Managing Health Care

We must all be informed consumers of health care services – striving to find the right care for ourselves and our families.  No where is the responsibility greater than in managing the long-term care needs of someone with frontotemporal degeneration or another progressive brain disorder.  The person’s needs change significantly over time, requiring you to evaluate and adjust services accordingly. These sections will orient you to the health care providers that can help.

Coordinating Care

Individuals with FTD benefit from a variety of health care interventions, from MRIs to routine visits to the dentist’s office. Often the job of scheduling appointments and providing the necessary insurance and medical information falls to the primary caregiver. This section offers some ideas and tips for coordinating health care services for a loved one with FTD.

Finding a Doctor

Having a physician with experience in frontotemporal degeneration can make a tremendous difference in the care a patient receives and in the caregiver’s confidence. Understanding what various medical specialists do and how to find them is explored here.

Other Health Professionals

There are additional health professionals who contribute essential expertise to the medical team.  Read about how they can help ensure quality care and dignity.

Residential Care Options

As people become increasingly dependent, the main caregiver typically faces the question of whether home care or a residential placement can meet those needs best.   Here is an overview of some types of care you may want to explore.

Hospice – End of Life

Preparing for the end can be a difficult prospect.  Palliative care and hospice offer a valuable resource in your health care decision making.

Use the links in the outline to the right to learn more about each of these areas.