Mayo Clinic department of neurology presents:
CORTICOBASAL DEGENERATION AND PROGRESSIVE SUPRANUCLEAR PALSY FAMILY SEMINAR DAY
Date: Monday August 3, 2014
9:00am – 4:00pm
Location: Mayo Clinic, Assisi Heights Conference Center, Rochester, MN
The full day educational program provides families with information helpful in understanding and coping with symptoms unique to their specific disease from experts in the field. Participants are in a supportive setting with other families dealing with a similar diagnosis.
Who should attend?
• Any supportive caregiver, family member or relative who wants to know more is invited to attend.
• Persons diagnosed with the disease are welcome to attend; however, the content is designed for families and care partners. Please take into consideration the length of the day (7 hours) when deciding those best suited to attend.
• As space permits, care professionals may also register.
The program cost includes lunch and refreshments.
Please register or request a scholarship (limited) by calling 507-284-1324. Once registration is received, a confirmation letter including location and directions will be mailed.
Jesiii on Etsy – Jesi Rodgers, whose mother is affected with FTD, has designed a high quality art print on wooden paper. She will donate 50% of the proceeds from the sales to AFTD. Her piece is entitled “Remember to Love” and features a playful elephant, hearts and flowers.
To Tame a Wildflower - Laura Lytle has created FTD t-shirts that she sells on her website. A portion of each FTD t-shirt sold will be donated to AFTD. Simply scroll through to the page with the “Pray for the Cure 2″ FTD shirt to order.
Lorene Schlie: email@example.com. Lorene oversees: Indiana, Illinois, Michigan, Ohio, and Wisconsin
Charlene Martin-Lillie: firstname.lastname@example.org. Charlene oversees: North Dakota, South Dakota, Nebraska, Minnesota, and Iowa
Indiana Alzheimer Disease Center
Indiana University School of Medicine
635 Barnhill Drive
Medical Science Room A-142
Indianapolis, IN 46202-5120
Mayo Clinic, Rochester
4111 Highway 52 North
Rochester, MN 55901
Cognitive Neurology & Alzheimer’s Disease Center
320 E. Superior Street, #11-453B
Chicago, IL 60611
Contact: Darby Morhardt at 312-908-9432 or email@example.com
University Hospitals Neurological Institute
Brain Health and Center
Parkway Medical Building
3619 Park East Dr., Suite 211
Beachwood, OH 44122
For appointments: Kathy Perkins, Secretary – 216-464-6445 or firstname.lastname@example.org
For research and other services: Marianne Sanders, RN – 216-464-6462
Support group for FTD caregivers
Second Saturday of each month at 11:30 a.m.
30 E. Anthony Drive
Illinois – Chicago
For people diagnosed with PPA. Under the auspices of the Northwestern University Cognitive Neurology and Alzheimer’s Disease Center.
Early-Stage PPA Education and Support Group (for people who have been diagnosed with PPA)
Alternate Thursdays, 1 to 2 :30 p.m.
Cognitive Neurology and Alzheimer’s Disease Center
Northwestern University Feinberg School of Medicine
Mary O’Hara, LCSW, at 312-503-0604 or email@example.com
For caregivers of people diagnosed with FTD and PPA. Under the auspices of the Northwestern University Cognitive Neurology and Alzheimer’s Disease Center
Third Monday of the month, 6 – 7:30 p.m.
Northwestern Memorial Hospital, Downtown Chicago
Darby Morhardt, MSW, LCSW at 312-908-9432
Details posted on http://brain.northwestern.edu
Illinois – Chicago area, Downers Grove
Support Group for FTD caregivers and those with other dementias
First Tuesday of the month, 7 – 8:30 p.m.
Gloria Dei Lutheran Church
4501 Main Street
Downers Grove, Illinois 60516
Lorene Schlie at firstname.lastname@example.org
Support group for FTD caregivers
4th Saturday of the from 10:30 a.m. – 12:00 p.m.
Zinger Zanger Studio
929 N. Sheridan, Studio 1A
Peoria, IL 61601
Indiana – Indianapolis
Support group sponsored by the Indiana Alzheimer Disease Center
2nd Tuesday of each month, 6:30-8:30 p.m.
Indianapolis First Friends Church
3030 Kessler Blvd East Drive
Indianapolis, IN 46220
Mary Austrom, Ph.D. at email@example.com or 317-331-8306 or 317-501-1774
Michigan – Grand Rapids
Co-sponsored by the Alzheimer’s Association, Greater MI Chapter
First Wednesday of the month, 6:30-8:00 p.m.
Saint Mary’s Health Care
Lacks Center Grand Conference Room, Lower Level
250 Cherry Street
Grand Rapids, MI 49503
Karen S. Bugg, RN, LMSW, at 616-685-5445
Minnesota – Minneapolis/St Paul area
Co-sponsored by the Alzheimer’s Association – Minnesota-North Dakota Chapter and Bethesda Hospital, Alzheimer’s, Memory Loss & Dementia Clinic
For FTD caregivers
2nd & 4th Monday of the month from 6:00 – 8:00 p.m..
Bethesda Hospital- B- Level Conference Room
559 Capitol Blvd.
St. Paul, MN 55103
Tanya Rand, MSW, LICSW – 651-232-2202 (for more information about support groups)
Also offer a support group for people caring for a loved-one with any type of dementia which meets twice on the 4th Tuesday of the month from 10 a.m. to 12 p.m. or 5:30 to 7:30 p.m. Recreational programming for people with FTD is available at no cost, while caregivers attend this support group meetings.
For more information about recreational activities, contact at Michele Neuman – 651-232-2258
Minnesota – Twin Cities area
Under the auspices of the Alzheimer’s Association – Minnesota-North Dakota Chapter
First Monday of each month at 6:00 p.m.
Richfield United Methodist Church
5835 Lyndale Avenue South
Minneapolis, MN 55419
Moira Rummel at 612-920-5502
Ohio – Akron/Canton area
Under the auspices of the Alzheimer’s Association, Greater East OH area chapter
2nd Wednesday of the month, 6:00-7:00 p.m.
Neurology and Neuroscience
701 White Pond Dr.
Akron, OH 44320
Ohio – Cleveland area
Collaboration of the Alzheimer’s Association Cleveland Area Chapter and
University Hospitals Memory and Cognition Center
Second Saturday of the month, 1:30pm – 3:30p.m.
23215 Commerce Park Drive, 300
Beachwood, OH 44122
Lauren Brasse, LISW, MSSA, Alzheimer’s Association
at 216-342-5584 or 800-272-3900
Marianne Sanders, RN, Memory and Cognition Center at 216-464-6462
Ohio – Columbus area
Under the auspices of the Alzheimer’s Association, Northwest OH chapter
Third Saturday of the month, 9:30 – 11:30 a.m.
1379 Dublin Rd.
Columbus, Ohio 43215
Anne Bare, RNBS at 614-457-6003 or 800-272-3900
Ohio - Northwest Ohio area
Under the auspices of the Alzheimer’s Association, Central Ohio Chapter
2nd Monday of the month, 6:30 – 8:00 p.m.
St. Andrew United Methodist Church (parlor room)
120 West Sandusky Street
(Park on Crawford Street; enter church through door on Cory Street)
Linda Rae Pollitz, LSW at 419-227-9700