Strategies From People With FTD

People with FTD have limited opportunities to share their experiences with others.  Your perspective is critical to creating a world where frontotemporal degeneration is understood, effectively diagnosed, treated, cured and ultimately prevented.

Anyone with strategies to share about managing daily challenges, or insights on life with FTD is welcome to submit a short written or creative piece.  Your work will help others.

For more information about how to contribute to this page, contact

Many thanks to the contributors for sharing their insights


Primary Progressive Aphasia

Communicating with people affected with FTD can be challenging–for both parties involved.  The following contributions reflect tips on communication strategies that people with PPA have found helpful in the early stages.

Joanne Douglas

Submitted: August 2012

Joanne Douglas has PPA. She has  a PhD in Molecular Microbiology and worked as a professor at The University of Alabama at Birmingham (UAB) in the field of human gene therapy.  She has written two short pieces containing tips on communicating: one is for people affected with PPA and suggests how they can most effectively use their words and communicate with others, and the other is for other people who are trying to speak to someone with PPA.

Communication Tips for People with PPA

Communications Tips for Others when Speaking to Someone with PPA

You can read more about Joanne’s story via this link to Forbes.  If anyone would like to ask Joanne a question, you may email her at .


Joanne Douglas
Submitted: February 2013

Joanne continues to experience a decline in her ability to speak, read and, especially, to write. The tips she learned earlier still serve her well and she is continuing to implement those approaches on a daily basis. She has devised some additional strategies which make meaningful improvements to her quality of life as her condition progresses.

Additional Communication Tips for People with PPA