The Association for Frontotemporal Degeneration

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Download a Diagnostic Checklist

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

Bruce Willis & FTD

The Willis' Unexpected Journey

Initial Family Statement

Read about Emma Heming Willis' book tour

Learn more about FTD

AFTD CEO
Susan Dickinson to Retire in May 2026

Read More View Job Posting

AFTD Board Leading Search for Successor

Thursday, November 6, 2025
3:00 p.m. ET

Alector Clinical Trial Results Townhall

Supporting FTD Care Partners with Individual Therapy:

HEALTHCARE PROFESSIONAL WEBINAR

Approaches and Key Considerations

CEC credit available for viewing the live webinar

Tuesday, November 18, 2025
12-1 p.m. EST

Read the Full Plan

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

News & Events

Rev. Jesse Jackson, Civil Rights Leader, Diagnosed with PSP

The FTD community extends its heartfelt support to Rev. Jesse Jackson and his family following the news today that the civil rights icon has been diagnosed with progressive supranuclear palsy…

Emma Heming Willis speaks at an AFTD benefit at Soho Sessions

Vanity Fair Features Soho Sessions AFTD Benefit in Honor of Bruce Willis

A Soho Sessions benefit concert for AFTD was the subject of an article in Vanity Fair this week. The event, held November 5, honored Bruce Willis, currently living with an…

Amylyx Pharmaceuticals Ends PSP Trial of AMX0035

Amylyx Pharmaceuticals announced recently that it would end its phase 2b trial of its drug AMX0035 for the treatment of progressive supranuclear palsy (PSP). The trial will not proceed to…

A montage of resolutions and proclamations to raise FTD awareness, showing that advocacy works

Tenacious AFTD Advocacy Gaining Momentum

With 2025’s FTD Awareness Week now behind us, AFTD’s Advocacy team is already gearing up its efforts for next year and beyond. The goal: to have official recognition of FTD…

Dear Helpline: Look For the Helpers

Dear HelpLine, I’m caring for my husband who was diagnosed with FTD two years ago. Some days I feel like I’m doing okay, and others, I just feel lost and…

The New York FTD Registry: How Advocacy Drives Change

The International Business Times UK recently drew an important connection between FTD advocacy efforts and the new FTD Registry recently voted into law in New York state. The passage of…

AFTD and ADDF Award $2.5 million to Vesper Biotechnology for Drug VES001 Clinical Trial in FTD

The Association for Frontotemporal Degeneration (AFTD) and the Alzheimer’s Drug Discovery Foundation (ADDF) recently awarded $2.5 million as part of their shared funding opportunity called the Treat FTD Fund to Danish biotechnology…

Dawn Kirby Interviewed on Podcast - FBLI

AFTD Ambassador and “Protective Mama Bear” Dawn Kirby Interviewed on Podcast

Dawn Kirby’s daughter Kara was diagnosed with FTD at age 29. In a recent episode of the podcast For Their Thoughts, she shared her experience as a mother fighting for…

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