Sharing our Stories

Tremendous value resides in the first-person accounts of patients, caregivers and other family members confronting FTD.  Not only can their writing provide insight into the clinical course of the disease, but personal stories also offer catharsis, validation and connection.  They teach us ways to convert tragedy into purpose and inspire hope.  We’re grateful for their generous expression.

Stories and Poems

In these short pieces, family members introduce us to patients and to their personal situations, giving us glimpses of the magnitude of their struggles and losses, as well as the power of love.

Blogs

Increasingly caregivers and family members turn to electronic media to journal about their experiences with FTD and share them with others.  These independent sites are provided for information onl; AFTD is not responsible for their content.

Published Accounts, Books & Tributes

A wealth of information and experience resides in this collection of books about FTD and related issues.  Some are self-published accounts, some are tributes; all are stimulating case studies and worthy resources.

 

For first person accounts and blogs by people diagnosed with FTD please visit  My Experience (insert link)

If you would like to share your writing with AFTD, please contact us by email info@theaftd.org or at 866-507-7222.