Webinar with Dr. Brad Boeve – April 29, 2010: AFTD and CurePSP co-sponsored a web-based training with neurologist Brad Boeve, MD, chair of AFTD’s Medical Advisory Council. He addressed “Cognitive and Behavioral Issues in PSP, CBD, FTD and PPA.” The Webinar remains available through the CurePSP website or download Dr. Boeve’s slides.
Fort Worth Caregiver Conference, Fort Worth, Texas – May 21, 2010: The Fort Worth caregiver support group and the University of North Texas Health Science Center presented the first FTD educational conference in the U.S. South Central region. A copy of the conference agenda can be found here. Slides from many of the conference presenters are also available including those of Anne Lipton, MD, who provided an overview of FTD, Barbara Hardy, RN, who spoke about the role of care facilities, Paul Higgins, MEd, and Elizabeth Taylor, PhD, who discussed strategies for helping teens and children cope, Doris Svetlik, RN, who discussed FTD symptom management, AFTD Founder and AFTD Executive Director Helen-Ann Comstock and Susan Dickinson, MS, respectively, who provided an overview of AFTD, its growth and recent initiatives, and AFTD Founding Member and Keynote Speaker Lisa Radin, who delivered Strength for the Journey – Empowering Care Partners.
7th International Conference on FTD, Indianapolis, Ind. – October 6-8, 2010: The first day of the 7th International Conference on Frontotemporal Dementias, held October 6-8 in Indianapolis, featured a program for caregivers on FTD diagnosis, medical management, legal and financial issues, and support services. Caregiver program presenters (several listed here with links to their presentation slides) included: AFTD Medical Advisory Council (MAC) Member M.-Marsel Mesulam, M.D., of Northwestern University, who presented A Guided Tour of Frontal and Temporal Lobes; MAC Member Ian R.A. Mackenzie, M.D., of the University of British Columbia, who presented Molecular Genetics and Neuropathology of Frontotemporal Dementia; Kimberly A. Quaid, Ph.D., of Indiana University, who presented Genetic Counseling for Frontotemporal Dementias; MAC Member Tiffany W. Chow, M.D., of the University of Toronto, who presented What Are the Different Initial Presentations of Frontotemporal Dementia?; MAC Chair Bradley F. Boeve, M.D., of the Mayo Clinic, who presented FTD and PPA: The Journey to Diagnosis; Greg Jicha, M.D. Ph.D., of the University of Kentucky, who presented Medical Management of Frontotemporal Dementia; Arne Brun, M.D., Ph.D., of Lund University, Sweden, who presented The Hope for Therapies: Historical Aspects; MAC Member Michael Hutton, Ph.D., of Eli Lilly & Co., UK, who presented Present, Future: The Hope for Therapies; Pelagie M. Beeson, Ph.D., of the University of Arizona, who presented Managing Language Symptoms; Clarissa Rentz, of the Alzheimer’s Association of Greater Cincinatti, who presented Managing Difficult Behavioral Symptoms Associated with FTD; attorney Claire E. Lewis, who presented Planning for Incapacity; Darby Morhardt, M.S.W., L.C.S.W., of Northwestern University, who presented Accessing Community Based and Long Term Care Services; and AFTD Executive Director Susan L-J Dickinson, M.S., and Program Director Sharon S. Denny, M.A., who presented AFTD: Making Connections and Building Resources.
The 7th International Conference on FTD was led by MAC Vice Chair Bernardino Ghetti, M.D., of Indiana University, who served as conference president. The conference included in-depth presentations and discussions on emerging discoveries in the science and medicine of FTD from researchers from countries all over the world and as far away as Japan, Australia, Sweden and The Netherlands.