AFTD Quality of Life Grants

AFTD will pilot a new Quality of Life grant for persons diagnosed with an FTD disorder as part of the Comstock Grant Program. This grant helps persons diagnosed offset the cost of goods and services that improve their quality of life. For the pilot, AFTD will award 20 Comstock Quality of Life Grants and collect feedback to help make future improvements. Pending the results of the pilot, the Quality of Life Grants will be incorporated into AFTD’s overall Comstock grant program. Anyone living in the U.S. and Canada with a documented diagnosis of an FTD disorder will be eligible for one Comstock Quality of Life grant per fiscal year. For more information, contact the AFTD HelpLine at 866-507-7222 or by emailing

AFTD Requests for Proposals (RFPs) for the 2017 Pilot Grant Program

AFTD is pleased to announce two Requests for Proposals (RFPs) for the 2017 Pilot Grant program, which provides seed funding for innovative FTD research by early-career investigators. The Basic Science Research Pilot Grant supports projects with the potential to expand our understanding of the biology or pathophysiology of FTD. The Clinical Research Pilot Grant, made possible by the Susan Marcus Memorial Fund, supports projects addressing the unmet medical needs of FTD. The deadline for applications is September 8, 2017.

“Hang It to Cure FTD”

Sharon and Rod Hall of Georgia are creating an FTD focused calendar for 2018 titled: Celebrating Life with Family, Friends and Fun. The calendar will feature pictures of people diagnosed with FTD alongside their family and friends. All proceeds from the calendar sales will be donated to AFTD. Sharon is now accepting orders via this order form and calendars are expected to ship October 2017. Please send order form and payment to Sharon, not AFTD.

Calendar Sample ~

Note: This is not an AFTD calendar but an Independent Grassroots Fundraiser benefiting AFTD. AFTD sincerely appreciates Sharon and Rod’s support.

Sacramento City Council Member Dies of PPA

Bonnie Pannell, who served on Sacramento’s city council for 16 years, died on June 27 from the effects of primary progressive aphasia. Pannell, who was 68, stepped down from her office in 2014, saying that her PPA had compromised her ability to do her job. “I don’t want to leave; my doctor told me I had to retire,” she said at the time. “My voice is gone.” Beloved by her fellow city council members, Pannell was described by one friend as a “protective mother bear” for her constituency and “one of the most effective council members we ever had.” Read more about Pannell in this Sacramento Bee article.

Hinchey Family Announces that Former Congressman Maurice D. Hinchey Has Been Diagnosed with FTD

The family of former New York Congressman Maurice D. Hinchey has announced that he has the primary progressive aphasia variant of FTD. Hinchey’s PPA symptoms began as the occasional lost word, but within a relatively short time the disease further affected his eloquent sense of language. Hinchey’s distinguished career in public service spanned 38 years in the U.S. House of Representatives and New York State Assembly. A full press release can be seen here.