“Often the very people we need to help us through this journey do not understand what we are facing. When we feel that we are not heard or understood by those we turn to for assistance it can lead to more frustration.”
– FTD caregiver
Caregivers must often introduce the professionals they come in contact with to FTD and the challenges a family faces because of the unusual nature of the disease and its symptoms. Developed by a caregiver, the provider letter can be downloaded and distributed as an easy way to introduce someone to the frontotemporal degeneration disorders.
Examples of professionals who may benefit from the letter:
Primary Care Doctors
Mental Health Specialists
The Local Police Department
The Local Fire Department