Southwest

Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region

Upcoming Events

None at this time.

AFTD Regional Network Coordinator

Rachael Baffa – rachael.bmartinez@yahoo.com

Research and Medical Centers with particular FTD Focus

Cleveland Clinic, Las Vegas

Lou Ruvo Center for Brain Health
888 West Bonneville
Las Vegas, NV 89106
Director: Jeffrey Cummings, MD

http://my.clevelandclinic.org/brain_health/default.aspx

Contact: 702-483-6000

Mayo Clinic – Scottsdale

13400 East Shea Boulevard
Scottsdale, AZ  85259

http://www.mayoclinic.org/frontotemporal-dementia/

Contact:480-301-8484

University of California, San Diego

Perlman Neurology Clinic
Shiley-Marcos Alzheimer’s Disease Research Center
UCSD Movement Disorders Program: Dr. Irene Litvan, Director
9350 Campus Pt. Drive
La Jolla, CA  92037

http://adrc.ucsd.edu/OthDemgroup.html

Contacts:
For appointments at the Perlman clinic call: 858-657-8540
For information about FTD related research and how to participate call the Shiley-Marcos Alzheimer’s Disease Research Center: 858-822-4800
For the Movement Disorders Program call Jennifer Casey: (858) 822-5871 or jcasey@ucsd.edu see: http://www.pspstudy.com for details about on-going research

University of California, San Francisco

Memory and Aging Center
350 Parnassus Ave.  Suite 706
San Francisco, CA  94117

www.memory.ucsf.edu/ftd/

Contact: (415) 476-6880

University of California, Los Angeles

FTD Clinic
10911 Weyburn Ave., Suite 200
Los Angeles, CA  90095

          http://www.neurology.ucla.edu/index.jsp?m=2&s=4_3

Contact: 310-794-2550

University of Utah Center for Alzheimer’s Care, Imaging and Research (CACIR)

Cognitive Disorders Clinic
Imaging & Neurosciences Center
729 Arapeen Dr.
Salt Lake City, UT  84108

www.utahmemory.org

Contacts:
Danielle Justesen, Clinic Coordinator: 801-585-7575 or Danielle.justesen@hsc.utah.edu
For more information about research at CACIR call the Memory Study Line: 801- 587-7888

Support Groups in this Region

Arizona – Phoenix

Under the auspices of Hospice of the Valley and Banner Alzheimer’s Institute

Meeting time:
Second Tuesday of the month from 12:30 to 2 p.m.

Location:
Third Floor Library at the Banner Alzheimer’s Institute,
901 E Willetta Street
Phoenix, Arizona 85006.

Contact:
Geri Hall, Ph.D., ARNP, FAAN, Banner at 602-239-6867
or Maribeth Gallagher, DNP, Hospice of the Valley at 602-636-2220

California – San Diego

Meeting time:
First Wednesday of the month from 2 to 3:30 p.m.

Location:
Conference room at the Shiley-Marcos Alzheimer’s Disease Research Center at the University of California, San Diego (the Research Center is NOT on campus, however, it is nearby)

Contact:
For directions and to pre-register, call Lisa Snyder at 858-822-4800 or email her at lsnyder@ucsd.edu.

California – Greater Sacramento area

Under the auspices of the Alzheimer’s Association, Northern California Chapter

Meeting time:
Fourth Wednesday of the month, 7:00 PM – 8:30 PM

Location:
Fair Oaks Presbyterian Church
11427 Fair Oaks Blvd
Fair Oaks, CA 95628

Contact:
Kristen Krueger at ftdkristenkrueger@gmail.com or
Greater Sacramento Area Alzheimer’s Association Office at: 916-930-9080

California – Los Angeles/Orange County area

Sponsored by the University of California at Irvine

Meeting time:
First Wednesday of the month at 9:30 a.m.

Location:
On the campus of the University of California, Irvine – Must call ahead for directions and parking sticker

Contact:
Susan Randhawa, LCSW, at 949-824-2983.

California – Los Angeles area (informal)

Meeting time & Location: 
Last Sunday of the month (times and location may vary – contact facilitator for details)

Contact:
Tara Sinnott at tarasinnott@gmail.com

California – San Francisco

Under the auspices of UCSF Memory and Aging Center

          Meeting time:
          Second Thursday of the month from 12:30 to 2:00 p.m.

Location:
University of California, San Francisco
Neurosciences Building 19A
675 Nelson Rising Lane
San Francisco, CA 94158

Contact: 
Robin Ketelle at 415-514-2058

California – San Francisco

          For adult children of people with FTD. Under auspices of UCSF Memory and Aging Center

Meeting time:
Third Thursday of the month from 5:00-6:30 PM.

Location: 
This support group meets monthly via a toll-free conference call; people need not be located in California or the Bay Area to participate.  Callers from anywhere in the U.S. are welcome.  If you are interested, please contact the facilitator below for more information including the call-in number and passcode.

Contact: 
Jamie C. Fong, M.S., CGC, at 415-476-8613 or via email at:  jfong@memory.ucsf.edu

         California – San Francisco area

Caregiver support group for those caring for loved ones with CBD and PSP. Under the auspices of the Brain Support Network.

Meeting time:
Sundays, 5:00 PM – 7:00 PM, about every 6 weeks (call for schedule)

Location:
Mimi’s Cafe
2208 Bridgepointe Parkway
San Mateo, CA 94404

Contact:
Robin Riddle at 650-814-0848 or robin.riddle@brainsupportnetwork.org

         Colorado – Colorado Springs

Under the auspices of the Alzheimer’s Association, Colorado Chapter

Meeting time:
Third Wednesday of the month, 7:00 PM

Location:
First United Methodist Church
420 North Nevada (Room 231)
Colorado Springs, CO

Contact:
Alzheimer’s Association at 719-266-8773

Colorado – Denver

Under the auspices of the Alzheimer’s Association

Meeting time: 
Second Tuesday of the month, 5:00 PM

Location:
Porter Adventist Hospital
2525 S. Downing Street
Denver, CO

Contact:
Tina Wells – 303-813-1669

Nevada – Las Vegas area

Under the auspices of the Alzheimer’s Association, Desert Southwest Chapter

Meeting time:
Second Wednesday of each month, 7 to 8:30 p.m.

Location:
Glazier’s, Desert Marketplace
8525 W. Warm Springs Road (Durango and Warm Springs Roads)
Las Vegas, Nevada 89113

Before Attending Please Contact: Lisa Radin at lradin@iglide.net or Alzheimer’s Association, Desert Southwest Chapter – Southern Nevada Region, at 702-248-2770.

Nevada – Reno area

Under the auspices of the Alzheimer’s Association, Northern CA and Northern NV Chapter

Meeting time:
3rd Friday of each month, 11 a.m. – noon

Location:
Alzheimer’s Association of Northern Nevada
1301 Cordone Avenue, Suite 180
Reno, NV  89502

Contact:
Lisa Tauchen at threesids321@yahoo.com or Vicki Lebsack at vlebsack@alz.org.  Phone: 1-800-272-3900.

New Mexico – Albuquerque

Support group for those caring for a loved one with FTD or Lewy Body dementia.  Under the auspices of the Alzheimer’s Association, New Mexico Chapter

Meeting time:
First Sunday of each month, 2:00 to 5:30 p.m.

Location:
North east heights of Albuquerque

Contact:
For more information and location details, call Gretchen 505-823-1554

Utah – Salt Lake City area, morning group

Meeting time:
Second Wednesday of the month, 10:00 AM – 11:30 AM

Location:
Sandy Senior Center
9310 South, 1300 East
Sandy, UT

Contact:
Bonnie Shepherd at 801- 231-3442 or via email at: bbshepherd@comcast.net

Utah- Salt Lake City area, evening group

Meeting time:
Second Wednesday of the month, 6:00 PM- 7:30 PM

Location:
Bingham Creek Library
4834 West 9000 South
West Jordan, UT 84081

Contact:
Jamie Gordon at 801-550-3563 or via email at: jjgordon3@juno.com