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Midwest
Regional Network Coordinator | Research and Medical Centers with FTD Focus | Support Groups in this Region
Upcoming Events
To Tame a Wildflower - Laura Lytle has created FTD t-shirts that she sells on her website. A portion of each FTD t-shirt sold will be donated to AFTD. Simply scroll through to the page with the “Pray for the Cure 2″ FTD shirt to order.
AFTD Regional Network Coordinators
Lorene Schlie: loreneschlie@comcast.net Lorene oversees: Indiana, Illinois, Michigan, Ohio, and Wisconsin
Charlene Martin-Lillie: cmartinlillie306@gmail.com Charlene oversees: North Dakota, South Dakota, Nebraska, Minnesota, and Iowa
Research and Medical Centers with particular FTD Focus
Indiana Alzheimer Disease Center
Indiana University School of Medicine
635 Barnhill Drive
Medical Science Room A-142
Indianapolis, IN 46202-5120
Contact: 317-274-1590
Mayo Clinic, Rochester
4111 Highway 52 North
Rochester, MN 55901
www.mayoclinic.org/frontotemporal-dementia/
Contact: 507-538-3270
Northwestern University
Cognitive Neurology & Alzheimer’s Disease Center
320 E. Superior Street, #11-453B
Chicago, IL 60611
Contact: Darby Morhardt at 312-908-9432 or d-morhardt@northwestern.edu
University Hospitals Neurological Institute
Brain Health and Center
Parkway Medical Building
3619 Park East Dr., Suite 211
Beachwood, OH 44122
http://www.uhhospitals.org/OurServices/NeurologicalInstitute/MemoryandCognitionCenter.aspx
Contacts:
For appointments: Kathy Perkins, Secretary – 216-464-6445 or kathy.perkins@uhhospitals.org
For research and other services: Marianne Sanders, RN – 216-464-6462
Support Groups in this Region
Illinois-Champaign
Support group for FTD caregivers
Meeting Time:
Second Saturday of each month at 11:30 a.m.
Location:
Olive Garden
30 E. Anthony Drive
Champaign, IL
Contact:
Kathy Vance at 217-493-4228 or kv650@mchsi.com or Valli Haines at 217-260-4233 or valli.haines@sbcglobal.net.
Please call before attending a meeting for the first time.
Illinois – Chicago
For people diagnosed with PPA. Under the auspices of the Northwestern University Cognitive Neurology and Alzheimer’s Disease Center.
Early-Stage PPA Education and Support Group (for people who have been diagnosed with PPA)
Meeting time:
Alternate Thursdays (Summer 2010), 1 to 2 :30 p.m.
Location:
Cognitive Neurology and Alzheimer’s Disease Center
Northwestern University Feinberg School of Medicine
Contact:
Mary O’Hara, LCSW, at 312-503-0604 or m-ohara@northwestern.edu
For caregivers of people diagnosed with FTD and PPA. Under the auspices of the Northwestern University Cognitive Neurology and Alzheimer’s Disease Center
Meeting time:
Third Monday of the month, 6 – 7:30 p.m.
Location:
Northwestern Memorial Hospital, Downtown Chicago
Contact:
Darby Morhardt, MSW, LCSW at 312-908-9432
Details posted on http://brain.northwestern.edu
Illinois – Chicago area, Downers Grove
Support Group for FTD caregivers and those with other dementias
Meeting time:
First Tuesday of the month, 7 – 8:30 p.m.
Location:
Gloria Dei Lutheran Church
4501 Main Street
Downers Grove, Illinois 60516
Contact:
Lorene Schlie at loreneschlie@comcast.net
Indiana – Indianapolis
Support group sponsored by the Indiana Alzheimer Disease Center
Meeting time:
2nd Tuesday of each month, 6:30-8:30 p.m.
Location:
Indianapolis First Friends Church
3030 Kessler Blvd East Drive
Indianapolis, IN 46220
Contact:
Mary Austrom, Ph.D. at mguerrie@iupui.edu or 317-331-8306 or 317-501-1774
Michigan – Grand Rapids
Co-sponsored by the Alzheimer’s Association, Greater MI Chapter
Meeting time:
First Wednesday of the month, 6:30-8:00 p.m.
Location:
Saint Mary’s Health Care
Lacks Center Grand Conference Room, Lower Level
250 Cherry Street
Grand Rapids, MI 49503
Contact:
Karen S. Bugg, RN, LMSW, at 616-685-5445
Minnesota – Minneapolis/St Paul area
For FTD caregivers
(While caregivers attend support group meetings, recreational programming for people with FTD is available at no cost.)
Meeting time:
Fourth Tuesday of each month; 10 a.m. to 12 p.m. or 5:30 to 7:30 p.m.
Location:
Bethesda Hospital- B- Level Conference Room
559 Capitol Blvd.
St. Paul, MN 55103
Contact:
Tanya Rand, MSW, LICSW at 651-232-2202
Minnesota – Twin Cities area
Meeting time:
First Monday of each month at 6:00 p.m.
Location:
Richfield United Methodist Church
5835 Lyndale Avenue South
Minneapolis, MN 55419
Contact:
Moira Rummel at 612-920-5502
Ohio – Akron/Canton area
Under the auspices of the Alzheimer’s Association, Greater East OH area chapter
Meeting time:
2nd Wednesday of the month, 6:00-7:00 p.m.
Location:
Neurology and Neuroscience
701 White Pond Dr.
Akron, OH 44320
Contact:
Erin Ferris at erin.ferris@alz.org or Karen Elliott at karen.elliott@alz.org or by phone at (330) 650-0552.
Ohio – Cleveland area
Collaboration of the Alzheimer’s Association Cleveland Area Chapter and
University Hospitals Memory and Cognition Center
Meeting time:
First Wednesday of the month, 6 – 8 p.m.
Location:
Alzheimer’s Association
23215 Commerce Park Drive, 300
Beachwood, OH 44122
Contact:
Lauren Brasse, LISW, MSSA, Alzheimer’s Association
at 216-231-1484 or 800-272-3900
Marianne Sanders, RN, Memory and Cognition Center at 216-464-6462
Ohio – Columbus area
Under the auspices of the Alzheimer’s Association, Northwest OH chapter
Meeting time:
Third Saturday of the month, 9:30 – 11:30 a.m.
Location:
Alzheimer’s Association
1379 Dublin Rd.
Columbus, Ohio 43215
Contact:
Anne Bare, RNBS at 614-457-6003 or 800-272-3900
Ohio - Northwest Ohio area
Under the auspices of the Alzheimer’s Association, Central Ohio Chapter
Meeting time:
2nd Monday of the month, 6:30 – 8:00 p.m.
Location:
St. Andrew United Methodist Church (parlor room)
120 West Sandusky Street
Findlay, OH
(Park on Crawford Street; enter church through door on Cory Street)
Contact:
Linda Rae Pollitz, LSW at 419-227-9700
