Finding Support

Even in the best of times, we look to friends and family for their perspectives and for mutual support.  These human needs become even more important when we’re hit with the cruelty of FTD and the poor understanding of it among our regular networks.

AFTD keenly appreciates that caregivers shouldn’t feel they are facing their challenges alone.  Among the resources we offer are:

AFTD’s Helpline

Let us help you find the information, resources and support you need.

Phone:   1-866-507-7222 (toll-free)

Please leave a message and we will return your call, generally within two business days

Email:     info@theaftd.org

Caregiver Support Groups

Sharing with people who understand the challenges you face caring for someone with FTD can make a world of difference.  This is where you will find information on a growing network of local and telephone caregiver support groups.

Day Programs, Home Health Care and Respite

Caregivers don’t always realize the importance of arranging breaks for their own well-being.  Adult day programs and home health care can provide vital services for your loved one, as well as provide you with time to renew and reenergize.

Connecting with Others

No one wants to face FTD alone, but not everyone is interested in structured support options.  We can help you find a way to connect with others that fits you, including meeting individuals informally, joining on-line groups or social networking options.

Patient Support Programs

Increasingly, people diagnosed with FTD are looking for information and support tailored to their needs.  Some programs are starting and more are needed.  Help AFTD develop and share resources for patients.

Helpful Tips from People with FTD

Sometimes the best advice for trying to communicate with someone with FTD can come from someone who is affected.  This page will provided helpful information for both patients and others when communicating.

Use the links on the right for more information about these opportunities.