2019 AFTD Education Conference Breakout Sessions



Clinical Issues (1:15 p.m.)

Managing Behavioral Variant FTD
Chuang-Kuo Wu, MD, PhD
Marianne Sanders, RN
Amy and George Shives
Jill Shapira, PhD, RN, facilitator

Explore behavioral variant FTD from four distinct and complementary perspectives – from the clinical
perspective, a care-and-support perspective, and from a person diagnosed and care partner.

Managing Primary Progressive Aphasia
Ahmad Sajjadi, MD
Maura Silverman, MS, CCC/SLP
Tracey Lind and Emily Ingalls
Mary O’Hara, facilitator

Explore PPA from four distinct and complementary perspectives – from the clinical perspective, a care-and support perspective, and from a person diagnosed and care partner.

Managing ALS/FTD & Movement Disorders
Gabriel Leger, MD
Jamie Fong, CGC
Miki Paul, PhD
Debra Niehoff, PhD, facilitator

Explore the physical and cognitive challenges of ALS/FTD, progressive supranuclear palsy and corticobasal degeneration from clinical, genetic and caregiving perspectives.

Care Strategies (2:50 p.m.)

The Doctor Thinks It’s FTD. Now What?
Christy Turner, CDP, CDCM, CCSI
Marianne Sanders, RN

For those who are facing a new diagnosis, this session will help you understand FTD and start planning for care.

Developing Communication Teams and Tools
Maura Silverman, MS, CCC/SLP

Having PPA does not mean you have nothing to say. This session will focus on finding alternative means of communicating when language is lost.

Developing Environmental & Behavioral Strategies
Jill Shapira, PhD, RN, Sue Hirsch, MA, and Sandi Grow, RN, AFTD Partners in FTD Care Advisors

This session will demonstrate how to use a problem-solving approach to develop creative and individualized strategies to address challenging behaviors due to FTD.

Loss and Grief in FTD
Bridget Moran-McCabe, MPH, AFTD
Elaine Rose, AFTD Volunteer

The experience of loss and grief is complicated. This session will discuss coping with this unique and personal experience.

Adapting to FTD: A Discussion for Persons Living with FTD
Matt Sharp, MSS, AFTD
Amy Shives, MEd

This session will feature a panel of people living with FTD discussing how to compensate and overcome challenges in daily life. This session is led by and is for people living with the disease. Any care partners who attend will be asked to listen rather than speak.

Open Q&A and Networking (4:00 p.m.)

Forum for Young Adults
Gabriel Leger, MD
Jamie Fong, CGC
Elivra Jimenez, PhD
Mary O’Hara, LCSW, facilitator

If you’re in your 20’s or 30’s and have a family member diagnosed with FTD, you’re bound to have questions. Here’s an opportunity to interact with experts as well as peers with similar concerns.

Forum for Care Partners
Chuang-Kuo Wu, MD, PhD
Mary Austrom, PhD
Maura Silverman, MS, CCC/SLP
Jill Shapira, PhD, RN, facilitator

There’s never enough time to talk with professionals who have expertise in FTD. This session offers care partners an additional opportunity to ask your questions and hear the concerns of peers.

Forum for People Living with FTD
Kimiko Domoto-Reilly, MD
Ahmad Sajjadi, MD
Marianne Sanders, RN
Matt Sharp, MSS, facilitator

Come ask professional FTD experts your questions. This session offers people living with a diagnosis an opportunity to meet with medical, research and dementia experts to discuss questions and care needs.

Engaging with AFTD for Healthcare Providers
Sharon Denny, MA, facilitator

Learn about how AFTD can support your work with people with FTD and their families, and join us to continue to increase awareness of FTD, shorten time to diagnosis and improve the quality of care available.

Find Help, Share Hope: The Power of Social Media Storytelling
Lauren Gauthier and Bridget Graham, facilitators

Join AFTD’s Online Community Coordinator and Special Events Manager to explore how you can leverage social media to increase awareness and understanding of FTD.