Strategies From People With FTD
People with FTD have limited opportunities to share their experiences with others. Your perspective is critical to creating a world where frontotemporal degeneration is understood, effectively diagnosed, treated, cured and ultimately prevented.
Anyone with strategies to share about managing daily challenges, or insights on life with FTD is welcome to submit a short written or creative piece. Your work will help others.
For more information about how to contribute to this page, contact firstname.lastname@example.org.
Many thanks to the contributors for sharing their insights
Primary Progressive Aphasia
Communicating with people affected with FTD can be challenging–for both parties involved. The following contributions reflect tips on communication strategies that people with PPA have found helpful in the early stages.
Submitted: August 2012
Joanne Douglas has PPA. She has a PhD in Molecular Microbiology and worked as a professor at The University of Alabama at Birmingham (UAB) in the field of human gene therapy. She has written two short pieces containing tips on communicating: one is for people affected with PPA and suggests how they can most effectively use their words and communicate with others, and the other is for other people who are trying to speak to someone with PPA.
Submitted: February 2013
Joanne continues to experience a decline in her ability to speak, read and, especially, to write. The tips she learned earlier still serve her well and she is continuing to implement those approaches on a daily basis. She has devised some additional strategies which make meaningful improvements to her quality of life as her condition progresses.