Association for Frontotemporal Dementias

Hospice – End of Life

If a family member has a terminal illness, it is never too early to learn about hospice and investigate hospice agencies as part of planning for health care.

Hospice is a philosophy of care that holds as fundamental a patient’s right to be treated with respect and dignity during his or her final period of life. It refers to a holistic approach that encompasses a range of compassionate services for both the patient and family. Hospice is also a specific federally funded program within Medicare in the United States.

The goal of hospice is to maintain the patient’s quality of life and to relieve pain and suffering as much as possible. It focuses on the emotional, spiritual, psychological, and physical needs of the patient. Hospice recognizes the important role family and friends play as caregivers, and will provide practical and other supports for them in that capacity.

The approach prioritizes the wishes and choices of the patient concerning how and where they want to live out their final days. Living wills, advanced medical directives, and do not resuscitate orders (DNR) may express some of these choices. Hospice will also provide the medical equipment needed to make it possible for the patient to remain at home, if they so choose.

Please read on through these links for What Hospice Offers, How to Arrange Hospice, and Considerations in FTD.