Volunteer Recognition

“I am so thankful for everyone at AFTD and for all of the volunteers. It’s really remarkable when people come together to work towards bettering this world.” – Amy Eissler, AFTD Volunteer

Giving a Hand to our Helping Hands!

Colleen Seymour and her mother-in-law Kelly

When her mother-in-law Kelly was diagnosed last year with FTD, Colleen Seymour felt an overwhelming sense of grief and a loss of control.  She wondered, “What can I do?” With her mother-in-law living in another state, Colleen felt inspired to be a part of AFTD, to educate and reach out to her surrounding community. She has jumped right in, representing AFTD as a volunteer in a variety of roles and making a strong impact in Colorado.   Colleen recently shared her experiences with our community.

Tell us about your volunteer experiences.

I helped organize and plan an AFTD Denver Meet and Greet [held February 15]. Over 25 people from the FTD community attended, and many got to voice their perspectives, their concerns and questions. A local neurologist attended in the hopes of learning more about resources to offer patients.

I also set up an interview with Denver’s local 9News program, “Colorado & Company” to share information about FTD and AFTD. The 9News program wrote an online article and promoted the February Meet and Greet on their Facebook page…

How did volunteering in these various ways, make you feel?

When I was ten I watched my mom advocate for children living with disabilities, and create awareness in our local community.   I learned and witnessed the importance of reaching out and initiating changes I wished to see in my community. I know how difficult it is for families to know what to do, where to turn and what questions to ask. I feel grateful to be able to help where I can, in order to get awareness out there about FTD and available resources.

What’s next on your volunteer journey?

I am one of two volunteers spearheading the AFTD-Team for the Colfax Marathon in Denver, CO on May 20th-21st. I plan to run the full marathon and look forward to helping raise funds and awareness with other local families and AFTD volunteers, who are also racing.

What have you learned from your volunteer experiences?

It truly takes a village to enact change. It takes a proactive community. From the volunteers who help organize events, to those staff who work for AFTD, to the people who show up to meetings and support groups.  We need each other to be able to be a voice and presence not only for our loved ones, but for future loved ones who have yet to be diagnosed.

What would you say to people who are considering volunteering with AFTD?

Consider taking the time to volunteer in some capacity. The more you help others to connect, the stronger the community you build, and the less secluded you feel.

AFTD Southwest Regional Coordinator Volunteer, Kathy Urban—who collaborated with Colleen on the Denver Meet and Greet and will be joining her and AFTD Board Member Debbie Fenoglio at the Colfax Marathon—adds: “Colleen is an inspiration; she is truly passionate about community and advocacy.” Further, she notes: “It’s beyond exciting to see AFTD’s presence in Denver and Colleen has been instrumental in these efforts.  I’m looking forward to the upcoming Colfax Marathon; it will be a meaningful day for our local FTD community.”


To view past AFTD profiled volunteers for their outstanding service to the organization, see the links below:

Mark Allshouse
Jamie Mosier
Susan Eissler
Jody Zorn
Kacy Kunesh
Mary Campbell
David Driggers
Mary Selman
Brianna Sullivan
Angela Kimble
Barbara Neufeld
Mary Black

Recent Volunteers

AFTD is able to accomplish much more than otherwise possible as a result of our generous volunteers. To the volunteers across the country we say THANK YOU for your dedication and commitment as we work together towards care and a cure for FTD.

Middle Atlantic Region
Susan Miller-Abbott – Pennsylvania
Michelle Adams – Pennsylvania
Mark Allshouse – Pennsylvania
Sherry Amrhein – Pennsylvania
Sandy Anglin – New York
Carli Atkinson – New York
Sarah Beil – Virginia
Steve Bellwoar – Pennsylvania
Joan Braxton- Virginia
Patricia Buchanan – New Jersey
Helen-Ann Comstock – Pennsylvania
Nancy Cummings – New York
Joanna Dauber – Pennsylvania
Joan Davis – Maryland
Brenda Elkin – Pennsylvania
Danielle Sculley-Ellett – Pennsylvania
Corey Esannason – New York
Jamie Farid – Virginia
Joe Fischel – New York
Sylvia Gentry – Pennsylvania
Christine Groth – New York
Barbara Hala – New York

Sue Hirsch – Pennsylvania
Rebecca Hixon – Pennsylvania
Hillary Horgan – Maryland
Gail Houseman – Pennsylvania
Sandy  Karger – Pennsylvania
Susan Laden – Washington D.C.
Patricia Lombreglia – New Jersey
Carol Lovett – Pennsylvania
Robin Mansfield – Maryland
Vicki Masciandaro – Pennsylvania
Chadbourne Marshall – Virginia
Kathy Mele – New York
Jennifer Morabito – Maryland
Maja Murphy – Pennsylvania
Angie Phelon – Virginia
Barbara Pickels – Virginia
Aryeh Portnoy – Maryland
Shanna Price – Virginia
Gary Radin – Pennsylvania
Geri Radin – Pennsylvania
Deanna Rice – Virginia
Cortney Walker-Rohr – Pennsylvania
Brian Rose – New York
Elaine Rose – Maryland
Popkin Shenian – Pennsylvania
Leah Strauss – New York
Eric Simon – Pennsylvania
Cathy Sperrick – New York
Kaitlyn Sphon – Maryland
Taylor Sphon – Maryland
Ellen Steinbart – Pennsylvania
Nan Swid – New York
Reller Thomas – Pennsylvania
Howie Tilkin – New York
Amy Vernon – Maryland
Stuart Waldman – New Jersey
Gretta Walter – Virginia
Sidney Williams – New Jersey
Russell Zomback – New York
Jody Zorn – New York

Southwest Region
Karine Adalian – California
Deanna Angello – California
Brent Blaes – California
Kristena Corbett – California
Rebecca Cordova – Colorado
Debbie Fenoglio – Colorado
Maggie Frey – Colorado
Howard Glick – Arizona
Larissa Haiker – California
Geri Hall – Arizona
Ariel Harden – California
Brittany Hatfield – California
Erin Hopper – Arizona
Cheryl Johnson – Arizona
Liz Johnston – California
Jan Keller – California
Jary Larsen – California
Andrea Maga – Colorado
Phillip Myers – California
Jerry Orland – California
David Pfeifer – Colorado
Lisa Radin – Nevada
Robbin Riddle – California
Kathy Ritchie – Arizona
Catherine Sharpsteen – Utah
Jill Shapira – California
Bonnie Shepherd – Utah
Lisa Tauchen – Nevada
Deborah Thelwell – Arizona
Missey Toomey – Colorado
Kelly Tyler – California
Kathy Urban – Colorado
Brandee Waite – California
Beth Walter – California
Terry Walter – California
Teresa Webb – Arizona
Colin Whitmarsh – California
John Whitmarsh – California
Teresa Zawicki – California

South Atlantic Region
Robin Albright – Florida
Laura Alvarico – North Carolina
Debbie Baumgartner – Alabama
Lucy Carter – Tennessee
Charles Elligson – North Carolina
Michelle Grant – North Carolina
Lisa Gwyther – North Carolina
Sharon Hall – Georgia
Matt Hatfield – Florida
Pam Hatfield – Florida
Leslie Johnson – Alabama
Rona Klein – North Carolina
Paul Lester – North Carolina
Sandra Lutz – Florida
Taunya Mann – North Carolina
Mary Revels – South Carolina
Mary Anne Upham – Florida
Rebekah Wilson – Tennessee
Kati Woodford – North Carolina

Midwest Region
Gail Andersen – Ohio
Deanna Baker – Illinois
Nick Basile – Illinois
Kayla Boehmer – Iowa
Vickie Bope – Ohio
Jen Braico – Wisconsin
Sandra Cournoyer – Minnesota
Deborah Dolan – Minnesota
Karen Duhig – Illinois
Maria Green – Iowa
Sandi Grow – Ohio
Margaret Haferman – Wisconsin
Katrina Hellman – Illinois
Vikki Indermuehle – Minnesota
Suzanne King – Ohio
Erika Kruchten – Illinois
Susan McEwan – Michigan
Jon Moretti – Michigan
Lisa Myers – Indiana
Deb Nash – Iowa
Jamie Ritzer-Mosier – Ohio
Lorene Schlie – Illinois
Barbara Sidders – Minnesota
George J. Sidoris – Ohio
Amy Totten – Indiana
Erin Walla – Michigan
Ken Weinlaeder – Iowa
Karen Wilson – Indiana
Ryan Windhorst – Illinois
Dave Wouters – Wisconsin

Northwest Region
Susan Butterfield – Washington
Lorrie Cox – Oregon
Mike Kipp – Washington
Joanne Linerud – Washington
Amy Eissler-Parker – Oregon
Marise Rowell – Montana

New England Region
Amy Almeida – Massachusetts
Chuck Anastasia – Rhode Island
Wendy Miller-Anello – Massachusetts
Dorian Bannister – Maine
Katie Brandt – Massachusetts
Diane Brody – Massachusetts
Rick Childs – Massachusetts
Lisa Donnellan – New Hampshire
Marc Filipkowski – Connecticut
Ed Fitzgerald – Connecticut
Esther Harvey – Connecticut
Brandt Henderson – Massachusetts
Jennifer Jedow – New Hampshire
Emily Levy – Massachusetts
Barbara Neufeld – Massachusetts
Kathleen Pondelli – Massachusetts
Doreen Putnam – Rhode Island
Lisa Roberts – Massachusetts
Meghan Roscoe – Connecticut
Alice Saunders – Massachusetts

South Central Region
Doris Booth – Texas
Scott Cain – Arkansas
Rachel Castellanos – Louisiana
Dick Colangelo – Texas
Dionne Coston – Texas
Jordan Daniels – Louisiana
Sarah DeLuca – Missouri
Susan Eissler – Texas
Stephen Fenoglio – Texas
Barbara Harty – Texas
Maya Henry – Texas
Zoy Kocian – Texas
Kacy Kunesh – Texas
Barbara Loewy – Texas
Stephanie McLain – Texas
Shana Nissen – Texas
Gary Peacock – Texas
Stacy Rathbone – Oklahoma
Tam Smith – Kansas
Susan Suchan – Oklahoma
Tiffany Turner – Oklahoma
Ruth Wilcox – Kansas
Christopher Yurkanan – Texas

International Volunteers
Laura-Doe Harris – United Kingdom
Mary McLeod – Canada