Association for Frontotemporal Dementias

Published Tributes

Many people find writing to be a valuable way to process their experiences while caring for a family member or friend who has FTD.  These books have been written to honor a loved one, or share personal perspectives of the impact of FTD.

Dueling with Dementia: Not the Love Story We Planned

by Kate Fritz Leonard

Kate Fritz Leonard is a wife, mother, friend, educator and now caregiver, who was living a happily-ever-after life with her husband and children until dementia took over her husband’s brain and he became a stranger in their home.  Kate writes about her family’s journey into the strange and scary world of dementia, and how she and her children, with much love and laughter, are coping and thriving together while dueling with their loved one’s dementia.

Purhase at:  Amazon.com [1]

An Evolution of Love: Life and Love with FTD

by Marie Sykes and Michelle Stafford

Bob Sykes passed away on April 7, 2006 from frontotemporal degeneration (FTD) at the age of 50.  He struggled mightily with this illness and his wife and daughter struggled with him, gaining an even greater respect for this fine man, as he slowly succumbed to a progressive and irreversible form of dementia.

Purchase at:  www.anevolutionoflove.com [2] or Amazon.com

And Two Shall Become One

by Jim Cardosi

After the death of his wife Cindy in July 2008, Jim Cardosi wrote this book for his children to honor her memory.  Written as a tribute their love and commitment to each other, Cardosi portrays the spirit of a woman fully devoted to her family and her faith. (A portion of the proceeds of sales of this book will be donated to AFTD).

Purchase at Amazon.com or www.allbookstores.com [3]

Dementia: The Monster Within

by Herb van Roekel

This book shares story of one family’s battle through five generations of the Monster, along with the stories of others who have met the Monster. It provides a framework of essential steps necessary to prepare both caregiver and victim for the future. It also shows the types of dementia and some of the science involved to help give understanding. “While we dare not offer false hope, there is every reason to have hope …” for finding a cure.

Purchase at:  The Laurus Company [4] or Amazon.com

I Can’t Hear the Music Anymore: One Family’s Journey with Frontotemporal Dementia, 2nd edition

by Linda Anne Bentz Parsons

The author tells the story of her husband, Douglas Parsons, who has FTD. Short practical chapters tell of changes in independence, social interaction, reasoning and judgment, as well as caregiving issues.  The book is written to give faith and hope that people are not alone in their journey with FTD.

To purchase send $10 check or money order to Linda A. Parsons, 222 Chicago Place NW, Canton, Ohio 44703 or email or at: laparsons61@sbcglobal.net [5]

If you have published a book or memoir that you would like to share with others, please let us know at info@theaftd.org [6] or 866-507-7222.

Strange Relation: A Memoir of Marriage, Dementia and Poetry

by Rachel Hadas

In 2004 Rachel Hadas’s husband, George Edwards, a composer and professor of music at Columbia University, was diagnosed with early-onset dementia at the age of sixty-one. Strange Relation is her account of “losing” George. Her narrative begins when George’s illness can no longer be ignored, and ends in 2008 soon after his move to a dementia facility (when, after thirty years of marriage, she finds herself no longer living with her husband). Within the cloudy confines of those difficult years, years when reading and writing were an essential part of what kept her going, she “tried to keep track… tried to tell the truth.”

Purchase at:  Amazon.com [7]