Association for Frontotemporal Dementias

New England

Regional Network Coordinator [1] | Research and Medical Centers with FTD Focus [2] | Support Groups in this Region [3]

AFTD Volunteers Wanted! If you are interested in helping to increase awareness of FTD and AFTD in your community, consider volunteering for AFTD’s community outreach project. We are currently looking for volunteers in the New England Region to conduct visits with facility providers. If you would like to learn more about this initiative, please contact AFTD’s New England Regional Coordinator Volunteer, Katie Brandt at katiedianebrandt@gmail.com [4].

Upcoming Events

Memory Lanes: Bowling to Strike out Pick’s Disease – Casey Greemore and Nicholas Krapelin will host a bowling event at Merrimack Ten Pin in Merrimack, NH on July 21, 2013 from 11:00 a.m. – 2:00 p.m. to benefit AFTD.  Casey’s mom, Lenora, was diagnosed with FTD in 2012.  Contact Casey to sign up or for more information at cgreemore25@gmail.com [5].

Shattered Dreams Mosaic Art [6]- Valerie Pierce of Salem, NH creates mosaic plates made from broken pieces of glass and porcelain. Val’s husband has FTD, and the plates represent the “shattered dreams” of the life they were meant to live. Twenty percent of the proceeds from her online sales goes to the AFTD.

The Connecticut Frontotemporal Dementia Foundation [7] – The Harvey family of Connecticut created a foundation to raise money for FTD research in memory of their father and husband, Kevin.  They are selling beads for charm bracelets [8] with “Harvey’s Hugs” on them; 50% of their sales will benefit AFTD.

AFTD Regional Network Coordinator

Katie Brandt – KatieDianeBrandt@gmail.com [9]

Research and Medical Centers with FTD Focus

Massachusetts General Hospital

Department of Neurology, FTD Unit
15 Parkman St.
Boston, MA 02114
http://www.nmr.mgh.harvard.edu/~bradd/FTD.html [10]

Contact: Ms. Daisy Hochberg
(617) 726-5571 or MGHFTDUnit@partners.org [11]

Support Groups in this Region

Massachusetts - Boston area

Meeting time:
Last Tuesday of the month at 7 p.m.

Location:
Newton Wellesley Hospital, Silverman Board Room
2014 Washington Street
Newton, MA

Contact:
Barbara Neufeld or Katie Brandt via email at FTD.Boston@gmail.com [12]

 For more information about this support group, go to http://sites.google.com/site/ftdbostonsupportgroup/home [13].

New Hampshire - Salem

Meeting time:
Please contact facilitator for meeting dates and times.

Location:
Kelly Library (Beshada room)
234 Main Street
Salem, NH

Contact:
Val Pierce at val@shattereddreams.biz [14] (include “FTD Support Group” in the subject line) or 603-401-5544.