Connie Kunkle, best known for being an on-air host on Evine (formerly ShopNBC) was diagnosed with FTD in 2015 and passed away in 2016. Her closest friends and family have planned a Memory Walk and Celebration of Life in her memory, centralized around a very special place to Connie: Lake Eola in Orlando, FL. All are welcome to attend the Memory Walk and walk in honor or memory of a love one who is or has suffered from anything, not just FTD.
All of the events proceeds will benefit AFTD’s With Love campaign. Please click here to visit the With Love page created in memory of Connie. Additionally, eight restaurants around Lake Eola are participating in a “giveback night” on the Friday of the Memory Walk. A percent of each bill that mentions the Memory Walk will be donated to AFTD. Please see the details below for more information on the events.
Celebration of Life:
Contact AFTD’s Grassroots Events Coordinator, Bridget Graham with any questions: email@example.com
AFTD is recruiting for a newly-created Chief Financial Officer position. Please share widely this opportunity to play a pivotal leadership role in the organization’s work to drive research to a cure, and improve quality of life for all affected by FTD.
Not long after her mom was diagnosed with FTD in 2014, Wendy started designing and making fashionable yet functional medical bracelets to help with communication issues common to the disease. Imperfectly Perfect Jewelry will be participating in With Love this year, in a special way. During the month of February, Imperfectly Perfect Jewelry will donate $5 to AFTD for every piece of jewelry purchased. Please click here to shop.
Daniel Ranti is running in the 2017 Bank of America Chicago Marathon on October 8, 2017 in honor of his mom, Laura who has FTD. He is fundraising on Crowdrise to benefit AFTD in the months leading up to his race. Dan has already raised more than half of his $5,000 goal with the help of his generous supporters! Please click here to view his fundraiser and follow his story as he prepares to run 26.2 miles to #endFTD.
Doctors often rely on biomarkers – objective, easily measured biological features that indicate underlying pathology— to support accurate diagnosis and treatment efforts. Blood pressure, for example, is a widely-used biomarker for cardiovascular disease. Today, no comparable measures exist for FTD. The Association for Frontotemporal Degeneration (AFTD) aims to address these challenges with the award of $2 million to fund cutting-edge research into the discovery of FTD biomarkers.
After reviewing proposals from leading researchers worldwide, an expert panel has selected five researchers for multi-year FTD Biomarker awards. Recently released on PRNewswire, the full press release can be seen here.