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AFTD Program Director presents webinar sponsored by the Administration for Community Living (ACL).

AFTD Program Director Sharon Denny joined FTD advocates Brandt and Marie Henderson to present a webinar on January 16, sponsored by the Administration for Community Living (ACL). During the webinar, Denny gave a general overview of FTD and its subtypes, and explained the unique challenges faced by both persons diagnosed with FTD and their care partners. The Hendersons spoke about their personal experience with FTD: Brandt was diagnosed with behavioral variant FTD in 2011; his wife, Marie, is his care partner. The three presenters spoke about care strategies and approaches that can benefit both the person diagnosed and their care partner.

New York Times Magazine: How symptoms of FTD can negatively impact familial relationships

In The New York Times magazine, ethicist Kwame Anthony Appiah addresses how symptoms of FTD such as impaired judgment and disinhibition can negatively impact familial relationships.

TED Talk: How FTD Changed Beth Malone’s Idea of Death (and Life)

Nearly a decade after being diagnosed with FTD, Beth Malone’s dad was placed in a dementia care facility. Beth is a TED Resident, and she recently recorded a TED Talk, in which she delivers a deeply moving and personal account of life, death, dementia and unexpected moments of transcendence,

AARP Covers the Tragic FTD-Related Death of Deven Black

Deven Black died tragically in 2016, and while FTD was not the main culprit in his death, it was a menacing accomplice. AARP recently covered Deven’s story in depth, told from the perspective of his wife, Jill. The resulting article brings increased awareness to FTD and shows the importance of proper diagnosis and early intervention.

Maurice Hinchey, Former Congressman from New York, Dies of FTD

Maurice D. Hinchey, who represented New York State in Congress for 20 years, died on November 22 from frontotemporal degeneration. Earlier this year, Hinchey’s family announced that he was living with the primary progressive aphasia form of FTD. They said they went public with the story in order to “raise awareness [of FTD] and prevent people from being misdiagnosed.” After Hinchey made the decision to leave Congress in 2012, the Poughkeepsie Journal wrote that throughout his political career, he had been “forceful and unapologetic about his views, whether in the political majority or not.” Hinchey was 79.