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Southwest
Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region
Upcoming Events
No events at this time.
AFTD Regional Network Coordinator
Dave Dillon at hoopsdillon@yahoo.com
Research and Medical Centers with particular FTD Focus
Cleveland Clinic, Las Vegas
Lou Ruvo Center for Brain Health
888 West Bonneville
Las Vegas, NV 89106
Director: Jeffrey Cummings, MD
http://my.clevelandclinic.org/brain_health/default.aspx
Contact: 702-483-6000
Mayo Clinic – Scottsdale
13400 East Shea Boulevard
Scottsdale, AZ 85259
http://www.mayoclinic.org/frontotemporal-dementia/
Contact: 480-301-8484
University of California, San Diego
Perlman Neurology Clinic
Shiley-Marcos Alzheimer’s Disease Research Center
UCSD Movement Disorders Program: Dr. Irene Litvan, Director
9350 Campus Pt. Drive
La Jolla, CA 92037
http://adrc.ucsd.edu/OthDemgroup.html
Contacts:
For appointments at the Perlman clinic call: 858-657-8540
For information about FTD related research and how to participate call the Shiley-Marcos Alzheimer’s Disease Research Center: 858-822-4800
For the Movement Disorders Program call Jennifer Casey: (858) 822-5871 or jcasey@ucsd.edu see: http://www.pspstudy.com for details about on-going research
University of California, San Francisco
Memory and Aging Center
350 Parnassus Ave. Suite 706
San Francisco, CA 94117
Contact: (415) 476-6880
University of California, Los Angeles
FTD Clinic
10911 Weyburn Ave., Suite 200
Los Angeles, CA 90095
http://www.neurology.ucla.edu/index.jsp?m=2&s=4_3
Contact: 310-794-2550
University of Utah Center for Alzheimer’s Care, Imaging and Research (CACIR)
Cognitive Disorders Clinic
Imaging & Neurosciences Center
729 Arapeen Dr.
Salt Lake City, UT 84108
Contacts:
Danielle Justesen, Clinic Coordinator: 801-585-7575 or Danielle.justesen@hsc.utah.edu
For more information about research at CACIR call the Memory Study Line: 801- 587-7888
Support Groups in this Region
Arizona – Phoenix
Under the auspices of Hospice of the Valley and Banner Alzheimer’s Institute
Meeting time:
Second Tuesday of the month from 12:30 to 2 p.m.
Location:
Third Floor Library at the Banner Alzheimer’s Institute,
901 E Willetta Street
Phoenix, Arizona 85006.
Contact:
Geri Hall, Ph.D., ARNP, FAAN at 602-239-6867
or e-mail Rebekah Wilson at RWilson@hov.org.
California – San Diego
Meeting time:
First Wednesday of the month from 2 to 3:30 p.m.
Location:
Conference room at the Shiley-Marcos Alzheimer’s Disease Research Center at the University of California, San Diego (the Research Center is NOT on campus, however, it is nearby)
Contact:
For directions and to pre-register, call Lisa Snyder at 858-622-4800.
California – Greater Sacramento area
Under the auspices of the Alzheimer’s Association, Northern California Chapter
Meeting time:
Fourth Wednesday of the month, 7:00 PM – 8:30 PM
Location:
Fair Oaks Presbyterian Church
11427 Fair Oaks Blvd
Fair Oaks, CA 95628
Contact:
Tonae Hasik at 916-799-5116
California – Los Angeles area
In partnership with UCLA
Meeting time:
Every other Monday from 7:30 to 9 p.m.
Location:
Contact Joanne Sackheim for location details.
Contact:
Joanne Sackheim at 310-276-0347 or via email at: josacks1@aol.com
California – Los Angeles area
Atypical Parkinsonian Disorders support group. For past and present caregivers, family and their loved ones with Atypical Parkinsonian Disorders to include PSP, CBD, LBD, MSA and others.
Meeting time:
Every third Saturday from 1:30 to 3:30 p.m.
Location:
Kaiser Permanente West Los Angeles Medical Center
6041 Cadillac Avenue, Los Angeles, CA 9003
Clinic Building, Basement Level, Classroom D
Contact:
Larry Schenker at 310-441-1488 or via email at: atypical.parkinsonian.disorder@gmail.com
California – Los Angeles/Orange County area
A collaboration between the University of California at Irvine and the Orange County Chapter of the Alzheimer’s Association
Meeting time:
First Wednesday of the month at 9:30 a.m.
Location:
On the campus of the University of California, Irvine – Must call ahead for directions and parking sticker
Contact:
Susan Randhawa, MSW, at 949-824-2983.
California – San Francisco
Under the auspices of UCSF Memory and Aging Center
Meeting time:
Second Thursday of the month from 2 to 3:30 p.m.
Location:
University of California, San Francisco
530 Parnassus Ave
Kalmanovitz Library, basement level Room CL-221
San Francisco, CA 94143
Contact:
Robin Ketelle at 415-514-2058
California – San Francisco
For adult children of people with FTD. Under auspices of UCSF Memory and Aging Center
Meeting time:
Third Thursday of the month from 5:00-6:30 PM.
Location:
This support group meets monthly via a toll-free conference call; people need not be located in California or the Bay Area to participate. Callers from anywhere in the U.S. are welcome. If you are interested, please contact the facilitator below for more information including the call-in number and passcode.
Contact:
Jamie C. Fong, M.S., CGC, at 415-476-8613 or via email at: jfong@memory.ucsf.edu
California – San Francisco area
Caregiver support group for those caring for loved ones with CBD and PSP
Meeting time:
Sundays, 5:00 PM – 7:00 PM, about every 6 weeks (call for schedule)
Location:
Mimi’s Cafe
2208 Bridgepointe Parkway
San Mateo, CA 94404
Contact:
Robin Riddle at 650-814-0848
Colorado – Colorado Springs
Under the auspices of the Alzheimer’s Association, Colorado Chapter
Meeting time:
Third Wednesday of the month, 7:00 PM
Location:
First United Methodist Church
420 North Nevada (Room 231)
Colorado Springs, CO
Contact:
Alzheimer’s Association at 719-266-8773 or facilitator Sandy Clarke via email at: coloradospringsbg.rc@sunriseseniorliving.com
Colorado – Denver
Under the auspices of the University of Colorado Health Sciences Center
Meeting time:
Third Tuesday of the month, 4:30PM
Location:
Kaiser Permanente
Skyline Building
4th Floor Conference Room, 1375 E. 20th Avenue
Denver, CO
Information:
Terencia Beauvais-Nikl, RN at 303-985-2440
Colorado – Denver area
Adult and Child FTD Support groupsMeeting time:
Second Tuesday of the month, 5:00 PM – 7:00 PM
Location:
Cornerstone Baptist Church, located at the SW corner of Lonetree Parkway and Lincoln Ave., Lonetree, CO
Adults – Room 133, Children – Room 102
Contact:
Terencia Beauvais-Nikl, RN at 303-985-2440
Nevada – Las Vegas area
Meeting time: Second Wedesday of each month, 7 to 8:30 p.m.
Location: Glazier’s, Desert Marketplace, 8525 W. Warm Springs Road (Durango and Warm Springs Roads), Las Vegas, Nevada 89113
Before Attending Please Contact: Lisa Radin at lradin@iglide.net or Alzheimer’s Association, Desert Southwest Chapter – Southern Nevada Region, at 702-248-2770.
New Mexico – Albuquerque
Meeting time:
First Sunday of each month, 2:00 to 5:30 p.m.
Location:
North east heights of Albuquerque
Contact:
For more information and location details, call Gretchen 505-823-1554
Utah – Salt Lake City area
Meeting time:
Second Wednesday of the month, 10:00 AM – 11:30 AM
Location:
Sandy Senior Center9310 South, 1300 East
Sandy, UT
Contact:
Bonnie Shepherd at 801- 231-3442 or via email at: bbshepherd@comcast.net
Utah – Salt Lake City area
Younger onset (prior to age 60) for FTD and Alzheimer’s
Meeting time:
Second Thursday of the month from 5 to 7 p.m.
Location:
Please call for information
Contact:
Diana Cook at 435-849-2440 or via email at: Healthyjourney@msn.com
