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South Atlantic
Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region
Upcoming Events
Perfect “Jules” – Amber Dietz and Joy Clinger, sister and mother of Julie Dickmeyer Zerhusen who passed away from FTD at age 31 in 2009, have teamed up to make personalized accessories in memory of Julie. They hand craft hair bows, onesies, bibs, baby blankets and burp cloths for little ones, as well as personalized aprons, tote bags and bridal accessories for adults. A portion of their proceeds benefits AFTD.
Mom’s Laugh Project - Tori Tinsley’s mother was diagnosed with FTD in 2009. To honor her mother, Tori created the “Mom’s Laugh Project” where Tori creates full size paintings from pictures of her mother’s past, sells them, and donates part of the proceeds to AFTD. To date she has sold more than twenty of these preservation pieces.
AFTD Regional Network Coordinator
None at this time.
Research and Medical Centers with particular FTD Focus
Emory University, Atlanta, GA
Department of Neurology – Cognitive Neurology Clinic
Emory Alzheimer’s Disease Research Center
1821 Clifton Road
Atlanta, GA 30329
http://med.emory.edu/ADRC/dementias/frontotemporal_dementia/index.html
Contacts:
Cognitive Neurology Evaluations – 404-778-3444 to schedule appointments
Alzheimer’s Disease Research Center – 404-728-6950 for more details about FTD related research at Emory and how to participate.
Mayo Clinic, Jacksonville
Department of Neurology
4500 San Pablo Road
Jacksonville, FL 32224
www.mayoclinic.org/frontotemporal-dementia
Contact: 904-953-0853
University of Kentucky Memory Disorders Clinic
UK Medical Center
224 Charles T. Wethington Bldg.
800 South Limestone St.
Lexington, KY 40536-0284
http://www.mc.uky.edu/neurology/memory/memory.asp
Contact: Candace Bear 859-218-5047 or csjord0@email.uky.edu
University of Louisville
Division of Movement Disorders, University of Louisville School of Medicine,
Frazier Rehab Neuroscience Building
220 Abraham Flexner Way, Suite 1503
Louisville, KY 40202
Contact: Casey Shepherd, coordinator, at 502-852-3655 or cashep02@louisville.edu
University of North Carolina
Memory & Cognitive Disorders Clinic
101 Manning Drive
Chapel Hill, NC 27514
Phone: 919-966-8168
http://www.med.unc.edu/neurology/divisions/memory-and-cognitive-disorders
Support Groups in this Region
Florida – Gainesville
Meeting time: The 1st Thursday of every month from 5 p.m. - 6 p.m.
Location:
University of Florida
Dauer Hall, Room 335
Gainesville, FL 32611
Contact: Dr. Jamie Reilly – 352-273-2805 or jjreilly@phhp.ufl.edu
Florida – Melbourne
Meeting time: The 2nd Wednesday of every month; 11 a.m. – 12 noon
Location:
Sonata of Melbourne
3260 N. Harbor City Blvd (US 1)
Melbourne, FL 32935
Contact: For information about the support group, please call the East Central FL Memory Disorder Clinic – 321-434-7612, and press 6.
If respite is needed while attending meetings, contact Linn at Sonata of Melbourne 321-600-4747
Florida – Tampa
Meeting time: every six weeks; Sunday at 10 a.m.
Location:
Arden Court Alzheimer’s Assisted Living
14950 Casey Road
Tampa, Florida, 33624
Contact: Sue Simone at 203-725-6888 or via email at: sue-1@hotmail.com
Florida- West Palm Beach
First meeting: Friday April 5th, 1:30 to 3:30p.m.
Location:
Alzheimer’s Community Care
800 Northpoint Parkway Suite 101-B
West Palm Beach, Florida, 33407
Contact: Sandra Lutz at sandi.lutz1226@gmail.com
Please contact Alzheimer’s Community Care at (561) 683-2700 to RSVP for support group before attending meeting.
Georgia – Atlanta
Meeting time: 6:30 – 8:00 p.m. on second Tuesday of each month
Location:
AV Room of Emory’s Wesley Woods Geriatric Hospital
1821 Clifton Road
Atlanta, GA 30329 (click here for directions)
Contact: Tori Tinsley, LPC, ATR at victoriatinsley@gmail.com or 404-808-5676.
North Carolina – Burlington
Meeting time: 7 p.m. on the third Tuesday of every month
Location: Contact facilitator
Contact: Courtney Greene at brookecourt@bellsouth.net or 336-260-4798
North Carolina – Cary
Meeting time: 7 p.m. on the third Tuesday of every month
Location: Contact facilitator
Contact: Tayloire Queen at thequeens@nc.rr.com or 919-796-5752
North Carolina – Charlotte
Under the auspices of Alzheimer’s North Carolina
Meeting time: 2nd Sunday of the month from 3- 5 p.m.
Location: Contact facilitator for specifics.
Contact: Bill Masten at gwcycle@windstream.net or 704-664-2158
North Carolina – Raleigh
Meeting time: First Monday of the month, 7 - 8:30 p.m.
Location:
Alzheimer’s North Carolina
1305 Navaho Drive
Raleigh, NC
Contact: Nancy Broadwell at nbroadwell@alznc.org or 800-228-8738
NEW! North Carolina – Winston-Salem
Meeting time: Second Monday of the month, 7 - 9 p.m. (First meeting – Dec. 10, 2012)
Location:
Temple Emanuel
201 Oakwood Drive
Winston-Salem, NC 27103
Contact: Rona Klein at points14@live.com or by phone at 336-399-6968.
