here to help you navigate what we know is likely a challenging and stressful time. We…

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AFTD News: Fall 2019, Vol. 16, Issue 3

News Article

In this issue: AFTD and Target ALS Announce Partnership; Bringing Vital Perspective to Federal Research Grant Reviews…; Spotlight on… Ian R.A. Mackenzie, M.D., AFTD Medical Advisory Council; AFTD Medical Advisor Wins Breakthrough Prize; National Dementia Summit Scheduled for March 2020;…

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AFTD Volunteer Discusses FTD Journey on Delaware Radio Station

News Article

An AFTD volunteer discusses her family’s journey with FTD in an interview aired on the Delaware-based radio station WGMD during World FTD Awareness Week. In a conversation with WGMD’s Radio Free Delmarva host Duke Brooks, Gene Thornton details her husband…

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AFTD Ad Featured in New York Times

News Article

Timed for the start of World FTD Awareness Week, and funded by support from a generous donor, a full-page ad portraying the devastating impact of young-onset dementia on families is featured in the 9/22 issue of the New York Times….

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AFTD News: Fall 2018, Vol. 15, Issue 3

News Article

In this issue: World FTD Awareness Week 2018 Observed Around the Globe; Hope Rising 2018 Draws Record Crowd to Show Support for AFTD’s Mission; Spotlight on… David Pfeifer, AFTD Board of Directors; Congress Increases Funding for NIH Dementia Research in…

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New FTD PSA Airs on 92.1 KKDV

News Article

Last Monday, to mark World FTD Awareness Week 2018, 92.1 KKDV began airing a PSA about FTD — the most common form of dementia for people under 60 — thanks to the efforts of AFTD volunteer Patrick Gutierrez.

AFTD Volunteer Pens Delaware State News Op-Ed

News Article

In honor of World FTD Awareness Week, AFTD volunteer Gene Thornton detailed her family’s FTD journey in the September 28 issue of Delaware State News. She wrote of her husband Donovan’s experiences as a resident of the Delaware Veterans Home….

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AFTD Ad Featured in New York Times

News Article

Timed for the start of World FTD Awareness Week, and funded by support from a generous donor, a full-page ad promoting AFTD’s message of help and hope is featured in the 9/23 issue of the New York Times. Thanks to the…

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World FTD Awareness 2018-19

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Telling the World About FTD Although FTD is the most common form of dementia for people under 60, far too few know about the challenges it brings for hundreds of thousands around the world. Together, beginning with World FTD Awareness…

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AFTD News: Summer 2018, Vol. 15, Issue 2

News Article

In this issue: Department of Defense to Offer Funding for FTD Research; Facebook Group Brings Help and Support; Spotlight on… Sandra Grow, AFTD Board of Directors; AFTD Co-Sponsoring Satellite Events at Society for Neuroscience Meeting; AFTD Volunteers Honored During National…

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AFTD News: Fall 2017, Volume 14, Issue 3

News Article

In this issue: Announcing the David Geffen Fund at AFTD; AFTD Study Shows Economic Burden of FTD; Money Well Spent: AFTD Pilot Grants; AFTD Nominee Joins Dementia Advisory Council; Columbia Trial on Behavioral Symptoms in FTD; FTSG Conference to Be…

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AFTD News: Fall 2016, Volume 13, Issue 3

News Article

In this issue: Understanding the Social and Economic Impact of FTD; AFTD Pilot Grant Recipient Makes Headlines with Web-based Speech Language Therapy; Spotlight on Matt Hatfield; A Community for All Facing an FTD Journey; Benefit Brings Hope to the FTD…

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AFTD Speaks to Kimberly Williams-Paisley About Her New Book

News Article

Kimberly Williams-Paisley’s new memoir, published earlier this month by Penguin Random House, has much to offer for anyone impacted by FTD. In this vivid, thoughtful book, Williams-Paisley describes her journey grappling with the changes that primary progressive aphasia (PPA) brings…

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AFTD News: Fall 2015, Volume 12, Issue 3

News Article

In this issue: Samuel I. Newhouse Foundation Supports $5.75M AFTD Biomarkers Initiative; AFTD Rolls Out Support Groups Initiative; Spotlight on Sue Laden; Save the Date: 2016 AFTD Education Conference; Ten Countries Make their Voices Heard During First World FTD Awareness…

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Food for Thought 2019

Event

Food for Thought is a grassroots fundraising and awareness campaign focusing on food and FTD education. Held the last week of September through the first week of October, FFT encompasses World FTD Awareness Week. During this time, people across the…

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The Cruelest Disease You’ve Never Heard Of: Frontotemporal Dementia

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Understanding is growing that not all dementia is Alzheimer’s. However, too few realize today that dementia can impact younger adults. FTD, also known as frontotemporal dementia, frontotemporal degeneration or Pick’s disease, is the most common dementia diagnosed before age 60….

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Food for Thought 2018

Event

Food for Thought is a grassroots fundraising and awareness campaign focusing on food and FTD education. Held the last week of September through the first week of October, FFT encompasses World FTD Awareness Week. During this time, people across the…

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Food for Thought

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Although frontotemporal degeneration (FTD) is a devastating disease for all whose lives it touches, it remains far too little known and poorly understood. If you would like to help to change that, AFTD’s Food for Thought (FFT) campaign is for…

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Host an Event

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What is the AFTD-Team? The AFTD-Team is made up of every volunteer who works to help raise FTD awareness, and all of the dedicated Grassroots Event (GRE) Hosts who raise funds to ensure help and support for families, as well…

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Messages of Hope

News Article

We are better together. #MessagesOfHope #FTD #DementiaUnder60 #ThinkFTD #endFTD #dementia #raredisease #AFTD #FindHelpShareHope #findhelp #sharehope #help #hope #bettertogether #together #togetherisbetter #youarenotalone #notalone #strengthinnumbers #quote #quoteoftheday #inspire #inspiration #inspirational #encourage #encouragement #encouraging #wise #wisdom #wordsofwisdom #WorldFTDAwarenessWeek

Messages of Hope

News Article

#MessagesOfHope #FTD #ThinkFTD #EndFTD #WorldFTDAwarenessWeek #DementiaUnder60 #dementia #raredisease #AFTD #findhelpsharehope #help #hope #resilience #resilient #determination #determined #japaneseproverb #proverb #wisdom #wordsofwisdom #quoteoftheday FTD